NAU publications by CHER
Faculty & staff publications
NAU faculty and staff have the opportunity to publish their findings and knowledge as authors. CHER has many researchers that have been cited multiple times in major publications for their great work. The Center for Health Equity Research has accumulated all faculty publications into one, easy to navigate database.
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Castagno, Angelina E; Ingram, Jani C; Camplain, Ricky International Journal of Science Education, 45 (2), pp. 106-124, 2023. @article{Castagno2023b, title = {Opening up STEMM pathways among Indigenous people in the U.S.: what is the role of cultural, spiritual, and ethical conflicts in Indigenous people's STEMM educational and career decisions?}, author = {Angelina E. Castagno and Jani C. Ingram and Ricky Camplain}, url = {https://doi.org/10.1080/09500693.2022.2152293}, doi = {10.1080/09500693.2022.2152293}, year = {2023}, date = {2023-06-07}, journal = {International Journal of Science Education}, volume = {45}, number = {2}, pages = {106-124}, abstract = {This paper explores how the educational and career paths of Indigenous people in STEMM have been impacted by ethical, cultural, and/or spiritual issues. Based on a survey of over 400 Indigenous students and professionals in STEMM fields, plus over 30 follow-up interviews, we find that these issues cause some Indigenous people to leave particular fields altogether, others to avoid certain tasks within their chosen field, and still others to intentionally select particular fields. Ethical, cultural, and/or spiritual issues also are the reason some Indigenous people choose certain career paths, because of their desire to help their communities. By understanding these pathway impacts, STEMM leaders and educators can ensure more equitable pathways and can prepare, recruit, and retain Indigenous people in STEMM fields.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This paper explores how the educational and career paths of Indigenous people in STEMM have been impacted by ethical, cultural, and/or spiritual issues. Based on a survey of over 400 Indigenous students and professionals in STEMM fields, plus over 30 follow-up interviews, we find that these issues cause some Indigenous people to leave particular fields altogether, others to avoid certain tasks within their chosen field, and still others to intentionally select particular fields. Ethical, cultural, and/or spiritual issues also are the reason some Indigenous people choose certain career paths, because of their desire to help their communities. By understanding these pathway impacts, STEMM leaders and educators can ensure more equitable pathways and can prepare, recruit, and retain Indigenous people in STEMM fields. |
Baldwin, Julie; Alvarado, Angelica; Jarratt-Snider, Karen; Hunter, Amanda; Keene, Chesleigh; Castagno, Angelina; Ali-Joseph, Alisse; Roddy, Juliette; Jr, Manley Begay A; Joseph, Darold H; Goldtooth, Carol; Camplain, Carolyn; Smith, Melinda; McCue, Kelly; Begay, Andria B; Teufel-Shone, Nicolette I Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Multi-Method Study Journal Article Forthcoming JMIR Publications, Forthcoming. @article{Baldwin2023, title = {Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Multi-Method Study}, author = {Julie Baldwin and Angelica Alvarado and Karen Jarratt-Snider and Amanda Hunter and Chesleigh Keene and Angelina Castagno and Alisse Ali-Joseph and Juliette Roddy and Manley A. Begay Jr and Darold H. Joseph and Carol Goldtooth and Carolyn Camplain and Melinda Smith and Kelly McCue and Andria B. Begay and Nicolette I. Teufel-Shone}, url = {https://preprints.jmir.org/preprint/44727/accepted}, doi = {10.2196/44727}, year = {2023}, date = {2023-05-03}, journal = {JMIR Publications}, abstract = {Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. Clinical Trial: N/A}, keywords = {}, pubstate = {forthcoming}, tppubtype = {article} } Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. Clinical Trial: N/A |
Castagno, Angelina E; Camplain, Ricky; Ingram, Jani C; Blackhorse, Davona “It hurts to do work like that”: The nature and frequency of culturally based ethical barriers for Indigenous people in STEMM Journal Article Science Education, 107 (4), pp. 837-852, 2023. @article{Castagno2023bb, title = {“It hurts to do work like that”: The nature and frequency of culturally based ethical barriers for Indigenous people in STEMM}, author = {Angelina E. Castagno and Ricky Camplain and Jani C. Ingram and Davona Blackhorse}, doi = {10.1002/sce.21792}, year = {2023}, date = {2023-03-22}, journal = {Science Education}, volume = {107}, number = {4}, pages = {837-852}, abstract = {This article presents data from a survey of over 400 Indigenous students and professionals in STEMM (science, technology, engineering, mathematics, medicine) fields to answer the questions: What are the perceived ethical/cultural/spiritual conflicts Indigenous students and professionals in STEMM face? Is there an association between the cultural characteristics of Indigenous students and professionals and the ethical, cultural, and spiritual conflicts they face? Our findings indicate that many standard practices in STEMM fields do indeed conflict with taboos in various Indigenous communities and that these conflicts are more prevalent for people with higher cultural characteristics scores and for those in specific STEMM disciplines. Our research provides an empirical complement to the rich and growing body of literature on Indigenous science, epistemologies, and traditional ecological knowledge.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This article presents data from a survey of over 400 Indigenous students and professionals in STEMM (science, technology, engineering, mathematics, medicine) fields to answer the questions: What are the perceived ethical/cultural/spiritual conflicts Indigenous students and professionals in STEMM face? Is there an association between the cultural characteristics of Indigenous students and professionals and the ethical, cultural, and spiritual conflicts they face? Our findings indicate that many standard practices in STEMM fields do indeed conflict with taboos in various Indigenous communities and that these conflicts are more prevalent for people with higher cultural characteristics scores and for those in specific STEMM disciplines. Our research provides an empirical complement to the rich and growing body of literature on Indigenous science, epistemologies, and traditional ecological knowledge. |
Armin, Julie S; Williamson, Heather J; Rothers, Janet; Lee, Michele S; Baldwin, Julie A JMIR Research Protocols, 12 (e37801), 2023. @article{Armin2023, title = {An adapted cancer screening education program for Native American women with intellectual and developmental disabilities and their caregivers: Protocol for feasibility and acceptability testing}, author = {Julie S Armin and Heather J Williamson and Janet Rothers and Michele S Lee and Julie A Baldwin }, url = {https://www.researchprotocols.org/2023/1/e37801}, doi = {10.2196/37801}, year = {2023}, date = {2023-02-13}, journal = {JMIR Research Protocols}, volume = {12}, number = {e37801}, abstract = {Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC. |
Clausen, Rebecca J; Chief, Carmenlita; Teufel-Shone, Nicolette I; Begay, Manley A; Jr., Perry Charley H; Beamer, Paloma I; Anako, Nnenna; Chief, Karletta Diné-centered research reframes the Gold King Mine Spill: Understanding social and spiritual impacts across space and time Journal Article ScienceDirect, 97 , pp. 449-457, 2023. @article{Clausen2023, title = {Diné-centered research reframes the Gold King Mine Spill: Understanding social and spiritual impacts across space and time}, author = {Rebecca J. Clausen and Carmenlita Chief and Nicolette I. Teufel-Shone and Manley A. Begay and Perry H. Charley Jr. and Paloma I. Beamer and Nnenna Anako and Karletta Chief}, url = {https://www.sciencedirect.com/science/article/pii/S0743016722003217}, doi = {10.1016/j.jrurstud.2022.12.021}, year = {2023}, date = {2023-01-01}, journal = {ScienceDirect}, volume = {97}, pages = {449-457}, abstract = {This paper explores how Indigenous-led research reframes the impacts and response to environmental disasters in the context of acid mine spills in rural communities of the Southwest United States. The collaborative research project addressing the Gold King Mine Spill (GKMS) designed qualitative methodologies that center Indigenous worldviews and contribute to broader understandings of environmental justice. The research team, led by Diné scholars and community leaders, gathered qualitative responses from 123 adult participants in twelve focus groups from three rural communities on the Navajo Nation. The project incorporated fluent Diné speakers and cultural consultants to lead focus groups in a manner consistent with cultural worldviews. The analysis of the focus group data resulted in original findings that reframe previous understandings of environmental harm by broadening the boundaries to include: 1) social relations across time; 2) social relations across space; 3) spiritual relations; and 4) restoring balance. The findings allow for greater insight into the colonial context of disaster on rural and Indigenous lands and confronts colonial-rooted disasters through Indigenous-informed political action.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This paper explores how Indigenous-led research reframes the impacts and response to environmental disasters in the context of acid mine spills in rural communities of the Southwest United States. The collaborative research project addressing the Gold King Mine Spill (GKMS) designed qualitative methodologies that center Indigenous worldviews and contribute to broader understandings of environmental justice. The research team, led by Diné scholars and community leaders, gathered qualitative responses from 123 adult participants in twelve focus groups from three rural communities on the Navajo Nation. The project incorporated fluent Diné speakers and cultural consultants to lead focus groups in a manner consistent with cultural worldviews. The analysis of the focus group data resulted in original findings that reframe previous understandings of environmental harm by broadening the boundaries to include: 1) social relations across time; 2) social relations across space; 3) spiritual relations; and 4) restoring balance. The findings allow for greater insight into the colonial context of disaster on rural and Indigenous lands and confronts colonial-rooted disasters through Indigenous-informed political action. |
Lopez, Albertina; Lynn, Jewlya; Peak, Geri; Petillo, Michael; Rios, Aisha; Shanker, Vidhya; Wolf, Susan Decolonization in Evaluation Week: Voices of Decolonizing Evaluation Needs YOUR Voice Journal Article AEA365, 2022. @article{Lopez2022, title = {Decolonization in Evaluation Week: Voices of Decolonizing Evaluation Needs YOUR Voice }, author = {Albertina Lopez and Jewlya Lynn and Geri Peak and Michael Petillo and Aisha Rios and Vidhya Shanker and Susan Wolf}, url = {https://aea365.org/blog/decolonization-in-evaluation-week-voices-of-decolonizing-evaluation-needs-your-voice-by-albertina-lopez-jewlya-lynn-geri-peak-michael-petillo-aisha-rios-vidhya-shanker-susan-wolf/}, year = {2022}, date = {2022-10-31}, journal = {AEA365}, abstract = {Greetings good people, we are Albertina Lopez, Jewlya Lynn, Geri Peak, Michael Petillo, Aisha Rios, Vidhya Shanker & Susan Wolfe, the team of voices behind AEA session #5365, Voices of Decolonizing Evaluation: Moving from Discussion to Action. Following on our blogs from last year, we are expanding the ongoing discourse on evaluation’s role in envisioning and co-creating a just society by opening space for more voices so that we can advance our understanding together—stimulating change within and among ourselves, and facilitating collective action.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Greetings good people, we are Albertina Lopez, Jewlya Lynn, Geri Peak, Michael Petillo, Aisha Rios, Vidhya Shanker & Susan Wolfe, the team of voices behind AEA session #5365, Voices of Decolonizing Evaluation: Moving from Discussion to Action. Following on our blogs from last year, we are expanding the ongoing discourse on evaluation’s role in envisioning and co-creating a just society by opening space for more voices so that we can advance our understanding together—stimulating change within and among ourselves, and facilitating collective action. |
Carroll, Stephanie Russo; Suina, Michele; Jäger, Mary Beth; Black, Jessica; Cornell, Stephen; Gonzales, Angela A; Jorgensen, Miriam; Palmanteer-Holder, Nancy Lynn; Rosa, Jennifer De La S; Teufel-Shone, Nicolette I Reclaiming Indigenous Health in the US: Moving Beyond the Social Determinants of Health Journal Article Int. J. Environ. Res. Public Health, 19 (7495), 2022. @article{Carroll2022, title = {Reclaiming Indigenous Health in the US: Moving Beyond the Social Determinants of Health}, author = {Stephanie Russo Carroll and Michele Suina and Mary Beth Jäger and Jessica Black and Stephen Cornell and Angela A. Gonzales and Miriam Jorgensen and Nancy Lynn Palmanteer-Holder and Jennifer S. De La Rosa and Nicolette I. Teufel-Shone }, url = {https://doi.org/10.3390/ijerph19127495}, doi = {10.3390/ijerph19127495}, year = {2022}, date = {2022-06-18}, journal = {Int. J. Environ. Res. Public Health}, volume = {19}, number = {7495}, abstract = {The lack of literature on Indigenous conceptions of health and the social determinants of health (SDH) for US Indigenous communities limits available information for Indigenous nations as they set policy and allocate resources to improve the health of their citizens. In 2015, eight scholars from tribal communities and mainstream educational institutions convened to examine: the limitations of applying the World Health Organization’s (WHO) SDH framework in Indigenous communities; Indigenizing the WHO SDH framework; and Indigenous conceptions of a healthy community. Participants critiqued the assumptions within the WHO SDH framework that did not cohere with Indigenous knowledges and epistemologies and created a schematic for conceptualizing health and categorizing its determinants. As Indigenous nations pursue a policy role in health and seek to improve the health and wellness of their nations’ citizens, definitions of Indigenous health and well-being should be community-driven and Indigenous-nation based. Policies and practices for Indigenous nations and Indigenous communities should reflect and arise from sovereignty and a comprehensive understanding of the nations and communities’ conceptions of health and its determinants beyond the SDH.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The lack of literature on Indigenous conceptions of health and the social determinants of health (SDH) for US Indigenous communities limits available information for Indigenous nations as they set policy and allocate resources to improve the health of their citizens. In 2015, eight scholars from tribal communities and mainstream educational institutions convened to examine: the limitations of applying the World Health Organization’s (WHO) SDH framework in Indigenous communities; Indigenizing the WHO SDH framework; and Indigenous conceptions of a healthy community. Participants critiqued the assumptions within the WHO SDH framework that did not cohere with Indigenous knowledges and epistemologies and created a schematic for conceptualizing health and categorizing its determinants. As Indigenous nations pursue a policy role in health and seek to improve the health and wellness of their nations’ citizens, definitions of Indigenous health and well-being should be community-driven and Indigenous-nation based. Policies and practices for Indigenous nations and Indigenous communities should reflect and arise from sovereignty and a comprehensive understanding of the nations and communities’ conceptions of health and its determinants beyond the SDH. |
Ignacio, Matt; Oesterle, Sabrina; Mercado, Micaela; Carver, Ann; Lopez, Gilberto; Wolfersteig, Wendy; Ayers, Stephanie; Ki, Seol; Hamm, Kathryn; Parthasarathy, Sairam; Berryhill, Adam; Evans, Linnea; Sabo, Samantha; Doubeni, Chyke Nature Public Health Emergency Collection, pp. 1-13, 2022. @article{Ignacio2022, title = {Narratives from African American/Black, American Indian/Alaska Native, and Hispanic/Latinx community members in Arizona to enhance COVID-19 vaccine and vaccination uptake}, author = {Matt Ignacio and Sabrina Oesterle and Micaela Mercado and Ann Carver and Gilberto Lopez and Wendy Wolfersteig and Stephanie Ayers and Seol Ki and Kathryn Hamm and Sairam Parthasarathy and Adam Berryhill and Linnea Evans and Samantha Sabo and Chyke Doubeni}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8942760/}, doi = {10.1007/s10865-022-00300-x}, year = {2022}, date = {2022-03-24}, journal = {Nature Public Health Emergency Collection}, pages = {1-13}, abstract = {The state of Arizona has experienced one of the highest novel coronavirus disease 2019 (COVID-19) positivity test rates in the United States with disproportionally higher case rates and deaths among African-American/Black (AA/B), American Indian/Alaska Native (Native), and Hispanic/Latinx (HLX) individuals. To reduce disparities and promote health equity, researchers from Arizona State University, Mayo Clinic in Arizona, Northern Arizona University, and the University of Arizona formed a partnership with community organizations to conduct state-wide community-engaged research and outreach. This report describes results from 34 virtually-held focus groups and supplemental survey responses conducted with 153 AA/B, HLX, and Native community members across Arizona to understand factors associated with COVID-19 vaccine hesitancy and confidence. Focus groups revealed common themes of vaccine hesitancy stemming from past experiences of research abuses (e.g., Tuskegee syphilis experiment) as well as group-specific factors. Across all focus groups, participants strongly recommended the use of brief, narrative vaccination testimonials from local officials, community members, and faith leaders to increase trust in science, vaccine confidence and to promote uptake.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The state of Arizona has experienced one of the highest novel coronavirus disease 2019 (COVID-19) positivity test rates in the United States with disproportionally higher case rates and deaths among African-American/Black (AA/B), American Indian/Alaska Native (Native), and Hispanic/Latinx (HLX) individuals. To reduce disparities and promote health equity, researchers from Arizona State University, Mayo Clinic in Arizona, Northern Arizona University, and the University of Arizona formed a partnership with community organizations to conduct state-wide community-engaged research and outreach. This report describes results from 34 virtually-held focus groups and supplemental survey responses conducted with 153 AA/B, HLX, and Native community members across Arizona to understand factors associated with COVID-19 vaccine hesitancy and confidence. Focus groups revealed common themes of vaccine hesitancy stemming from past experiences of research abuses (e.g., Tuskegee syphilis experiment) as well as group-specific factors. Across all focus groups, participants strongly recommended the use of brief, narrative vaccination testimonials from local officials, community members, and faith leaders to increase trust in science, vaccine confidence and to promote uptake. |
Teufel-Shone, Nicolette I; Chief, Carmenlita; Richards, Jennifer R; Clausen, Rebecca J; Yazzie, Alfred; Jr, Manley Begay A; Lothrop, Nathan; Yazzie, Janene; Begay, Andria B; Beamer, Paloma I; Chief, Karletta International Journal of Environmental Research and Public Health, 18 (17), pp. 9402, 2021. @article{Teufel-Shone2021, title = {Development of a Culturally Anchored Qualitative Approach to Conduct and Analyze Focus Group Narratives Collected in Diné (Navajo) Communities to Understand the Impacts of the Gold King Mine Spill of 2015}, author = {Nicolette I Teufel-Shone and Carmenlita Chief and Jennifer R Richards and Rebecca J Clausen and Alfred Yazzie and Manley A Begay Jr and Nathan Lothrop and Janene Yazzie and Andria B Begay and Paloma I Beamer and Karletta Chief}, url = { https://doi.org/10.3390/ijerph18179402}, doi = {10.3390/ijerph18179402}, year = {2021}, date = {2021-09-06}, journal = {International Journal of Environmental Research and Public Health}, volume = {18}, number = {17}, pages = {9402}, abstract = {The Gold King Mine Spill (Spill) occurred in August 2015 upstream from Silverton, Colorado and released three million gallons of contaminated water into the Animas River, a tributary to the San Juan River that flows across the Navajo Nation. Using principles of community-engaged research, the Gold King Mine Spill Diné Exposure Project co-developed a culturally anchored approach to conduct focus groups and analyze narratives collected in three Diné (Navajo) communities along the San Juan River within 9 months of the Spill. Focus group questions were designed to document the socio-cultural impacts of the Spill. This paper: (1) outlines the partnerships and approvals; (2) describes focus group design, training, data collection and analysis; and (3) reflects on the use of a culturally anchored approach in Indigenous, specifically Diné-centered research. Diné social and cultural etiquette and concepts of relationality were used to adapt standard (non-Indigenous) qualitative methods. Findings describe community perceptions of short-term impacts of the disaster, as well as past and present injustices, communication related to the Spill, and concerns of persistent threats to Diné lifeways. The culturally anchored approach was critical in fostering trust with Diné participants and aligned with the candor of the discussions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Gold King Mine Spill (Spill) occurred in August 2015 upstream from Silverton, Colorado and released three million gallons of contaminated water into the Animas River, a tributary to the San Juan River that flows across the Navajo Nation. Using principles of community-engaged research, the Gold King Mine Spill Diné Exposure Project co-developed a culturally anchored approach to conduct focus groups and analyze narratives collected in three Diné (Navajo) communities along the San Juan River within 9 months of the Spill. Focus group questions were designed to document the socio-cultural impacts of the Spill. This paper: (1) outlines the partnerships and approvals; (2) describes focus group design, training, data collection and analysis; and (3) reflects on the use of a culturally anchored approach in Indigenous, specifically Diné-centered research. Diné social and cultural etiquette and concepts of relationality were used to adapt standard (non-Indigenous) qualitative methods. Findings describe community perceptions of short-term impacts of the disaster, as well as past and present injustices, communication related to the Spill, and concerns of persistent threats to Diné lifeways. The culturally anchored approach was critical in fostering trust with Diné participants and aligned with the candor of the discussions. |
Walters, Karina L; Johnson-Jennings, Michelle; Stroud, Sandra; Rasmus, Stacy; Charles, Billy; John, Simeon; Allen, James; Kaholokula, Joseph Keawe‘aimoku; Look, Mele A; de Silva, Māpuana; Lowe, John; Baldwin, Julie A; Lawrence, Gary; Brooks, Jada; Noonan, Curtis W; Belcourt, Annie; Quintana, Eugenia; Semmens, Erin O; Boulafentis, Johna Prevention Science, pp. 1-11, 2018. @article{Walters2018, title = {Growing from Our Roots: Strategies for Developing Culturally Grounded Health Promotion Interventions in American Indian, Alaska Native, and Native Hawaiian Communities}, author = {Karina L Walters and Michelle Johnson-Jennings and Sandra Stroud and Stacy Rasmus and Billy Charles and Simeon John and James Allen and Joseph Keawe‘aimoku Kaholokula and Mele A Look and Māpuana de Silva and John Lowe and Julie A Baldwin and Gary Lawrence and Jada Brooks and Curtis W Noonan and Annie Belcourt and Eugenia Quintana and Erin O Semmens and Johna Boulafentis}, url = {https://link.springer.com/article/10.1007%2Fs11121-018-0952-z}, year = {2018}, date = {2018-11-06}, journal = {Prevention Science}, pages = {1-11}, abstract = {Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts “from the ground up.” Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts “from the ground up.” Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions. |
2023 |
Castagno, Angelina E; Ingram, Jani C; Camplain, Ricky International Journal of Science Education, 45 (2), pp. 106-124, 2023. @article{Castagno2023b, title = {Opening up STEMM pathways among Indigenous people in the U.S.: what is the role of cultural, spiritual, and ethical conflicts in Indigenous people's STEMM educational and career decisions?}, author = {Angelina E. Castagno and Jani C. Ingram and Ricky Camplain}, url = {https://doi.org/10.1080/09500693.2022.2152293}, doi = {10.1080/09500693.2022.2152293}, year = {2023}, date = {2023-06-07}, journal = {International Journal of Science Education}, volume = {45}, number = {2}, pages = {106-124}, abstract = {This paper explores how the educational and career paths of Indigenous people in STEMM have been impacted by ethical, cultural, and/or spiritual issues. Based on a survey of over 400 Indigenous students and professionals in STEMM fields, plus over 30 follow-up interviews, we find that these issues cause some Indigenous people to leave particular fields altogether, others to avoid certain tasks within their chosen field, and still others to intentionally select particular fields. Ethical, cultural, and/or spiritual issues also are the reason some Indigenous people choose certain career paths, because of their desire to help their communities. By understanding these pathway impacts, STEMM leaders and educators can ensure more equitable pathways and can prepare, recruit, and retain Indigenous people in STEMM fields.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This paper explores how the educational and career paths of Indigenous people in STEMM have been impacted by ethical, cultural, and/or spiritual issues. Based on a survey of over 400 Indigenous students and professionals in STEMM fields, plus over 30 follow-up interviews, we find that these issues cause some Indigenous people to leave particular fields altogether, others to avoid certain tasks within their chosen field, and still others to intentionally select particular fields. Ethical, cultural, and/or spiritual issues also are the reason some Indigenous people choose certain career paths, because of their desire to help their communities. By understanding these pathway impacts, STEMM leaders and educators can ensure more equitable pathways and can prepare, recruit, and retain Indigenous people in STEMM fields. |
Baldwin, Julie; Alvarado, Angelica; Jarratt-Snider, Karen; Hunter, Amanda; Keene, Chesleigh; Castagno, Angelina; Ali-Joseph, Alisse; Roddy, Juliette; Jr, Manley Begay A; Joseph, Darold H; Goldtooth, Carol; Camplain, Carolyn; Smith, Melinda; McCue, Kelly; Begay, Andria B; Teufel-Shone, Nicolette I Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Multi-Method Study Journal Article Forthcoming JMIR Publications, Forthcoming. @article{Baldwin2023, title = {Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Multi-Method Study}, author = {Julie Baldwin and Angelica Alvarado and Karen Jarratt-Snider and Amanda Hunter and Chesleigh Keene and Angelina Castagno and Alisse Ali-Joseph and Juliette Roddy and Manley A. Begay Jr and Darold H. Joseph and Carol Goldtooth and Carolyn Camplain and Melinda Smith and Kelly McCue and Andria B. Begay and Nicolette I. Teufel-Shone}, url = {https://preprints.jmir.org/preprint/44727/accepted}, doi = {10.2196/44727}, year = {2023}, date = {2023-05-03}, journal = {JMIR Publications}, abstract = {Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. Clinical Trial: N/A}, keywords = {}, pubstate = {forthcoming}, tppubtype = {article} } Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. Clinical Trial: N/A |
Castagno, Angelina E; Camplain, Ricky; Ingram, Jani C; Blackhorse, Davona “It hurts to do work like that”: The nature and frequency of culturally based ethical barriers for Indigenous people in STEMM Journal Article Science Education, 107 (4), pp. 837-852, 2023. @article{Castagno2023bb, title = {“It hurts to do work like that”: The nature and frequency of culturally based ethical barriers for Indigenous people in STEMM}, author = {Angelina E. Castagno and Ricky Camplain and Jani C. Ingram and Davona Blackhorse}, doi = {10.1002/sce.21792}, year = {2023}, date = {2023-03-22}, journal = {Science Education}, volume = {107}, number = {4}, pages = {837-852}, abstract = {This article presents data from a survey of over 400 Indigenous students and professionals in STEMM (science, technology, engineering, mathematics, medicine) fields to answer the questions: What are the perceived ethical/cultural/spiritual conflicts Indigenous students and professionals in STEMM face? Is there an association between the cultural characteristics of Indigenous students and professionals and the ethical, cultural, and spiritual conflicts they face? Our findings indicate that many standard practices in STEMM fields do indeed conflict with taboos in various Indigenous communities and that these conflicts are more prevalent for people with higher cultural characteristics scores and for those in specific STEMM disciplines. Our research provides an empirical complement to the rich and growing body of literature on Indigenous science, epistemologies, and traditional ecological knowledge.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This article presents data from a survey of over 400 Indigenous students and professionals in STEMM (science, technology, engineering, mathematics, medicine) fields to answer the questions: What are the perceived ethical/cultural/spiritual conflicts Indigenous students and professionals in STEMM face? Is there an association between the cultural characteristics of Indigenous students and professionals and the ethical, cultural, and spiritual conflicts they face? Our findings indicate that many standard practices in STEMM fields do indeed conflict with taboos in various Indigenous communities and that these conflicts are more prevalent for people with higher cultural characteristics scores and for those in specific STEMM disciplines. Our research provides an empirical complement to the rich and growing body of literature on Indigenous science, epistemologies, and traditional ecological knowledge. |
Armin, Julie S; Williamson, Heather J; Rothers, Janet; Lee, Michele S; Baldwin, Julie A JMIR Research Protocols, 12 (e37801), 2023. @article{Armin2023, title = {An adapted cancer screening education program for Native American women with intellectual and developmental disabilities and their caregivers: Protocol for feasibility and acceptability testing}, author = {Julie S Armin and Heather J Williamson and Janet Rothers and Michele S Lee and Julie A Baldwin }, url = {https://www.researchprotocols.org/2023/1/e37801}, doi = {10.2196/37801}, year = {2023}, date = {2023-02-13}, journal = {JMIR Research Protocols}, volume = {12}, number = {e37801}, abstract = {Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC. |
Clausen, Rebecca J; Chief, Carmenlita; Teufel-Shone, Nicolette I; Begay, Manley A; Jr., Perry Charley H; Beamer, Paloma I; Anako, Nnenna; Chief, Karletta Diné-centered research reframes the Gold King Mine Spill: Understanding social and spiritual impacts across space and time Journal Article ScienceDirect, 97 , pp. 449-457, 2023. @article{Clausen2023, title = {Diné-centered research reframes the Gold King Mine Spill: Understanding social and spiritual impacts across space and time}, author = {Rebecca J. Clausen and Carmenlita Chief and Nicolette I. Teufel-Shone and Manley A. Begay and Perry H. Charley Jr. and Paloma I. Beamer and Nnenna Anako and Karletta Chief}, url = {https://www.sciencedirect.com/science/article/pii/S0743016722003217}, doi = {10.1016/j.jrurstud.2022.12.021}, year = {2023}, date = {2023-01-01}, journal = {ScienceDirect}, volume = {97}, pages = {449-457}, abstract = {This paper explores how Indigenous-led research reframes the impacts and response to environmental disasters in the context of acid mine spills in rural communities of the Southwest United States. The collaborative research project addressing the Gold King Mine Spill (GKMS) designed qualitative methodologies that center Indigenous worldviews and contribute to broader understandings of environmental justice. The research team, led by Diné scholars and community leaders, gathered qualitative responses from 123 adult participants in twelve focus groups from three rural communities on the Navajo Nation. The project incorporated fluent Diné speakers and cultural consultants to lead focus groups in a manner consistent with cultural worldviews. The analysis of the focus group data resulted in original findings that reframe previous understandings of environmental harm by broadening the boundaries to include: 1) social relations across time; 2) social relations across space; 3) spiritual relations; and 4) restoring balance. The findings allow for greater insight into the colonial context of disaster on rural and Indigenous lands and confronts colonial-rooted disasters through Indigenous-informed political action.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This paper explores how Indigenous-led research reframes the impacts and response to environmental disasters in the context of acid mine spills in rural communities of the Southwest United States. The collaborative research project addressing the Gold King Mine Spill (GKMS) designed qualitative methodologies that center Indigenous worldviews and contribute to broader understandings of environmental justice. The research team, led by Diné scholars and community leaders, gathered qualitative responses from 123 adult participants in twelve focus groups from three rural communities on the Navajo Nation. The project incorporated fluent Diné speakers and cultural consultants to lead focus groups in a manner consistent with cultural worldviews. The analysis of the focus group data resulted in original findings that reframe previous understandings of environmental harm by broadening the boundaries to include: 1) social relations across time; 2) social relations across space; 3) spiritual relations; and 4) restoring balance. The findings allow for greater insight into the colonial context of disaster on rural and Indigenous lands and confronts colonial-rooted disasters through Indigenous-informed political action. |
2022 |
Lopez, Albertina; Lynn, Jewlya; Peak, Geri; Petillo, Michael; Rios, Aisha; Shanker, Vidhya; Wolf, Susan Decolonization in Evaluation Week: Voices of Decolonizing Evaluation Needs YOUR Voice Journal Article AEA365, 2022. @article{Lopez2022, title = {Decolonization in Evaluation Week: Voices of Decolonizing Evaluation Needs YOUR Voice }, author = {Albertina Lopez and Jewlya Lynn and Geri Peak and Michael Petillo and Aisha Rios and Vidhya Shanker and Susan Wolf}, url = {https://aea365.org/blog/decolonization-in-evaluation-week-voices-of-decolonizing-evaluation-needs-your-voice-by-albertina-lopez-jewlya-lynn-geri-peak-michael-petillo-aisha-rios-vidhya-shanker-susan-wolf/}, year = {2022}, date = {2022-10-31}, journal = {AEA365}, abstract = {Greetings good people, we are Albertina Lopez, Jewlya Lynn, Geri Peak, Michael Petillo, Aisha Rios, Vidhya Shanker & Susan Wolfe, the team of voices behind AEA session #5365, Voices of Decolonizing Evaluation: Moving from Discussion to Action. Following on our blogs from last year, we are expanding the ongoing discourse on evaluation’s role in envisioning and co-creating a just society by opening space for more voices so that we can advance our understanding together—stimulating change within and among ourselves, and facilitating collective action.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Greetings good people, we are Albertina Lopez, Jewlya Lynn, Geri Peak, Michael Petillo, Aisha Rios, Vidhya Shanker & Susan Wolfe, the team of voices behind AEA session #5365, Voices of Decolonizing Evaluation: Moving from Discussion to Action. Following on our blogs from last year, we are expanding the ongoing discourse on evaluation’s role in envisioning and co-creating a just society by opening space for more voices so that we can advance our understanding together—stimulating change within and among ourselves, and facilitating collective action. |
Carroll, Stephanie Russo; Suina, Michele; Jäger, Mary Beth; Black, Jessica; Cornell, Stephen; Gonzales, Angela A; Jorgensen, Miriam; Palmanteer-Holder, Nancy Lynn; Rosa, Jennifer De La S; Teufel-Shone, Nicolette I Reclaiming Indigenous Health in the US: Moving Beyond the Social Determinants of Health Journal Article Int. J. Environ. Res. Public Health, 19 (7495), 2022. @article{Carroll2022, title = {Reclaiming Indigenous Health in the US: Moving Beyond the Social Determinants of Health}, author = {Stephanie Russo Carroll and Michele Suina and Mary Beth Jäger and Jessica Black and Stephen Cornell and Angela A. Gonzales and Miriam Jorgensen and Nancy Lynn Palmanteer-Holder and Jennifer S. De La Rosa and Nicolette I. Teufel-Shone }, url = {https://doi.org/10.3390/ijerph19127495}, doi = {10.3390/ijerph19127495}, year = {2022}, date = {2022-06-18}, journal = {Int. J. Environ. Res. Public Health}, volume = {19}, number = {7495}, abstract = {The lack of literature on Indigenous conceptions of health and the social determinants of health (SDH) for US Indigenous communities limits available information for Indigenous nations as they set policy and allocate resources to improve the health of their citizens. In 2015, eight scholars from tribal communities and mainstream educational institutions convened to examine: the limitations of applying the World Health Organization’s (WHO) SDH framework in Indigenous communities; Indigenizing the WHO SDH framework; and Indigenous conceptions of a healthy community. Participants critiqued the assumptions within the WHO SDH framework that did not cohere with Indigenous knowledges and epistemologies and created a schematic for conceptualizing health and categorizing its determinants. As Indigenous nations pursue a policy role in health and seek to improve the health and wellness of their nations’ citizens, definitions of Indigenous health and well-being should be community-driven and Indigenous-nation based. Policies and practices for Indigenous nations and Indigenous communities should reflect and arise from sovereignty and a comprehensive understanding of the nations and communities’ conceptions of health and its determinants beyond the SDH.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The lack of literature on Indigenous conceptions of health and the social determinants of health (SDH) for US Indigenous communities limits available information for Indigenous nations as they set policy and allocate resources to improve the health of their citizens. In 2015, eight scholars from tribal communities and mainstream educational institutions convened to examine: the limitations of applying the World Health Organization’s (WHO) SDH framework in Indigenous communities; Indigenizing the WHO SDH framework; and Indigenous conceptions of a healthy community. Participants critiqued the assumptions within the WHO SDH framework that did not cohere with Indigenous knowledges and epistemologies and created a schematic for conceptualizing health and categorizing its determinants. As Indigenous nations pursue a policy role in health and seek to improve the health and wellness of their nations’ citizens, definitions of Indigenous health and well-being should be community-driven and Indigenous-nation based. Policies and practices for Indigenous nations and Indigenous communities should reflect and arise from sovereignty and a comprehensive understanding of the nations and communities’ conceptions of health and its determinants beyond the SDH. |
Ignacio, Matt; Oesterle, Sabrina; Mercado, Micaela; Carver, Ann; Lopez, Gilberto; Wolfersteig, Wendy; Ayers, Stephanie; Ki, Seol; Hamm, Kathryn; Parthasarathy, Sairam; Berryhill, Adam; Evans, Linnea; Sabo, Samantha; Doubeni, Chyke Nature Public Health Emergency Collection, pp. 1-13, 2022. @article{Ignacio2022, title = {Narratives from African American/Black, American Indian/Alaska Native, and Hispanic/Latinx community members in Arizona to enhance COVID-19 vaccine and vaccination uptake}, author = {Matt Ignacio and Sabrina Oesterle and Micaela Mercado and Ann Carver and Gilberto Lopez and Wendy Wolfersteig and Stephanie Ayers and Seol Ki and Kathryn Hamm and Sairam Parthasarathy and Adam Berryhill and Linnea Evans and Samantha Sabo and Chyke Doubeni}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8942760/}, doi = {10.1007/s10865-022-00300-x}, year = {2022}, date = {2022-03-24}, journal = {Nature Public Health Emergency Collection}, pages = {1-13}, abstract = {The state of Arizona has experienced one of the highest novel coronavirus disease 2019 (COVID-19) positivity test rates in the United States with disproportionally higher case rates and deaths among African-American/Black (AA/B), American Indian/Alaska Native (Native), and Hispanic/Latinx (HLX) individuals. To reduce disparities and promote health equity, researchers from Arizona State University, Mayo Clinic in Arizona, Northern Arizona University, and the University of Arizona formed a partnership with community organizations to conduct state-wide community-engaged research and outreach. This report describes results from 34 virtually-held focus groups and supplemental survey responses conducted with 153 AA/B, HLX, and Native community members across Arizona to understand factors associated with COVID-19 vaccine hesitancy and confidence. Focus groups revealed common themes of vaccine hesitancy stemming from past experiences of research abuses (e.g., Tuskegee syphilis experiment) as well as group-specific factors. Across all focus groups, participants strongly recommended the use of brief, narrative vaccination testimonials from local officials, community members, and faith leaders to increase trust in science, vaccine confidence and to promote uptake.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The state of Arizona has experienced one of the highest novel coronavirus disease 2019 (COVID-19) positivity test rates in the United States with disproportionally higher case rates and deaths among African-American/Black (AA/B), American Indian/Alaska Native (Native), and Hispanic/Latinx (HLX) individuals. To reduce disparities and promote health equity, researchers from Arizona State University, Mayo Clinic in Arizona, Northern Arizona University, and the University of Arizona formed a partnership with community organizations to conduct state-wide community-engaged research and outreach. This report describes results from 34 virtually-held focus groups and supplemental survey responses conducted with 153 AA/B, HLX, and Native community members across Arizona to understand factors associated with COVID-19 vaccine hesitancy and confidence. Focus groups revealed common themes of vaccine hesitancy stemming from past experiences of research abuses (e.g., Tuskegee syphilis experiment) as well as group-specific factors. Across all focus groups, participants strongly recommended the use of brief, narrative vaccination testimonials from local officials, community members, and faith leaders to increase trust in science, vaccine confidence and to promote uptake. |
2021 |
Teufel-Shone, Nicolette I; Chief, Carmenlita; Richards, Jennifer R; Clausen, Rebecca J; Yazzie, Alfred; Jr, Manley Begay A; Lothrop, Nathan; Yazzie, Janene; Begay, Andria B; Beamer, Paloma I; Chief, Karletta International Journal of Environmental Research and Public Health, 18 (17), pp. 9402, 2021. @article{Teufel-Shone2021, title = {Development of a Culturally Anchored Qualitative Approach to Conduct and Analyze Focus Group Narratives Collected in Diné (Navajo) Communities to Understand the Impacts of the Gold King Mine Spill of 2015}, author = {Nicolette I Teufel-Shone and Carmenlita Chief and Jennifer R Richards and Rebecca J Clausen and Alfred Yazzie and Manley A Begay Jr and Nathan Lothrop and Janene Yazzie and Andria B Begay and Paloma I Beamer and Karletta Chief}, url = { https://doi.org/10.3390/ijerph18179402}, doi = {10.3390/ijerph18179402}, year = {2021}, date = {2021-09-06}, journal = {International Journal of Environmental Research and Public Health}, volume = {18}, number = {17}, pages = {9402}, abstract = {The Gold King Mine Spill (Spill) occurred in August 2015 upstream from Silverton, Colorado and released three million gallons of contaminated water into the Animas River, a tributary to the San Juan River that flows across the Navajo Nation. Using principles of community-engaged research, the Gold King Mine Spill Diné Exposure Project co-developed a culturally anchored approach to conduct focus groups and analyze narratives collected in three Diné (Navajo) communities along the San Juan River within 9 months of the Spill. Focus group questions were designed to document the socio-cultural impacts of the Spill. This paper: (1) outlines the partnerships and approvals; (2) describes focus group design, training, data collection and analysis; and (3) reflects on the use of a culturally anchored approach in Indigenous, specifically Diné-centered research. Diné social and cultural etiquette and concepts of relationality were used to adapt standard (non-Indigenous) qualitative methods. Findings describe community perceptions of short-term impacts of the disaster, as well as past and present injustices, communication related to the Spill, and concerns of persistent threats to Diné lifeways. The culturally anchored approach was critical in fostering trust with Diné participants and aligned with the candor of the discussions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Gold King Mine Spill (Spill) occurred in August 2015 upstream from Silverton, Colorado and released three million gallons of contaminated water into the Animas River, a tributary to the San Juan River that flows across the Navajo Nation. Using principles of community-engaged research, the Gold King Mine Spill Diné Exposure Project co-developed a culturally anchored approach to conduct focus groups and analyze narratives collected in three Diné (Navajo) communities along the San Juan River within 9 months of the Spill. Focus group questions were designed to document the socio-cultural impacts of the Spill. This paper: (1) outlines the partnerships and approvals; (2) describes focus group design, training, data collection and analysis; and (3) reflects on the use of a culturally anchored approach in Indigenous, specifically Diné-centered research. Diné social and cultural etiquette and concepts of relationality were used to adapt standard (non-Indigenous) qualitative methods. Findings describe community perceptions of short-term impacts of the disaster, as well as past and present injustices, communication related to the Spill, and concerns of persistent threats to Diné lifeways. The culturally anchored approach was critical in fostering trust with Diné participants and aligned with the candor of the discussions. |
2018 |
Walters, Karina L; Johnson-Jennings, Michelle; Stroud, Sandra; Rasmus, Stacy; Charles, Billy; John, Simeon; Allen, James; Kaholokula, Joseph Keawe‘aimoku; Look, Mele A; de Silva, Māpuana; Lowe, John; Baldwin, Julie A; Lawrence, Gary; Brooks, Jada; Noonan, Curtis W; Belcourt, Annie; Quintana, Eugenia; Semmens, Erin O; Boulafentis, Johna Prevention Science, pp. 1-11, 2018. @article{Walters2018, title = {Growing from Our Roots: Strategies for Developing Culturally Grounded Health Promotion Interventions in American Indian, Alaska Native, and Native Hawaiian Communities}, author = {Karina L Walters and Michelle Johnson-Jennings and Sandra Stroud and Stacy Rasmus and Billy Charles and Simeon John and James Allen and Joseph Keawe‘aimoku Kaholokula and Mele A Look and Māpuana de Silva and John Lowe and Julie A Baldwin and Gary Lawrence and Jada Brooks and Curtis W Noonan and Annie Belcourt and Eugenia Quintana and Erin O Semmens and Johna Boulafentis}, url = {https://link.springer.com/article/10.1007%2Fs11121-018-0952-z}, year = {2018}, date = {2018-11-06}, journal = {Prevention Science}, pages = {1-11}, abstract = {Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts “from the ground up.” Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts “from the ground up.” Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions. |