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ADRD researchers seek family caregivers for survey

Posted by ld583 on February 11, 2020

Would you like to talk about your Alzheimer’s disease or dementia caregiving experience? Researchers from the Southwest Health Equity Research Collaborative (SHERC) are conducting a study that will identify the needs and assets of diverse caregivers of persons with Alzheimer’s and related dementias (ADRD) in northern Arizona.
The multi-disciplinary research team received a one-year, $374,906 administrative supplement grant from the National Institutes of Health to study diverse caregivers of persons with ADRD living in northern Arizona.
Family caregivers provide the bulk of care to individuals with Alzheimer’s and similar conditions. These intense responsibilities cause many caregivers to experience high rates of chronic stress, anxiety, depression, and physical health conditions. The symptoms intensify for caregivers of diverse and rural backgrounds who have fewer means to access health and support resources, according to past research.
To identify caregiver needs, researchers from the study will conduct focus groups and surveys of family caregivers as well as interview policymakers and providers. The research team will also produce a report on the healthcare and social support resources that are available to caregivers in northern Arizona, and participants will receive personalized maps and information on what resources are close to them. In the future, the results will be used to reduce health inequities of American Indian, Latino, and rural caregivers and develop a multi-level understanding of their needs to promote future policies, practices, and research initiatives.
The grant is led by principal investigator Dr. Julie Baldwin, director of the Center of Health Equity Research with co-investigators Dr. Dorothy Dunn, associate professor for the NAU College of Nursing, Dr. Evie Garcia, associate professor for the NAU Department of Educational Psychology, Dr. Michael McCarthy, associate professor for the Department of Social Work, and Dr. Heather Williamson, assistant professor for CHER and the NAU Occupational Therapy department, with the assistance of Rachel Bacon, the project coordinator, and Morgan Regalado Hustead, a doctoral student. The project is funded by the National Institute on Minority Health and Health Disparities of the National Institutes of Health under grant No. 3U54MD012388-03S1.
If you know of caregivers, providers, or policy makers who might be interested in participating in this study, please contact Rachel Bacon at Rachel.Bacon@nau.edu. The online survey associated with this study is also up and ready. Follow this link to take it now, or share it with a caregiver you know!

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ADRD Alexandra Samarron Alzheimer's and Related Dementias study Amit Kumar Amy Armstrong-Heimsoth Carmenlita Chief Carolyn Camplain Catherine Propper CCPS Center for Health Equity Research CHER CHER/SHERC 2021 newsletter CHER/SHERC newsletter Community-Campus Partnerships Community-Campus Partnership Support Community Engagement Core COVID-19 COVID-19 and health equity Dulce Jiménez Eck Doerry Emery Eaves Fairness First Fairness First podcast Health equity health equity research Health Justice Futures Heather Williamson Indrakshi Roy Julie A. Baldwin Julie Baldwin Kalvina Belin Mark Remiker Naomi Lee NAU-community partnership funding opportunities Nicolette Teufel-Shone Pilot Project Program Research Infrastructure Core research project RIC Ricky Camplain Robert Trotter Samantha Sabo SHERC SHERC National Institute on Minority Health and Health Disparities of the National Institutes of Health grant Southwest Health Equity Research Collaborative

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