NAU publications by CHER
Faculty & staff publications
NAU faculty and staff have the opportunity to publish their findings and knowledge as authors. CHER has many researchers that have been cited multiple times in major publications for their great work. The Center for Health Equity Research has accumulated all faculty publications into one, easy to navigate database.
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Tomasa, Lynne; Williamson, Heather J Springer, 2021, ISBN: 978-3-030-81276-8. @book{Tomasa2022, title = {Belonging and inclusion during the aging process for individuals with intellectual and developmental disabilities}, author = {Lynne Tomasa and Heather J Williamson}, url = {https://link.springer.com/chapter/10.1007/978-3-030-81277-5_8}, doi = {10.1007/978-3-030-81277-5_8}, isbn = {978-3-030-81276-8}, year = {2021}, date = {2021-11-28}, booktitle = {Engaging communities to foster belonging for individuals with intellectual and developmental disabilities}, publisher = {Springer}, abstract = {Future planning is a person-family-centered process that involves ongoing communication and an understanding of the person with a disability, their family, and the supports needed to have a meaningful quality of life. Individual characteristics, interpersonal relationships, family roles, service systems, policies, and societal factors can impact planning for the future. This chapter highlights the importance of promoting future planning and how to support individuals with an intellectual and developmental disability (IDD) and their families. The chapter begins with an overview of the issues faced by a society that is aging followed by a review of research regarding planning domains, role of family members, relationships, and planning strategies. The chapter also uses four family stories to illustrate how a planning tool can be used to facilitate communication about their futures. Lastly, future planning is discussed using the ten dimensions of Carter’s (2016) belonging framework as well as how resilience can be enhanced through the future planning process. The chapter concludes with discussion questions, tools, and resources for individuals with IDD and their families which can support future planning.}, keywords = {}, pubstate = {published}, tppubtype = {book} } Future planning is a person-family-centered process that involves ongoing communication and an understanding of the person with a disability, their family, and the supports needed to have a meaningful quality of life. Individual characteristics, interpersonal relationships, family roles, service systems, policies, and societal factors can impact planning for the future. This chapter highlights the importance of promoting future planning and how to support individuals with an intellectual and developmental disability (IDD) and their families. The chapter begins with an overview of the issues faced by a society that is aging followed by a review of research regarding planning domains, role of family members, relationships, and planning strategies. The chapter also uses four family stories to illustrate how a planning tool can be used to facilitate communication about their futures. Lastly, future planning is discussed using the ten dimensions of Carter’s (2016) belonging framework as well as how resilience can be enhanced through the future planning process. The chapter concludes with discussion questions, tools, and resources for individuals with IDD and their families which can support future planning. |
Camplain, Ricky; Pinn, Travis A; Becenti, Lyle; Williamson, Heather J; Pro, George; Luna, Crystal; Bret, James Patterns of Physical Activity Among Women Incarcerated in Jail Journal Article Journal of Correctional Health Care, 2021. @article{Camplain2021c, title = {Patterns of Physical Activity Among Women Incarcerated in Jail}, author = {Ricky Camplain and Travis A. Pinn and Lyle Becenti and Heather J. Williamson and George Pro and Crystal Luna and James Bret}, url = {http://doi.org/10.1089/jchc.20.05.0041}, doi = {10.1089/jchc.20.05.0041}, year = {2021}, date = {2021-11-26}, journal = {Journal of Correctional Health Care}, abstract = {The physical and mental health benefits of physical activity in all populations are well established. In 2019, incarcerated women at a Southwest county jail were observed during "recreation time," a time when physical activity is encouraged, to identify the proportion of women who participated in recreation time and their physical activity levels. During observed recreation times, 28% of women attended; 56% were sedentary, 4% engaged in vigorous physical activity, and approximately 40% walked or performed similarly moderate physical activity. Future research should identify barriers to being physically active while incarcerated, leading to targeted interventions to promote physical activity.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The physical and mental health benefits of physical activity in all populations are well established. In 2019, incarcerated women at a Southwest county jail were observed during "recreation time," a time when physical activity is encouraged, to identify the proportion of women who participated in recreation time and their physical activity levels. During observed recreation times, 28% of women attended; 56% were sedentary, 4% engaged in vigorous physical activity, and approximately 40% walked or performed similarly moderate physical activity. Future research should identify barriers to being physically active while incarcerated, leading to targeted interventions to promote physical activity. |
Fisher, Kim W; Williamson, Heather J; Guerra, Nichole; Kupferman, Scott Digital Citizenship: Technology Access and Use for Youth With and Without Intellectual and Developmental Disabilities Journal Article Inclusion, 9 (4), pp. 263–275, 2021. @article{Fisher2021, title = {Digital Citizenship: Technology Access and Use for Youth With and Without Intellectual and Developmental Disabilities}, author = {Kim W. Fisher and Heather J. Williamson and Nichole Guerra and Scott Kupferman}, url = {https://doi.org/10.1352/2326-6988-9.4.263}, doi = {10.1352/2326-6988-9.4.263}, year = {2021}, date = {2021-11-23}, journal = {Inclusion}, volume = {9}, number = {4}, pages = {263–275}, abstract = {Technology is integral to the lives of youth who, as digital citizens, use technology to participate in social and civic action to improve their communities. Using a digital citizenship framework and National Longitudinal Transition Study of 2012 data, we explored technology access and use between youth with and without intellectual and developmental disabilities (IDD). We found youth with IDD have less access and less participation across four digital citizenship elements putting them at greater risk for digital social isolation and community disengagement. Given the COVID-19 pandemic, which has thrust employment, school, health, and social lives to online spaces, we situate our findings on digital access, opportunity, and support and call for individual and systems-level investment in digital citizenship to support full participation.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Technology is integral to the lives of youth who, as digital citizens, use technology to participate in social and civic action to improve their communities. Using a digital citizenship framework and National Longitudinal Transition Study of 2012 data, we explored technology access and use between youth with and without intellectual and developmental disabilities (IDD). We found youth with IDD have less access and less participation across four digital citizenship elements putting them at greater risk for digital social isolation and community disengagement. Given the COVID-19 pandemic, which has thrust employment, school, health, and social lives to online spaces, we situate our findings on digital access, opportunity, and support and call for individual and systems-level investment in digital citizenship to support full participation. |
Behar-Horenstein, Linda S; Suiter, Sarah; Snyder, Frederick; Laurila, Kelly Consensus Building to Inform Common Evaluation Metrics for the Comprehensive Partnerships to Advance Cancer Health Equity (CPACHE) Program Journal Article Journal of Cancer Education, 2021. @article{Behar-Horenstein2021, title = {Consensus Building to Inform Common Evaluation Metrics for the Comprehensive Partnerships to Advance Cancer Health Equity (CPACHE) Program}, author = {Linda S. Behar-Horenstein and Sarah Suiter and Frederick Snyder and Kelly Laurila}, url = {https://doi.org/10.1007/s13187-021-02103-1}, doi = {10.1007/s13187-021-02103-1}, year = {2021}, date = {2021-11-06}, journal = {Journal of Cancer Education}, abstract = {Common measures facilitate the standardization of assessment practices. These types of measures are needed to develop instruments that can be used to assess the overall effectiveness of the U54 Comprehensive Partnerships to Advance Cancer Health Equity (CPACHE) funding mechanism. Developing common measures requires a multi-phase process. Stakeholders used the nominal group technique, a consensus development process, and the Grid-Enabled Measures (GEM) platform to identify evaluation constructs and measures of those constructs. Use of these instruments will ensure the implementation of standardized data elements, facilitate data integration, enhance the quality of evaluation reporting to the National Cancer Institute, foster comparative analyses across centers, and support the national assessment of the CPACHE program.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Common measures facilitate the standardization of assessment practices. These types of measures are needed to develop instruments that can be used to assess the overall effectiveness of the U54 Comprehensive Partnerships to Advance Cancer Health Equity (CPACHE) funding mechanism. Developing common measures requires a multi-phase process. Stakeholders used the nominal group technique, a consensus development process, and the Grid-Enabled Measures (GEM) platform to identify evaluation constructs and measures of those constructs. Use of these instruments will ensure the implementation of standardized data elements, facilitate data integration, enhance the quality of evaluation reporting to the National Cancer Institute, foster comparative analyses across centers, and support the national assessment of the CPACHE program. |
Tutt, Marissa; Becenti, Lyle; Tallis, Kristen; Teufel-Shone, Nicolette Intertribal Collaboration and Health: A Literature Review Journal Article Turtle Island Journal of Indigenous Health , 1 (2), pp. 116-123, 2021. @article{Tutt2021, title = {Intertribal Collaboration and Health: A Literature Review}, author = {Marissa Tutt and Lyle Becenti and Kristen Tallis and Nicolette Teufel-Shone}, url = {https://jps.library.utoronto.ca/index.php/tijih/issue/view/2514/487}, year = {2021}, date = {2021-11-01}, journal = {Turtle Island Journal of Indigenous Health }, volume = {1}, number = {2}, pages = {116-123}, abstract = {In the United States, American Indians and Alaska Natives (AIAN) are rebuilding their nations through assertion of sovereignty, standards of governance, cultural frameworks, strategic orientation, and effective leadership. The approach emphasizes tribal self-determination in managing nation affairs and reducing reliance on state and federal assistance. Through nation-building, tribal nations can improve their citizens’ health and well-being while empowering local capacity and cultural pride. Intertribal collaboration can be an effective strategy to leverage resources and create a coalition for support and knowledge exchange; however, the research documenting practices, and outcomes of tribal health management that uses intertribal collaboration is limited. This systematic review investigates health-focused collaborations among the tribal nations in North America. Peer-reviewed articles that included at least two federally recognized tribes, de-scribed AIAN driven initiatives, implemented a health management plan, collaborated between Indigenous leaders, and goals of social, behavioral, mental, and physical health outcomes were examined. This search was limited to articles published between January 1, 1970 to November 30, 2019. The PRISMA systematic review process was used. Twenty-seven articles were screened, and three articles were eligible for thematic review. The articles highlighted the importance of utilizing an Indigenous framework to facilitate program management and collaboration, recognition of cultural differences, and sovereignty rights. Characteristics that contributed to the establishment and strengthening of intertribal collaboration were: (1) adapt new proposals, (2) respectful recognition of sovereignty, and (3) transparent and honest communication. The small sample size indicated most Indigenous health programs are not “AIAN-driven”, limiting the foundation for building evidence-based frameworks.}, keywords = {}, pubstate = {published}, tppubtype = {article} } In the United States, American Indians and Alaska Natives (AIAN) are rebuilding their nations through assertion of sovereignty, standards of governance, cultural frameworks, strategic orientation, and effective leadership. The approach emphasizes tribal self-determination in managing nation affairs and reducing reliance on state and federal assistance. Through nation-building, tribal nations can improve their citizens’ health and well-being while empowering local capacity and cultural pride. Intertribal collaboration can be an effective strategy to leverage resources and create a coalition for support and knowledge exchange; however, the research documenting practices, and outcomes of tribal health management that uses intertribal collaboration is limited. This systematic review investigates health-focused collaborations among the tribal nations in North America. Peer-reviewed articles that included at least two federally recognized tribes, de-scribed AIAN driven initiatives, implemented a health management plan, collaborated between Indigenous leaders, and goals of social, behavioral, mental, and physical health outcomes were examined. This search was limited to articles published between January 1, 1970 to November 30, 2019. The PRISMA systematic review process was used. Twenty-seven articles were screened, and three articles were eligible for thematic review. The articles highlighted the importance of utilizing an Indigenous framework to facilitate program management and collaboration, recognition of cultural differences, and sovereignty rights. Characteristics that contributed to the establishment and strengthening of intertribal collaboration were: (1) adapt new proposals, (2) respectful recognition of sovereignty, and (3) transparent and honest communication. The small sample size indicated most Indigenous health programs are not “AIAN-driven”, limiting the foundation for building evidence-based frameworks. |
Cooper, Dan M; Zulu, Michael Z; Jankeel, Allen; Ibraim, Izabela Coimbra; Ardo, Jessica; Kasper, Kirsten; Stephens, Diana; Meyer, Andria; Stehli, Annamarie; Condon, Curt; Londoño, Mary E; Schreiber, Casey M; Lopez, Nanette V; Camplain, Ricky L; Weiss, Michael; Golden, Charles; Radom-Aizik, Shlomit; Boden-Albala, Bernadette; Chau, Clayton; Messaoudi, Ilhem; Ulloa, Erlinda R SARS-CoV-2 Acquisition and Immune Pathogenesis Among School-Aged Learners in Four K-12 Schools Journal Article Pediatric Research, 90 , pp. 1073-2080, 2021. @article{Cooper2021, title = {SARS-CoV-2 Acquisition and Immune Pathogenesis Among School-Aged Learners in Four K-12 Schools}, author = {Dan M Cooper and Michael Z Zulu and Allen Jankeel and Izabela Coimbra Ibraim and Jessica Ardo and Kirsten Kasper and Diana Stephens and Andria Meyer and Annamarie Stehli and Curt Condon and Mary E Londoño and Casey M Schreiber and Nanette V Lopez and Ricky L Camplain and Michael Weiss and Charles Golden and Shlomit Radom-Aizik and Bernadette Boden-Albala and Clayton Chau and Ilhem Messaoudi and Erlinda R. Ulloa}, url = {https://doi.org/10.1101/2021.03.20.21254035}, doi = {10.1038/s41390-021-01660-x}, year = {2021}, date = {2021-11-01}, journal = {Pediatric Research}, volume = {90}, pages = {1073-2080}, abstract = {Understanding SARS-CoV-2 infection in children is necessary to reopen schools safely. We measured SARS-CoV-2 infection in 320 learners [10.5 ± 2.1 (sd); 7–17 y.o.] at four diverse schools with either remote or on-site learning. Schools A and B served low-income Hispanic learners; school C served many special-needs learners, and all provided predominantly remote instruction. School D served middle- and upper-income learners, with predominantly on-site instruction. Testing occurred in the fall (2020), and 6–8 weeks later during the fall-winter surge (notable for a tenfold increase in COVID-19 cases). Immune responses and mitigation fidelity were also measured. We found SARS-CoV-2 infections in 17 learners only during the surge. School A (97% remote learners) had the highest infection (10/70, 14.3%, p < 0.01) and IgG positivity rates (13/66, 19.7%). School D (93% on-site learners) had the lowest infection and IgG positivity rates (1/63, 1.6%). Mitigation compliance [physical distancing (mean 87.4%) and face-covering (91.3%)] was remarkably high at all schools. Documented SARS-CoV-2-infected learners had neutralizing antibodies (94.7%), robust IFN-γ + T cell responses, and reduced monocytes. Schools can implement successful mitigation strategies across a wide range of student diversity. Despite asymptomatic to mild SARS-CoV-2 infection, children generate robust humoral and cellular immune responses.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Understanding SARS-CoV-2 infection in children is necessary to reopen schools safely. We measured SARS-CoV-2 infection in 320 learners [10.5 ± 2.1 (sd); 7–17 y.o.] at four diverse schools with either remote or on-site learning. Schools A and B served low-income Hispanic learners; school C served many special-needs learners, and all provided predominantly remote instruction. School D served middle- and upper-income learners, with predominantly on-site instruction. Testing occurred in the fall (2020), and 6–8 weeks later during the fall-winter surge (notable for a tenfold increase in COVID-19 cases). Immune responses and mitigation fidelity were also measured. We found SARS-CoV-2 infections in 17 learners only during the surge. School A (97% remote learners) had the highest infection (10/70, 14.3%, p < 0.01) and IgG positivity rates (13/66, 19.7%). School D (93% on-site learners) had the lowest infection and IgG positivity rates (1/63, 1.6%). Mitigation compliance [physical distancing (mean 87.4%) and face-covering (91.3%)] was remarkably high at all schools. Documented SARS-CoV-2-infected learners had neutralizing antibodies (94.7%), robust IFN-γ + T cell responses, and reduced monocytes. Schools can implement successful mitigation strategies across a wide range of student diversity. Despite asymptomatic to mild SARS-CoV-2 infection, children generate robust humoral and cellular immune responses. |
Kumar, Amit; Roy, Indrakshi; Bosch, Pamela; Fehnel, Corey; Garnica, Nicholas; Cook, Jon; Warren, Meghan; Karmarkar, Amol Medicare Claim–Based National Institutes of Health Stroke Scale to Predict 30-Day Mortality and Hospital Readmission Journal Article Journal of General Internal Medicine, 2021. @article{Kumar2021, title = {Medicare Claim–Based National Institutes of Health Stroke Scale to Predict 30-Day Mortality and Hospital Readmission}, author = {Amit Kumar and Indrakshi Roy and Pamela Bosch and Corey Fehnel and Nicholas Garnica and Jon Cook and Meghan Warren and Amol Karmarkar}, url = {https://doi.org/10.1007/s11606-021-07162-0}, doi = {10.1007/s11606-021-07162-0}, year = {2021}, date = {2021-10-26}, journal = {Journal of General Internal Medicine}, abstract = {The Centers for Medicare and Medicaid Services (CMS) penalizes hospitals for higher than expected 30-day mortality rates using methods without accounting for condition severity risk adjustment. For patients with stroke, CMS claims did not quantify stroke severity until recently, when the National Institutes of Health Stroke Scale (NIHSS) reporting began. Examine the predictive ability of claim-based NIHSS to predict 30-day mortality and 30-day hospital readmission in patients with ischemic stroke.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Centers for Medicare and Medicaid Services (CMS) penalizes hospitals for higher than expected 30-day mortality rates using methods without accounting for condition severity risk adjustment. For patients with stroke, CMS claims did not quantify stroke severity until recently, when the National Institutes of Health Stroke Scale (NIHSS) reporting began. Examine the predictive ability of claim-based NIHSS to predict 30-day mortality and 30-day hospital readmission in patients with ischemic stroke. |
Rivera-Hernandez, Maricruz; Kumar, Amit; Roy, Indrakshi; Fashaw-Walters, Shekinah; Baldwin, Julie A Quality of Care and Outcomes Among a Diverse Group of Long-Term Care Residents With Alzheimer’s Disease and Related Dementias Journal Article Journal of Aging and Health, 2021. @article{Rivera-Hernandez2021, title = {Quality of Care and Outcomes Among a Diverse Group of Long-Term Care Residents With Alzheimer’s Disease and Related Dementias}, author = {Maricruz Rivera-Hernandez and Amit Kumar and Indrakshi Roy and Shekinah Fashaw-Walters and Julie A. Baldwin}, url = {https://doi.org/10.1177/08982643211043319 }, doi = {10.1177/08982643211043319}, year = {2021}, date = {2021-10-11}, journal = {Journal of Aging and Health}, abstract = {This article assessed whether disparities among ADRD Medicare beneficiaries existed in five different long-stay quality measures. Methods: We linked individual-level data and facility-level characteristics. The main quality outcomes included whether residents: 1) were assessed/appropriately given the seasonal influenza vaccine; 2) received an antipsychotic medication; 3) experienced one/more falls with major injury; 4) were physically restrained; and 5) lost too much weight. Results: In 2016, there were 1,005,781 Medicare Advantage and fee-for-service long-term residents. About 78% were White, 13% Black, 2% Asian/Pacific Islander (Asian/PI), 6% Hispanic, and 0.4% American Indian/Alaska Native (AI/AN). Whites reported higher use of antipsychotic medications along with Hispanics and AI/AN (28%, 28%, and 27%, respectively). Similarly, Whites and AIs/ANs reported having one/more falls compared to the other groups (9% and 8%, respectively). Discussion: Efforts to understand disparities in access and quality of care among American Indians/Alaska Natives are needed, especially post-pandemic.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This article assessed whether disparities among ADRD Medicare beneficiaries existed in five different long-stay quality measures. Methods: We linked individual-level data and facility-level characteristics. The main quality outcomes included whether residents: 1) were assessed/appropriately given the seasonal influenza vaccine; 2) received an antipsychotic medication; 3) experienced one/more falls with major injury; 4) were physically restrained; and 5) lost too much weight. Results: In 2016, there were 1,005,781 Medicare Advantage and fee-for-service long-term residents. About 78% were White, 13% Black, 2% Asian/Pacific Islander (Asian/PI), 6% Hispanic, and 0.4% American Indian/Alaska Native (AI/AN). Whites reported higher use of antipsychotic medications along with Hispanics and AI/AN (28%, 28%, and 27%, respectively). Similarly, Whites and AIs/ANs reported having one/more falls compared to the other groups (9% and 8%, respectively). Discussion: Efforts to understand disparities in access and quality of care among American Indians/Alaska Natives are needed, especially post-pandemic. |
Pollitt, Amanda M; Roberts, Tangela S Internalized Binegativity, LGBQ + Community Involvement, and Definitions of Bisexuality Journal Article Journal of Bisexuality, 21 (3), pp. 357-379, 2021. @article{Pollitt2021, title = {Internalized Binegativity, LGBQ + Community Involvement, and Definitions of Bisexuality}, author = {Amanda M. Pollitt and Tangela S. Roberts}, url = {https://doi.org/10.1080/15299716.2021.1984363}, doi = {10.1080/15299716.2021.1984363}, year = {2021}, date = {2021-10-06}, journal = {Journal of Bisexuality}, volume = {21}, number = {3}, pages = {357-379}, abstract = {Bisexual people can internalize stigma from both heterosexual and gay/lesbian communities, which often occurs in the form of monosexism, the belief that people should only be attracted to one gender. Although community involvement is protective for lesbian, gay, bisexual, and queer+ (LGBQ+) people, bisexual people may benefit more from bisexual-specific communities than LGBQ + communities because of monosexism. Further, how bisexual people define their identity may be related to internalized binegativity, especially given the historical invisibility of bisexuality in mainstream media and recent debates about the definition of bisexuality within LGBQ + communities. We examined LGBQ + and bisexual-specific community involvement, definitions of bisexuality, and internalized binegativity among an online sample of 816 bisexual adults. Multivariate regression analyses showed that those with spectrum definitions, which acknowledged a nuanced understanding of sex, gender, and sexuality, reported lower internalized binegativity than those with binary definitions, which described sexuality as consistent with mainstream norms. Involvement in LGBQ + communities, but not bisexual communities, was associated with lower internalized binegativity. There was no interaction between type of definition and type of community involvement. Our results suggest that broad community involvement may be protective for internalized binegativity, but findings should be considered in light of a lack of well-funded, local bisexual communities. The current study adds to a growing literature on sexual minority stressors among bisexual people, a population that continues to be understudied.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Bisexual people can internalize stigma from both heterosexual and gay/lesbian communities, which often occurs in the form of monosexism, the belief that people should only be attracted to one gender. Although community involvement is protective for lesbian, gay, bisexual, and queer+ (LGBQ+) people, bisexual people may benefit more from bisexual-specific communities than LGBQ + communities because of monosexism. Further, how bisexual people define their identity may be related to internalized binegativity, especially given the historical invisibility of bisexuality in mainstream media and recent debates about the definition of bisexuality within LGBQ + communities. We examined LGBQ + and bisexual-specific community involvement, definitions of bisexuality, and internalized binegativity among an online sample of 816 bisexual adults. Multivariate regression analyses showed that those with spectrum definitions, which acknowledged a nuanced understanding of sex, gender, and sexuality, reported lower internalized binegativity than those with binary definitions, which described sexuality as consistent with mainstream norms. Involvement in LGBQ + communities, but not bisexual communities, was associated with lower internalized binegativity. There was no interaction between type of definition and type of community involvement. Our results suggest that broad community involvement may be protective for internalized binegativity, but findings should be considered in light of a lack of well-funded, local bisexual communities. The current study adds to a growing literature on sexual minority stressors among bisexual people, a population that continues to be understudied. |
Lee, Michele S; Peart, Jillian R; Armin, Julie S; Williamson, Heather J Journal of Health Disparities Research and Practice, 14 (3), 2021. @article{Lee2021c, title = {A Scoping Review of Barriers and Facilitators to Pap Testing in Women with Disabilities and Serious Mental Illnesses: Thirty Years After the Americans with Disabilities Act}, author = {Michele S. Lee and Jillian R. Peart and Julie S. Armin and Heather J. Williamson}, url = {https://digitalscholarship.unlv.edu/jhdrp/vol14/iss3/2 }, year = {2021}, date = {2021-10-01}, journal = {Journal of Health Disparities Research and Practice}, volume = {14}, number = {3}, abstract = {Thirty years after the Americans with Disabilities Act (ADA) was passed, promising equal access to health services for people with disabilities and serious mental illness, research on Pap testing continues to uncover health disparities among women with disabilities and women with serious mental illnesses, including those that identify as an ethnic/racial minority. The purpose of this paper is to describe and present the literature on the barriers and facilitators women with disabilities and women with serious mental illnesses face with receiving a Pap test using the social ecological model. We also examined the degree to which racial/ethnic minority women were included in these articles.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Thirty years after the Americans with Disabilities Act (ADA) was passed, promising equal access to health services for people with disabilities and serious mental illness, research on Pap testing continues to uncover health disparities among women with disabilities and women with serious mental illnesses, including those that identify as an ethnic/racial minority. The purpose of this paper is to describe and present the literature on the barriers and facilitators women with disabilities and women with serious mental illnesses face with receiving a Pap test using the social ecological model. We also examined the degree to which racial/ethnic minority women were included in these articles. |
Pearson, Talima; Hepp, Crystal; II, Robert Trotter T; Mbegbu, Mimi; Russakoff, Benjamin; Yagüe, David Panisello; Wood, Colin; Tucker-Morgan, Kara; Ceniceros, Kathya; Padilla, Cristina; Kyman, Shari; Villa, Francisco Genome Sequences of Community Carriage Strains of Staphylococcus aureus from Yuma, Arizona Journal Article Microbiology Resource Announcements, 10 (37), 2021. @article{Pearson2021, title = {Genome Sequences of Community Carriage Strains of Staphylococcus aureus from Yuma, Arizona}, author = {Talima Pearson and Crystal Hepp and Robert T Trotter II and Mimi Mbegbu and Benjamin Russakoff and David Panisello Yagüe and Colin Wood and Kara Tucker-Morgan and Kathya Ceniceros and Cristina Padilla and Shari Kyman and Francisco Villa}, url = {https://journals.asm.org/doi/10.1128/MRA.00449-21}, doi = {10.1128/MRA.00449-21}, year = {2021}, date = {2021-09-16}, journal = {Microbiology Resource Announcements}, volume = {10}, number = {37}, abstract = {Staphylococcus aureus exists as a pathogen and commensal. Individuals with asymptomatic carriage serve as a reservoir for transmission and are at increased risk of infecting themselves. In order to characterize the genomic diversity of S. aureus circulating in the community, we sequenced 166 genomes collected from individuals in Yuma, AZ.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Staphylococcus aureus exists as a pathogen and commensal. Individuals with asymptomatic carriage serve as a reservoir for transmission and are at increased risk of infecting themselves. In order to characterize the genomic diversity of S. aureus circulating in the community, we sequenced 166 genomes collected from individuals in Yuma, AZ. |
Ransdell, Lynda B; Wayment, Heidi A; Lopez, Nanette; Lorts, Cori; Schwartz, Anna L; Pugliesi, Karen; Pohl, Patricia S; Bycura, Dierdra; Camplain, Ricky Women, 1 (3), pp. 143-168, 2021. @article{Ransdell2021b, title = {The Impact of Resistance Training on Body Composition, Muscle Strength, and Functional Fitness in Older Women (45–80 Years): A Systematic Review (2010–2020)}, author = {Lynda B. Ransdell and Heidi A. Wayment and Nanette Lopez and Cori Lorts and Anna L. Schwartz and Karen Pugliesi and Patricia S. Pohl and Dierdra Bycura and Ricky Camplain}, url = {https://doi.org/10.3390/women1030014}, doi = {10.3390/women1030014}, year = {2021}, date = {2021-09-14}, journal = {Women}, volume = {1}, number = {3}, pages = {143-168}, abstract = {As women age, they typically experience a progressive decrease in skeletal muscle mass and strength, which can lead to a decline in functional fitness and quality of life. Resistance training (RT) has the potential to attenuate these losses. Although well established for men, evidence regarding the benefits of RT for women is sparse and inconsistent: prior reviews include too few studies with women and do not adequately examine the interactive or additive impacts of workload, modalities, and nutritional supplements on outcomes such as muscle mass (MM), body composition (BC), muscle strength (MS), and functional fitness (FF). The purpose of this review is to identify these gaps. Thirty-eight papers published between 2010 and 2020 (in English) represent 2519 subjects (mean age = 66.89 ± 4.91 years). Intervention averages include 2 to 3 × 50 min sessions across 15 weeks with 7 exercises per session and 11 repetitions per set. Twelve studies (32%) examined the impact of RT plus dietary manipulation. MM, MS, and FF showed positive changes after RT. Adding RT to fitness regimens for peri- to postmenopausal women is likely to have positive benefits.}, keywords = {}, pubstate = {published}, tppubtype = {article} } As women age, they typically experience a progressive decrease in skeletal muscle mass and strength, which can lead to a decline in functional fitness and quality of life. Resistance training (RT) has the potential to attenuate these losses. Although well established for men, evidence regarding the benefits of RT for women is sparse and inconsistent: prior reviews include too few studies with women and do not adequately examine the interactive or additive impacts of workload, modalities, and nutritional supplements on outcomes such as muscle mass (MM), body composition (BC), muscle strength (MS), and functional fitness (FF). The purpose of this review is to identify these gaps. Thirty-eight papers published between 2010 and 2020 (in English) represent 2519 subjects (mean age = 66.89 ± 4.91 years). Intervention averages include 2 to 3 × 50 min sessions across 15 weeks with 7 exercises per session and 11 repetitions per set. Twelve studies (32%) examined the impact of RT plus dietary manipulation. MM, MS, and FF showed positive changes after RT. Adding RT to fitness regimens for peri- to postmenopausal women is likely to have positive benefits. |
Teufel-Shone, Nicolette I; Chief, Carmenlita; Richards, Jennifer R; Clausen, Rebecca J; Yazzie, Alfred; Jr, Manley Begay A; Lothrop, Nathan; Yazzie, Janene; Begay, Andria B; Beamer, Paloma I; Chief, Karletta International Journal of Environmental Research and Public Health, 18 (17), pp. 9402, 2021. @article{Teufel-Shone2021, title = {Development of a Culturally Anchored Qualitative Approach to Conduct and Analyze Focus Group Narratives Collected in Diné (Navajo) Communities to Understand the Impacts of the Gold King Mine Spill of 2015}, author = {Nicolette I Teufel-Shone and Carmenlita Chief and Jennifer R Richards and Rebecca J Clausen and Alfred Yazzie and Manley A Begay Jr and Nathan Lothrop and Janene Yazzie and Andria B Begay and Paloma I Beamer and Karletta Chief}, url = { https://doi.org/10.3390/ijerph18179402}, doi = {10.3390/ijerph18179402}, year = {2021}, date = {2021-09-06}, journal = {International Journal of Environmental Research and Public Health}, volume = {18}, number = {17}, pages = {9402}, abstract = {The Gold King Mine Spill (Spill) occurred in August 2015 upstream from Silverton, Colorado and released three million gallons of contaminated water into the Animas River, a tributary to the San Juan River that flows across the Navajo Nation. Using principles of community-engaged research, the Gold King Mine Spill Diné Exposure Project co-developed a culturally anchored approach to conduct focus groups and analyze narratives collected in three Diné (Navajo) communities along the San Juan River within 9 months of the Spill. Focus group questions were designed to document the socio-cultural impacts of the Spill. This paper: (1) outlines the partnerships and approvals; (2) describes focus group design, training, data collection and analysis; and (3) reflects on the use of a culturally anchored approach in Indigenous, specifically Diné-centered research. Diné social and cultural etiquette and concepts of relationality were used to adapt standard (non-Indigenous) qualitative methods. Findings describe community perceptions of short-term impacts of the disaster, as well as past and present injustices, communication related to the Spill, and concerns of persistent threats to Diné lifeways. The culturally anchored approach was critical in fostering trust with Diné participants and aligned with the candor of the discussions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Gold King Mine Spill (Spill) occurred in August 2015 upstream from Silverton, Colorado and released three million gallons of contaminated water into the Animas River, a tributary to the San Juan River that flows across the Navajo Nation. Using principles of community-engaged research, the Gold King Mine Spill Diné Exposure Project co-developed a culturally anchored approach to conduct focus groups and analyze narratives collected in three Diné (Navajo) communities along the San Juan River within 9 months of the Spill. Focus group questions were designed to document the socio-cultural impacts of the Spill. This paper: (1) outlines the partnerships and approvals; (2) describes focus group design, training, data collection and analysis; and (3) reflects on the use of a culturally anchored approach in Indigenous, specifically Diné-centered research. Diné social and cultural etiquette and concepts of relationality were used to adapt standard (non-Indigenous) qualitative methods. Findings describe community perceptions of short-term impacts of the disaster, as well as past and present injustices, communication related to the Spill, and concerns of persistent threats to Diné lifeways. The culturally anchored approach was critical in fostering trust with Diné participants and aligned with the candor of the discussions. |
Horne, Yoshira Ornelas Van; Chief, Karletta; Charley, Perry H; Begay, Mae-Gilene; Bell, Nathan Lothrop 5and Melanie L; Canales, Robert A; Teufel-Shone, Nicolette I; Beamer, Paloma I Impacts to Diné activities with the San Juan River after the Gold King Mine Spill Journal Article J Expo Sci Environ Epidemiol, 31 (5), pp. 852-86, 2021. @article{Horne2021, title = {Impacts to Diné activities with the San Juan River after the Gold King Mine Spill}, author = {Yoshira Ornelas Van Horne and Karletta Chief and Perry H Charley and Mae-Gilene Begay and Nathan Lothrop 5and Melanie L Bell and Robert A Canales and Nicolette I Teufel-Shone and Paloma I Beamer}, url = {https://pubmed.ncbi.nlm.nih.gov/33526814/}, doi = {10.1038/s41370-021-00290-z}, year = {2021}, date = {2021-09-01}, journal = {J Expo Sci Environ Epidemiol}, volume = {31}, number = {5}, pages = {852-86}, abstract = {On August 5th, 2015, 3 million gallons of acid mine drainage was accidentally discharged from the Gold King Mine near Silverton, Colorado into Cement Creek which is a tributary to the Animas and San Juan Rivers. The government-initiated risk assessment only assessed a recreational scenario (i.e. hiker drinking from the river), failing to recognize the deep connection of the Diné (Navajo) with the San Juan River. Utilizing a mixed-methods approach we determined the impacts of the 2015 Gold King Mine Spill (GKMS or Spill) on Diné activities. We developed a questionnaire to collect pre- and post-GKMS Diné activity frequency and duration. Navajo Nation Community Health Representatives administered the questionnaire to 63 Diné adults and 27 children living in three Navajo communities along the River. Through analysis of the focus group transcripts we identified 43 unique activities between the Diné and San Juan River. There were significant reductions in the total number, frequency, and duration of livelihood, dietary, recreational, cultural/spiritual and arts and craft activities. On average, Diné activities with the San Juan River following the GKMS decreased by 56.2%. The significant reduction in activities following the GKMS may lead to long-term trauma, impacting the ability of the Diné to pass down teachings to their children affecting future generations to come. The 43 distinct activities between the Diné and the San Juan River highlight the importance for scientists and disaster responders to consider cultural and spiritual impacts when responding to environmental disasters and conducting risk assessments among Indigenous communities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } On August 5th, 2015, 3 million gallons of acid mine drainage was accidentally discharged from the Gold King Mine near Silverton, Colorado into Cement Creek which is a tributary to the Animas and San Juan Rivers. The government-initiated risk assessment only assessed a recreational scenario (i.e. hiker drinking from the river), failing to recognize the deep connection of the Diné (Navajo) with the San Juan River. Utilizing a mixed-methods approach we determined the impacts of the 2015 Gold King Mine Spill (GKMS or Spill) on Diné activities. We developed a questionnaire to collect pre- and post-GKMS Diné activity frequency and duration. Navajo Nation Community Health Representatives administered the questionnaire to 63 Diné adults and 27 children living in three Navajo communities along the River. Through analysis of the focus group transcripts we identified 43 unique activities between the Diné and San Juan River. There were significant reductions in the total number, frequency, and duration of livelihood, dietary, recreational, cultural/spiritual and arts and craft activities. On average, Diné activities with the San Juan River following the GKMS decreased by 56.2%. The significant reduction in activities following the GKMS may lead to long-term trauma, impacting the ability of the Diné to pass down teachings to their children affecting future generations to come. The 43 distinct activities between the Diné and the San Juan River highlight the importance for scientists and disaster responders to consider cultural and spiritual impacts when responding to environmental disasters and conducting risk assessments among Indigenous communities. |
Credo, Jonathan; Ingram, Jani C Perspective Developing Successful Collaborative Research Partnerships with AI/AN Communities Journal Article International Journal of Environmental Research and Public Health, 18 (17), pp. 9089, 2021. @article{Credo2021, title = {Perspective Developing Successful Collaborative Research Partnerships with AI/AN Communities}, author = {Jonathan Credo and Jani C Ingram}, url = {https://pubmed.ncbi.nlm.nih.gov/34501677/}, doi = {10.3390/ijerph18179089}, year = {2021}, date = {2021-08-28}, journal = {International Journal of Environmental Research and Public Health}, volume = {18}, number = {17}, pages = {9089}, abstract = {In the United States, American Indian and Alaska Native (AI/AN) people are frequently under- or misrepresented in research and health statistics. A principal reason for this disparity is the lack of collaborative partnerships between researchers and tribes. There are hesitations from both academic Western scientists and tribal communities to establish new partnerships due to differences in cultural and scientific understanding, from data ownership and privacy to dissemination and project expansion. An infamous example is the mishandling of samples collected from the Havasupai Tribe by Arizona State University (ASU) scientists, leading to a legal battle between the tribe and ASU and ending in a moratorium of research with the Havasupai people. This paper will explore three successful and positive collaborations with a large and small tribe, including how the partnerships were established and the outcomes of the collaboration. In addition, the paper will provide perspective of what needs to be addressed by Western scientists if productive collaborations with tribal groups are to be established.}, keywords = {}, pubstate = {published}, tppubtype = {article} } In the United States, American Indian and Alaska Native (AI/AN) people are frequently under- or misrepresented in research and health statistics. A principal reason for this disparity is the lack of collaborative partnerships between researchers and tribes. There are hesitations from both academic Western scientists and tribal communities to establish new partnerships due to differences in cultural and scientific understanding, from data ownership and privacy to dissemination and project expansion. An infamous example is the mishandling of samples collected from the Havasupai Tribe by Arizona State University (ASU) scientists, leading to a legal battle between the tribe and ASU and ending in a moratorium of research with the Havasupai people. This paper will explore three successful and positive collaborations with a large and small tribe, including how the partnerships were established and the outcomes of the collaboration. In addition, the paper will provide perspective of what needs to be addressed by Western scientists if productive collaborations with tribal groups are to be established. |
Cox, Genevieve R; FireMoon, Paula; Anastario, Michael P; Ricker, Adriann; Thunder, Ramey Escarcega-Growing; Baldwin, Julie A; Rink, Elizabeth Indigenous standpoint theory as a theoretical framework for decolonizing social science health research with American Indian communities Journal Article AlterNative: An International Journal of Indigenous Peoples, 2021. @article{Cox2021, title = {Indigenous standpoint theory as a theoretical framework for decolonizing social science health research with American Indian communities}, author = {Genevieve R Cox and Paula FireMoon and Michael P Anastario and Adriann Ricker and Ramey Escarcega-Growing Thunder and Julie A Baldwin and Elizabeth Rink}, url = {https://doi.org/10.1177/11771801211042019}, doi = {10.1177/11771801211042019}, year = {2021}, date = {2021-08-26}, journal = {AlterNative: An International Journal of Indigenous Peoples}, abstract = {Theoretical frameworks rooted in Western knowledge claims utilized for public health research in the social sciences are not inclusive of American Indian communities. Developed by Indigenous researchers, Indigenous standpoint theory builds from and moves beyond Western theoretical frameworks. We argue that using Indigenous standpoint theory in partnership with American Indian communities works to decolonize research related to American Indian health in the social sciences and combats the effects of colonization in three ways. First, Indigenous standpoint theory aids in interpreting how the intersections unique to American Indians including the effects of colonization, tribal and other identities, and cultural context are linked to structural inequalities for American Indian communities. Second, Indigenous standpoint theory integrates Indigenous ways of knowing with Western research orientations and methodologies in a collaborative process that works to decolonize social science research for American Indians. Third, Indigenous standpoint theory promotes direct application of research benefits to American Indian communities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Theoretical frameworks rooted in Western knowledge claims utilized for public health research in the social sciences are not inclusive of American Indian communities. Developed by Indigenous researchers, Indigenous standpoint theory builds from and moves beyond Western theoretical frameworks. We argue that using Indigenous standpoint theory in partnership with American Indian communities works to decolonize research related to American Indian health in the social sciences and combats the effects of colonization in three ways. First, Indigenous standpoint theory aids in interpreting how the intersections unique to American Indians including the effects of colonization, tribal and other identities, and cultural context are linked to structural inequalities for American Indian communities. Second, Indigenous standpoint theory integrates Indigenous ways of knowing with Western research orientations and methodologies in a collaborative process that works to decolonize social science research for American Indians. Third, Indigenous standpoint theory promotes direct application of research benefits to American Indian communities. |
Ransdell, Lynda B; Wayment, Heidi A; Schwartz, Anna L; Lane, Taylor S; Baldwin, Julie A Precision mentoring (PM): a proposed framework for increasing research capacity in health-related disciplines Journal Article Medical Education Online, 26 (1), 2021. @article{Ransdell2021c, title = {Precision mentoring (PM): a proposed framework for increasing research capacity in health-related disciplines}, author = {Lynda B Ransdell and Heidi A Wayment and Anna L Schwartz and Taylor S Lane and Julie A Baldwin}, url = {https://www.tandfonline.com/doi/full/10.1080/10872981.2021.1964933}, doi = {10.1080/10872981.2021.1964933}, year = {2021}, date = {2021-08-24}, journal = {Medical Education Online}, volume = {26}, number = {1}, abstract = {Research productivity is expected of academic faculty, and mentoring can facilitate it. This paper presents a framework for using mentoring to develop researchers in health disciplines. We utilized recent literature reviews, and experience developing researchers at an emerging research institution within the Research Centers for Minority Institutions (RCMI) program, to propose a precision mentoring (PM) framework for research development. Although we cannot precisely determine how much improvement was due to the PM framework, over the 4 years of our program, the quality and quantity of pilot project proposals (PPP) has increased, the number of external proposals submitted and funded by PPP investigators has increased, and the number of faculty participating in our program has increased. Surveys distributed to our 2021–22 PPP applicants who did not receive funding (n = 5/6 or 86.7%) revealed that new investigators most frequently sought mentoring related to career guidance (e.g., institutional culture, pre-tenure survival strategies), grant proposal basics (e.g., working with funding agencies, reviewing aims, balancing priorities, and enhancing scientific rigor), and identifying funding opportunities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Research productivity is expected of academic faculty, and mentoring can facilitate it. This paper presents a framework for using mentoring to develop researchers in health disciplines. We utilized recent literature reviews, and experience developing researchers at an emerging research institution within the Research Centers for Minority Institutions (RCMI) program, to propose a precision mentoring (PM) framework for research development. Although we cannot precisely determine how much improvement was due to the PM framework, over the 4 years of our program, the quality and quantity of pilot project proposals (PPP) has increased, the number of external proposals submitted and funded by PPP investigators has increased, and the number of faculty participating in our program has increased. Surveys distributed to our 2021–22 PPP applicants who did not receive funding (n = 5/6 or 86.7%) revealed that new investigators most frequently sought mentoring related to career guidance (e.g., institutional culture, pre-tenure survival strategies), grant proposal basics (e.g., working with funding agencies, reviewing aims, balancing priorities, and enhancing scientific rigor), and identifying funding opportunities. |
Geronimus, Arline T; Bound, John; Mitchell, Colter; Martinez-Cardoso, Aresha; Evans, Linnea; Hughes, Landon; Schneper, Lisa; Notterman, Daniel A Coming up short: Comparing venous blood, dried blood spots and saliva samples for measuring telomere length in health equity research Journal Article PLOS ONE, 16 (8), 2021. @article{Geronimus2021, title = {Coming up short: Comparing venous blood, dried blood spots and saliva samples for measuring telomere length in health equity research}, author = {Arline T. Geronimus and John Bound and Colter Mitchell and Aresha Martinez-Cardoso and Linnea Evans and Landon Hughes and Lisa Schneper and Daniel A. Notterman}, url = {https://doi.org/10.1371/journal.pone.0255237}, doi = {10.1371/journal.pone.0255237}, year = {2021}, date = {2021-08-18}, journal = {PLOS ONE}, volume = {16}, number = {8}, abstract = {Telomere length (TL) in peripheral blood mononuclear cells (PBMC) from fresh venous blood is increasingly used to estimate molecular impacts of accumulated social adversity on population health. Sometimes, TL extracted from saliva or dried blood spots (DBS) are substituted as less invasive and more scalable specimen collection methods; yet, are they interchangeable with fresh blood? Studies find TL is correlated across tissues, but have not addressed the critical question for social epidemiological applications: Do different specimen types show the same association between TL and social constructs?}, keywords = {}, pubstate = {published}, tppubtype = {article} } Telomere length (TL) in peripheral blood mononuclear cells (PBMC) from fresh venous blood is increasingly used to estimate molecular impacts of accumulated social adversity on population health. Sometimes, TL extracted from saliva or dried blood spots (DBS) are substituted as less invasive and more scalable specimen collection methods; yet, are they interchangeable with fresh blood? Studies find TL is correlated across tissues, but have not addressed the critical question for social epidemiological applications: Do different specimen types show the same association between TL and social constructs? |
Trotter, Robert; Baldwin, Julie A; Buck, Charles Loren; Remiker, Mark; Aguirre, Amanda; Milner, Trudie; Torres, Emma; von Hippel, Frank Arthur JMIR Research Protocol, 10 (8), 2021. @article{Trotter2021, title = {Health Impacts of Perchlorate and Pesticide Exposure: Protocol for Community-Engaged Research to Evaluate Environmental Toxicants in a US Border Community}, author = {Robert Trotter and Julie A Baldwin and Charles Loren Buck and Mark Remiker and Amanda Aguirre and Trudie Milner and Emma Torres and Frank Arthur von Hippel}, url = {https://pubmed.ncbi.nlm.nih.gov/34383679/}, doi = {10.2196/15864}, year = {2021}, date = {2021-08-11}, journal = {JMIR Research Protocol}, volume = {10}, number = {8}, abstract = {The Northern Arizona University (NAU) Center for Health Equity Research (CHER) is conducting community-engaged health research involving "environmental scans" in Yuma County in collaboration with community health stakeholders, including the Yuma Regional Medical Center (YRMC), Regional Center for Border Health, Inc. (RCBH), Campesinos Sin Fronteras (CSF), Yuma County Public Health District, and government agencies and nongovernmental organizations (NGOs) working on border health issues. The purpose of these efforts is to address community-generated environmental health hazards identified through ongoing coalitions among NAU, and local health care and research institutions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Northern Arizona University (NAU) Center for Health Equity Research (CHER) is conducting community-engaged health research involving "environmental scans" in Yuma County in collaboration with community health stakeholders, including the Yuma Regional Medical Center (YRMC), Regional Center for Border Health, Inc. (RCBH), Campesinos Sin Fronteras (CSF), Yuma County Public Health District, and government agencies and nongovernmental organizations (NGOs) working on border health issues. The purpose of these efforts is to address community-generated environmental health hazards identified through ongoing coalitions among NAU, and local health care and research institutions. |
Hardy, Lisa J; Mana, Adi; Mundell, Leah; Benheim, Sharón; Morales, Kayla Torres; Sagy, Shifra Living in opposition: How women in the United States cope in spite of mistrust of federal leadership during the pandemic of Covid-19 Journal Article Journal of Community Psychology, 49 (6), pp. 2059-2070, 2021. @article{Hardy2021, title = {Living in opposition: How women in the United States cope in spite of mistrust of federal leadership during the pandemic of Covid-19}, author = {Lisa J Hardy and Adi Mana and Leah Mundell and Sharón Benheim and Kayla Torres Morales and Shifra Sagy}, url = {https://pubmed.ncbi.nlm.nih.gov/33729586/}, doi = {10.1002/jcop.22544}, year = {2021}, date = {2021-08-01}, journal = {Journal of Community Psychology}, volume = {49}, number = {6}, pages = {2059-2070}, abstract = {International research collaborators conducted research investigating sociocultural responses to the Covid-19 pandemic. Our mixed methods research design includes surveys and interviews conducted between March and September of 2020 including 249 of 506 survey responses and 18 of 50 in-depth, exploratory, semi-structured interviews with self-defined politically left-leaning women in the United States. We employ a sequential design to analyze statistical and qualitative data. Despite international data suggesting that trust in federal governments reduces anxiety, women who did not trust and actively opposed the Trump administration reported lower levels of anxiety than expected. Results indicate reliance on and development of new forms of connection that seem to mitigate symptomatic anxieties when living in opposition. Women living in opposition to the leadership of the federal government use and develop resources to help them cope. Research on coping strategies and mental health and anxiety during crisis can inform recommendations for ways to support and strengthen sense of coherence during tumultuous times.}, keywords = {}, pubstate = {published}, tppubtype = {article} } International research collaborators conducted research investigating sociocultural responses to the Covid-19 pandemic. Our mixed methods research design includes surveys and interviews conducted between March and September of 2020 including 249 of 506 survey responses and 18 of 50 in-depth, exploratory, semi-structured interviews with self-defined politically left-leaning women in the United States. We employ a sequential design to analyze statistical and qualitative data. Despite international data suggesting that trust in federal governments reduces anxiety, women who did not trust and actively opposed the Trump administration reported lower levels of anxiety than expected. Results indicate reliance on and development of new forms of connection that seem to mitigate symptomatic anxieties when living in opposition. Women living in opposition to the leadership of the federal government use and develop resources to help them cope. Research on coping strategies and mental health and anxiety during crisis can inform recommendations for ways to support and strengthen sense of coherence during tumultuous times. |
2019 |
Lemmon, Monica E; Huffstetler, Hanna; Barks, Mary Carol; Kirby, Christine; Katz, Madelaine; Ubel, Peter A; Docherty, Sharron L; Brandon, Debra Neurologic Outcome After Prematurity: Perspectives of Parents and Clinicians. Journal Article American Academy of Pediatrics, 144 (1), 2019. @article{Lemmon2019, title = {Neurologic Outcome After Prematurity: Perspectives of Parents and Clinicians.}, author = {Monica E. Lemmon and Hanna Huffstetler and Mary Carol Barks and Christine Kirby and Madelaine Katz and Peter A. Ubel and Sharron L. Docherty and Debra Brandon}, url = {https://www.ncbi.nlm.nih.gov/pubmed/31248939}, doi = {10.1542/peds.2018-3819}, year = {2019}, date = {2019-07-01}, journal = { American Academy of Pediatrics}, volume = {144}, number = {1}, abstract = {BACKGROUND: Parents and clinicians caring for premature infants face high-stakes and time-sensitive decisions about care. We aimed to characterize how parents and clinicians discuss outcome in the context of decision-making for premature infants. METHODS: In this qualitative descriptive study, we used a case-based, prospective design. Cases of extreme prematurity were targeted. Parents and clinicians completed semistructured interviews about care decisions longitudinally in the first year of life. Interview data were analyzed by using directed content analysis. RESULTS: Sixteen parents and 53 clinicians of 10 infants completed 178 interviews (n = 115 parent; n = 63 clinician). Two primary themes emerged. First, parents and clinicians discussed prognostic information differently from each other. Parents focused on whether their infant would survive, whereas clinicians concentrated on neurologic outcome and the potential for life with disability. Parent discussion of the future was broad and rooted in hope and spirituality. Clinician prognostic language was narrowly focused and probabilistic. Second, we identified barriers and facilitators to a shared understanding of infant outcome. Clinicians perceived that parents were unaware of or unable to process important information about the big picture. Parents valued consistent therapeutic relationships; transitions of care and underused roles of the care team undermined this consistency. Clinical uncertainty forced parents and clinicians to "wait and see" about the future. CONCLUSIONS: Parents and clinicians discuss and weigh information about the future differently from each other as they consider choices for extremely premature infants. Future work should characterize the impact of these differences on prognostic communication and decision-making.}, keywords = {}, pubstate = {published}, tppubtype = {article} } BACKGROUND: Parents and clinicians caring for premature infants face high-stakes and time-sensitive decisions about care. We aimed to characterize how parents and clinicians discuss outcome in the context of decision-making for premature infants. METHODS: In this qualitative descriptive study, we used a case-based, prospective design. Cases of extreme prematurity were targeted. Parents and clinicians completed semistructured interviews about care decisions longitudinally in the first year of life. Interview data were analyzed by using directed content analysis. RESULTS: Sixteen parents and 53 clinicians of 10 infants completed 178 interviews (n = 115 parent; n = 63 clinician). Two primary themes emerged. First, parents and clinicians discussed prognostic information differently from each other. Parents focused on whether their infant would survive, whereas clinicians concentrated on neurologic outcome and the potential for life with disability. Parent discussion of the future was broad and rooted in hope and spirituality. Clinician prognostic language was narrowly focused and probabilistic. Second, we identified barriers and facilitators to a shared understanding of infant outcome. Clinicians perceived that parents were unaware of or unable to process important information about the big picture. Parents valued consistent therapeutic relationships; transitions of care and underused roles of the care team undermined this consistency. Clinical uncertainty forced parents and clinicians to "wait and see" about the future. CONCLUSIONS: Parents and clinicians discuss and weigh information about the future differently from each other as they consider choices for extremely premature infants. Future work should characterize the impact of these differences on prognostic communication and decision-making. |
Panagiotou, Orestis A; Kumar, Amit; Gutman, Roee; Keohane, Laura M; Rivera-Hernandez, Maricruz; Rahman, Momotazur; Gozalo, Pedro L; Mor, Vincent; Trivedi, Amal N Hospital Readmission Rates in Medicare Advantage and Traditional Medicare: A Retrospective Population-Based Analysis Journal Article Annals of Internal Medicine, 171 (2), pp. 99-106, 2019. @article{Panagiotou2019, title = {Hospital Readmission Rates in Medicare Advantage and Traditional Medicare: A Retrospective Population-Based Analysis}, author = {Orestis A. Panagiotou and Amit Kumar and Roee Gutman and Laura M. Keohane and Maricruz Rivera-Hernandez and Momotazur Rahman and Pedro L. Gozalo and Vincent Mor and Amal N. Trivedi}, url = {https://pubmed.ncbi.nlm.nih.gov/31234205/}, doi = {10.7326/M18-1795}, year = {2019}, date = {2019-06-25}, journal = {Annals of Internal Medicine}, volume = {171}, number = {2}, pages = {99-106}, keywords = {}, pubstate = {published}, tppubtype = {article} } |
Young, Belinda-Rose; Gwede, Clement K; Thomas, Bria; Vázquez-Otero, Coralia; Ewing, Aldenise; Best, Alicia L; Claudia X. Aguado Loi and, Dinorah Martinez-Tyson ; Schneider, Tali; Meade, Cathy D; Baldwin, Julie A; Bryant, Carol Front Public Health, 2019. @article{Young2019, title = {A Systematic Review of U.S.-Based Colorectal Cancer Screening Uptake Intervention Systematic Reviews: Available Evidence and Lessons Learned for Research and Practice.}, author = {Belinda-Rose Young and Clement K. Gwede and Bria Thomas and Coralia Vázquez-Otero and Aldenise Ewing and Alicia L. Best and Claudia X. Aguado Loi and, Dinorah Martinez-Tyson and Tali Schneider and Cathy D. Meade and Julie A. Baldwin and Carol Bryant}, url = {https://www.ncbi.nlm.nih.gov/pubmed/31245345}, doi = {10.3389/fpubh.2019.00145}, year = {2019}, date = {2019-06-11}, journal = {Front Public Health}, abstract = {Background: We examined colorectal cancer screening (CRCS) intervention effectiveness, through the effect sizes associated with: (1) screening modality, (2) intervention level (e.g., client-directed), and (3) intervention component (e.g. client reminders) within published CRCS intervention systematic reviews (SRs). Methods: A search of peer-reviewed CRCS SRs that were written in English was employed utilizing five databases: CINAHL, Cochrane Library, rTIPS, PubMed, and PsycINFO EBSCOHOST. SRs that included CRCS interventions with a randomized controlled trial, quasi-experimental, or single arm design were eligible. Data on effect sizes by screening modality, intervention level, and intervention component were extracted and synthesized. Results: There were 16 eligible CRCS intervention SRs that included 116 studies published between 1986 and 2013. Reviews organized data by CRCS screening modality, or intervention component. Effect size reporting varied by format (i.e., ranges, medians of multiple studies, or effect size per study), and groupings of modalities and components. Overall, the largest effect sizes were for studies that utilized a combination of colonoscopy, fecal occult blood test (FOBT), and sigmoidoscopy as screening options (16-45 percentage point difference). Conclusions: Evidence suggests that CRCS interventions which include a combination of screening modalities may be most effective. This is the first SR to examine effect sizes of published CRCS SRs. However, because some SRs did not report effect sizes and there were tremendous variability reporting formats among those that did, a standard reporting format is warranted. Synthesizing findings can contribute to improved knowledge of evidence-based best-practices, direct translation of findings into policy and practice, and guide further research in CRCS.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background: We examined colorectal cancer screening (CRCS) intervention effectiveness, through the effect sizes associated with: (1) screening modality, (2) intervention level (e.g., client-directed), and (3) intervention component (e.g. client reminders) within published CRCS intervention systematic reviews (SRs). Methods: A search of peer-reviewed CRCS SRs that were written in English was employed utilizing five databases: CINAHL, Cochrane Library, rTIPS, PubMed, and PsycINFO EBSCOHOST. SRs that included CRCS interventions with a randomized controlled trial, quasi-experimental, or single arm design were eligible. Data on effect sizes by screening modality, intervention level, and intervention component were extracted and synthesized. Results: There were 16 eligible CRCS intervention SRs that included 116 studies published between 1986 and 2013. Reviews organized data by CRCS screening modality, or intervention component. Effect size reporting varied by format (i.e., ranges, medians of multiple studies, or effect size per study), and groupings of modalities and components. Overall, the largest effect sizes were for studies that utilized a combination of colonoscopy, fecal occult blood test (FOBT), and sigmoidoscopy as screening options (16-45 percentage point difference). Conclusions: Evidence suggests that CRCS interventions which include a combination of screening modalities may be most effective. This is the first SR to examine effect sizes of published CRCS SRs. However, because some SRs did not report effect sizes and there were tremendous variability reporting formats among those that did, a standard reporting format is warranted. Synthesizing findings can contribute to improved knowledge of evidence-based best-practices, direct translation of findings into policy and practice, and guide further research in CRCS. |
Lam, Felix; Pro, George; Agrawal, Shreya; Shastri, Vishal Dev; Wentworth, Leslie; Stanley, Melinda; Beri, Nitin; Tupe, Abhishek; Mishra, Ashutosh; Subramaniam, Hamsa; Schroder, Kate; Prescott, Marta Rose; Trikha, Naresh Journal of Global Health, 9 (1), 2019. @article{Lam2019, title = {Effect of enhanced detailing and mass media on community use of oral rehydration salts and zinc during a scale-up program in Gujarat and Uttar Pradesh.}, author = {Felix Lam and George Pro and Shreya Agrawal and Vishal Dev Shastri and Leslie Wentworth and Melinda Stanley and Nitin Beri and Abhishek Tupe and Ashutosh Mishra and Hamsa Subramaniam and Kate Schroder and Marta Rose Prescott and Naresh Trikha}, url = {https://www.ncbi.nlm.nih.gov/pubmed/30546870}, doi = {10.7189/jogh.09.010501}, year = {2019}, date = {2019-06-09}, journal = {Journal of Global Health}, volume = {9}, number = {1}, abstract = {Background: The Clinton Health Access Initiative implemented a program from 2012-2016 to increase use of oral rehydration salts (ORS) and zinc to treat diarrhea in children under five in three states in India: Gujarat, Madhya Pradesh, and Uttar Pradesh. The program interventions included detailing and development of a rural supply chain to reach private rural health care providers, training of Accredited Social Health Activists (ASHAs), technical support to the state governments, and a mass media campaign targeted at caregivers. In Gujarat and Uttar Pradesh, some of the program activities, such as detailing and ASHA trainings, were targeted to high-burden focal districts, thus providing an opportunity to study their effect compared to statewide activities that covered all districts, such as the mass media campaign. Our study aimed to estimate the effect of activities on ORS and zinc use. Methods: Household surveys were conducted at two points during the program and in both focal and non-focal districts. We used a difference-in-difference quasi-experimental approach to estimate the effect of the enhanced activities in focal districts and mass media campaign on the odds of a child being treated with ORS and zinc. Findings: Focal district interventions were associated with a significant increase in the odds of a diarrhea episode receiving ORS in Gujarat and Uttar Pradesh. Living in focal districts increased the odds of receiving ORS in Gujarat and Uttar Pradesh by factors of 3.42 (95% CI = 1.39-8.33) and 2.29 (95% CI = 1.19-4.39), respectively. Focal district interventions were also associated with 15.02 (95% CI = 2.97-75.19) greater odds of receiving both ORS and zinc in Gujarat. In Uttar Pradesh, where the mass media campaign was focused, exposure to the campaign further modified the odds of receiving ORS and combined ORS and zinc by 1.38 (95% CI = 1.04-1.84) and 1.57 (95% CI = 1.01-2.46), respectively. Conclusion: Comprehensive public and private provider interventions combined with mass media are effective strategies for increasing ORS and zinc use.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background: The Clinton Health Access Initiative implemented a program from 2012-2016 to increase use of oral rehydration salts (ORS) and zinc to treat diarrhea in children under five in three states in India: Gujarat, Madhya Pradesh, and Uttar Pradesh. The program interventions included detailing and development of a rural supply chain to reach private rural health care providers, training of Accredited Social Health Activists (ASHAs), technical support to the state governments, and a mass media campaign targeted at caregivers. In Gujarat and Uttar Pradesh, some of the program activities, such as detailing and ASHA trainings, were targeted to high-burden focal districts, thus providing an opportunity to study their effect compared to statewide activities that covered all districts, such as the mass media campaign. Our study aimed to estimate the effect of activities on ORS and zinc use. Methods: Household surveys were conducted at two points during the program and in both focal and non-focal districts. We used a difference-in-difference quasi-experimental approach to estimate the effect of the enhanced activities in focal districts and mass media campaign on the odds of a child being treated with ORS and zinc. Findings: Focal district interventions were associated with a significant increase in the odds of a diarrhea episode receiving ORS in Gujarat and Uttar Pradesh. Living in focal districts increased the odds of receiving ORS in Gujarat and Uttar Pradesh by factors of 3.42 (95% CI = 1.39-8.33) and 2.29 (95% CI = 1.19-4.39), respectively. Focal district interventions were also associated with 15.02 (95% CI = 2.97-75.19) greater odds of receiving both ORS and zinc in Gujarat. In Uttar Pradesh, where the mass media campaign was focused, exposure to the campaign further modified the odds of receiving ORS and combined ORS and zinc by 1.38 (95% CI = 1.04-1.84) and 1.57 (95% CI = 1.01-2.46), respectively. Conclusion: Comprehensive public and private provider interventions combined with mass media are effective strategies for increasing ORS and zinc use. |
Camplain, Ricky; Baldwin, Julie A; Warren, Meghan; Camplain, Carolyn Physical Activity in People Who Are Incarcerated: A Social Justice Issue Journal Article Journal of Physical Activity and Health, 16 (5), pp. 306-307, 2019. @article{Camplain2019, title = {Physical Activity in People Who Are Incarcerated: A Social Justice Issue}, author = {Ricky Camplain and Julie A Baldwin and Meghan Warren and Carolyn Camplain}, url = {https://journals.humankinetics.com/doi/full/10.1123/jpah.2019-0055}, year = {2019}, date = {2019-05-05}, journal = {Journal of Physical Activity and Health}, volume = {16}, number = {5}, pages = {306-307}, abstract = {Every year, approximately 12 million Americans cycle in and out of jail (ie, short-term facilities that hold individuals awaiting trial and/or sentenced to a term of less than 1 y).1 Although jails allow incarcerated individuals’ recreation time to engage in physical activity,2 it is not clear to what extent these opportunities are utilized. This potential lack of engagement in physical activity is concerning, especially as some of the benefits of physical activity are immediate and may improve the day-to-day life for those who are incarcerated. For example, a single bout of moderate to vigorous physical activity will reduce blood pressure, improve insulin sensitivity, improve sleep and cognition, and reduce symptoms of anxiety symptoms and anger.3 Unfortunately, use of recreation time in the jail setting has not been described previously, thereby precluding an important area for policy intervention.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Every year, approximately 12 million Americans cycle in and out of jail (ie, short-term facilities that hold individuals awaiting trial and/or sentenced to a term of less than 1 y).1 Although jails allow incarcerated individuals’ recreation time to engage in physical activity,2 it is not clear to what extent these opportunities are utilized. This potential lack of engagement in physical activity is concerning, especially as some of the benefits of physical activity are immediate and may improve the day-to-day life for those who are incarcerated. For example, a single bout of moderate to vigorous physical activity will reduce blood pressure, improve insulin sensitivity, improve sleep and cognition, and reduce symptoms of anxiety symptoms and anger.3 Unfortunately, use of recreation time in the jail setting has not been described previously, thereby precluding an important area for policy intervention. |
A, Kumar; D, Adhikari; A, Karmarkar; J, Freburger; P, Gozalo; V, Mor; L, Resnik Variation in Hospital-Based Rehabilitation Services Among Patients With Ischemic Stroke in the United States Journal Article Physical Therapy, 99 (5), pp. 494-506, 2019. @article{A2019b, title = {Variation in Hospital-Based Rehabilitation Services Among Patients With Ischemic Stroke in the United States}, author = {Kumar A and Adhikari D and Karmarkar A and Freburger J and Gozalo P and Mor V and Resnik L }, url = {https://www.ncbi.nlm.nih.gov/pubmed/31089705}, doi = {10.1093/ptj/pzz014}, year = {2019}, date = {2019-05-01}, journal = {Physical Therapy}, volume = {99}, number = {5}, pages = {494-506}, keywords = {}, pubstate = {published}, tppubtype = {article} } |
Camplain, Ricky; Warren, Meghan; Baldwin, Julie; Camplain, Carolyn; Fofanov, Viacheslav Y; Trotter, Robert T Epidemiology of incarceration Characterizing jail incarceration for public health research Journal Article Epidemiology, 2019. @article{Camplain2019d, title = {Epidemiology of incarceration Characterizing jail incarceration for public health research}, author = {Ricky Camplain and Meghan Warren and Julie Baldwin and Carolyn Camplain and Viacheslav Y Fofanov and Robert T Trotter}, url = {https://journals.lww.com/epidem/Abstract/2019/07000/Epidemiology_of_Incarceration__Characterizing_Jail.14.aspx}, doi = {10.1097/EDE.0000000000001021}, year = {2019}, date = {2019-04-08}, journal = {Epidemiology}, abstract = {Background: Each year, 9 million individuals cycle in and out of jails. The under-characterization of incarceration as an exposure poses substantial challenges to understanding how varying levels of exposure to jail may affect health. Thus, we characterized levels of jail incarceration including recidivism, number of incarcerations, total and average number of days incarcerated, and time to re-incarceration. Methods: We created a cohort of 75,203 individuals incarcerated at the Coconino County Detention Facility in Flagstaff, Arizona, from 2001-2018 from jail intake and release records. Results: The median number of incarcerations during the study period was 1 (Interquartile range (IQR) 1, 2). Forty percent of individuals had >1 incarceration. The median length of stay for first observed incarcerations was 1 day (IQR 0, 5). The median total days incarcerated was 3 (IQR 1, 23). Average length of stay increased by number of incarcerations. By 18 months, 27% of our sample had been re-incarcerated. Conclusion: Characteristics of jail incarceration have been largely left out of public health research. A better understanding of jail incarcerations can help design analyses to assess health outcomes of individuals incarcerated in jail. Our study is an early step in shaping an understanding of jail incarceration as an exposure for future epidemiologic research.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background: Each year, 9 million individuals cycle in and out of jails. The under-characterization of incarceration as an exposure poses substantial challenges to understanding how varying levels of exposure to jail may affect health. Thus, we characterized levels of jail incarceration including recidivism, number of incarcerations, total and average number of days incarcerated, and time to re-incarceration. Methods: We created a cohort of 75,203 individuals incarcerated at the Coconino County Detention Facility in Flagstaff, Arizona, from 2001-2018 from jail intake and release records. Results: The median number of incarcerations during the study period was 1 (Interquartile range (IQR) 1, 2). Forty percent of individuals had >1 incarceration. The median length of stay for first observed incarcerations was 1 day (IQR 0, 5). The median total days incarcerated was 3 (IQR 1, 23). Average length of stay increased by number of incarcerations. By 18 months, 27% of our sample had been re-incarcerated. Conclusion: Characteristics of jail incarceration have been largely left out of public health research. A better understanding of jail incarcerations can help design analyses to assess health outcomes of individuals incarcerated in jail. Our study is an early step in shaping an understanding of jail incarceration as an exposure for future epidemiologic research. |
Gilbert, Paul A; Pro, George; Zemore, Sarah E; Mulia, Nina; Brown, Grant Gender Differences in Use of Alcohol Treatment Services and Reasons for Nonuse in a National Sample. Journal Article Alcoholism: clinical and experimental research, 2019. @article{Gilbert2019, title = {Gender Differences in Use of Alcohol Treatment Services and Reasons for Nonuse in a National Sample.}, author = {Paul A. Gilbert and George Pro and Sarah E. Zemore and Nina Mulia and Grant Brown}, url = {https://www.ncbi.nlm.nih.gov/pubmed/30807660}, doi = { 10.1111/acer.13965}, year = {2019}, date = {2019-04-01}, journal = {Alcoholism: clinical and experimental research}, abstract = {BACKGROUND: The majority of adults with alcohol use disorders do not obtain help, and women are less likely to utilize alcohol services than men. We sought to quantify gender differences in alcohol services utilization, overall and by type, using national longitudinal data and to explore potential gender differences in perceived need for help and reasons for not seeking help. METHODS: We analyzed data from the National Epidemiologic Survey on Alcohol and Related Conditions from White, African American, and Hispanic adults (n = 2,592) who met DSM-IV criteria for alcohol abuse or dependence at Wave 1 (2000 to 2001). We tested gender differences in Wave 2 (2004 to 2005) services utilization, perceived need for help, and treatment barriers using Rao-Scott chi-square tests and assessed predictors of outcomes in multivariable logistic regression, adjusting for problem severity, co-occurring disorders, and demographics. RESULTS: Women had much lower odds than men of utilizing any alcohol service (adjusted odds ratio [aOR] 0.53; 95% confidence interval [95% CI]: 0.33, 0.86), specialty services (aOR 0.41; 95% CI 0.19, 0.87), and 12-step groups (aOR 0.39; 95% CI 0.21, 0.71). Perceived need for help among those who had not used any services was very low (5%), with no gender difference. Further, men and women reported equivalent numbers of treatment barriers and the same rank order for the most frequently endorsed barriers. However, women were twice as likely as men to think a problem would get better by itself-the most frequent reason for not seeking help (47% vs. 24%, p < 0.001), and men were more likely than women to report unsuccessful past help-seeking and not thinking anyone could help (19% vs. 3%, p < 0.001 and 17% vs. 5%, p = 0.001, respectively). CONCLUSIONS: Consistent with previous studies, women were less likely to utilize alcohol services than men. Future interventions should address low problem recognition, and tailoring to gender-specific barriers may help close the disparity in services utilization.}, keywords = {}, pubstate = {published}, tppubtype = {article} } BACKGROUND: The majority of adults with alcohol use disorders do not obtain help, and women are less likely to utilize alcohol services than men. We sought to quantify gender differences in alcohol services utilization, overall and by type, using national longitudinal data and to explore potential gender differences in perceived need for help and reasons for not seeking help. METHODS: We analyzed data from the National Epidemiologic Survey on Alcohol and Related Conditions from White, African American, and Hispanic adults (n = 2,592) who met DSM-IV criteria for alcohol abuse or dependence at Wave 1 (2000 to 2001). We tested gender differences in Wave 2 (2004 to 2005) services utilization, perceived need for help, and treatment barriers using Rao-Scott chi-square tests and assessed predictors of outcomes in multivariable logistic regression, adjusting for problem severity, co-occurring disorders, and demographics. RESULTS: Women had much lower odds than men of utilizing any alcohol service (adjusted odds ratio [aOR] 0.53; 95% confidence interval [95% CI]: 0.33, 0.86), specialty services (aOR 0.41; 95% CI 0.19, 0.87), and 12-step groups (aOR 0.39; 95% CI 0.21, 0.71). Perceived need for help among those who had not used any services was very low (5%), with no gender difference. Further, men and women reported equivalent numbers of treatment barriers and the same rank order for the most frequently endorsed barriers. However, women were twice as likely as men to think a problem would get better by itself-the most frequent reason for not seeking help (47% vs. 24%, p < 0.001), and men were more likely than women to report unsuccessful past help-seeking and not thinking anyone could help (19% vs. 3%, p < 0.001 and 17% vs. 5%, p = 0.001, respectively). CONCLUSIONS: Consistent with previous studies, women were less likely to utilize alcohol services than men. Future interventions should address low problem recognition, and tailoring to gender-specific barriers may help close the disparity in services utilization. |
Manda-Taylor, Lucinda; Liomba, Alice; Taylor, Terrie E; Elwell, Kristan Barriers and Facilitators to Obtaining Informed Consent in a Critical Care Pediatric Research Ward in Southern Malawi Journal Article Journal of Empirical Research on Human Research Ethics, 14 (2), pp. 152-168 , 2019. @article{Manda-Taylor2019, title = {Barriers and Facilitators to Obtaining Informed Consent in a Critical Care Pediatric Research Ward in Southern Malawi }, author = {Lucinda Manda-Taylor and Alice Liomba and Terrie E. Taylor and Kristan Elwell}, url = {https://journals.sagepub.com/doi/full/10.1177/1556264619830859}, doi = {https://doi.org/10.1177/1556264619830859}, year = {2019}, date = {2019-03-19}, journal = {Journal of Empirical Research on Human Research Ethics}, volume = {14}, number = {2}, pages = {152-168 }, abstract = {Informed consent is an ethical requirement in clinical research. Obtaining informed consent is challenging in resource-constrained settings. We report results of a formative qualitative study that examined factors that facilitate and hinder informed consent for clinical research among critically ill children in Malawi. We argue that truly informed consent in a pediatric intensive care unit (PICU) is challenged by parental distress, time constraints when balancing care for critically ill patients with research-related tasks, and social hierarchies and community mistrust toward certain research procedures. We interviewed health care providers and parents of children attending a critical care unit to identify potential challenges and solicit strategies for addressing them. Providers and caregivers suggested practical solutions to enhance research participant understanding of clinical trial research, including the use of visual materials, community engagement strategies, and using patients as advocates in promoting understanding of research procedures.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Informed consent is an ethical requirement in clinical research. Obtaining informed consent is challenging in resource-constrained settings. We report results of a formative qualitative study that examined factors that facilitate and hinder informed consent for clinical research among critically ill children in Malawi. We argue that truly informed consent in a pediatric intensive care unit (PICU) is challenged by parental distress, time constraints when balancing care for critically ill patients with research-related tasks, and social hierarchies and community mistrust toward certain research procedures. We interviewed health care providers and parents of children attending a critical care unit to identify potential challenges and solicit strategies for addressing them. Providers and caregivers suggested practical solutions to enhance research participant understanding of clinical trial research, including the use of visual materials, community engagement strategies, and using patients as advocates in promoting understanding of research procedures. |
Williamson, Heather J; Fisher, Kim W; Madhavni, Devanshi; Talarico, Lori Inclusion, 7 (1), pp. 24-40, 2019. @article{Williamson2019, title = {#ADA25 Campaign: Using Social Media to Promote Participation, Social Inclusion, and Civic Engagement of People With Intellectual and Developmental Disabilities}, author = {Heather J Williamson and Kim W Fisher and Devanshi Madhavni and Lori Talarico}, url = {https://www.mdpi.com/1660-4601/16/1/44}, doi = {10.3390/ijerph16010044}, year = {2019}, date = {2019-03-01}, journal = {Inclusion}, volume = {7}, number = {1}, pages = {24-40}, abstract = {Social media is used for civic engagement and building social inclusion. Twitter is one social media tool that facilitates conversations on important societal events. A digital divide between the general population and people with intellectual and developmental disabilities (IDD) remains. Given the divide, we sought to understand the inclusion of the community of people with IDD in the conversations around the 25th anniversary of the Americans with Disabilities Act of 1990 (ADA). We conducted a content analysis of tweets associated with the anniversary and few tweets referenced the community of people with IDD. Our findings suggest that people with IDD are not included in larger civic conversations. Implications include targeted social media training for people with IDD and their support networks.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Social media is used for civic engagement and building social inclusion. Twitter is one social media tool that facilitates conversations on important societal events. A digital divide between the general population and people with intellectual and developmental disabilities (IDD) remains. Given the divide, we sought to understand the inclusion of the community of people with IDD in the conversations around the 25th anniversary of the Americans with Disabilities Act of 1990 (ADA). We conducted a content analysis of tweets associated with the anniversary and few tweets referenced the community of people with IDD. Our findings suggest that people with IDD are not included in larger civic conversations. Implications include targeted social media training for people with IDD and their support networks. |
Dunn, Dorothy J; Schwartz, Anna; Teufel-Shone, Nicolette I; Meyer, Linda A Visions: The Journal of Rogerian Scholar Science, 25 (2), pp. 16, 2019. @article{Dunn2019, title = {Educational Program to Build Resilience for Caregivers, Family Members, and Community Members in the Care of Elder Native Americans who are Experiencing Memory Loss and Cognitive Decline}, author = {Dorothy J Dunn and Anna Schwartz and Nicolette I. Teufel-Shone and Linda A. Meyer }, url = {https://www.thefreelibrary.com/Educational+Program+to+Promote+Resilience+for+Caregivers%2C+Family...-a0583693719}, year = {2019}, date = {2019-03-01}, journal = {Visions: The Journal of Rogerian Scholar Science}, volume = {25}, number = {2}, pages = {16}, abstract = {Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced. |
Hulen, Elizabeth; Hardy, Lisa J; Teufel-Shone, Nicolette; Sanderson, Priscilla R; Schwartz, Anna L; Begay, Cruz R Community Based Participatory Research (CBPR): A Dynamic Process of Health care, Provider Perceptions and American Indian Patients' Resilience Journal Article Journal of Health Care for the Poor and Underserved, 30 (1), pp. 221-237, 2019. @article{Hulen2019, title = {Community Based Participatory Research (CBPR): A Dynamic Process of Health care, Provider Perceptions and American Indian Patients' Resilience}, author = {Elizabeth Hulen and Lisa J Hardy and Nicolette Teufel-Shone and Priscilla R Sanderson and Anna L Schwartz and Cruz R Begay}, url = {https://muse.jhu.edu/article/717742}, year = {2019}, date = {2019-02-01}, journal = {Journal of Health Care for the Poor and Underserved}, volume = {30}, number = {1}, pages = {221-237}, abstract = {American Indians are disproportionately affected by factors that lead to health disparities, however many Native people demonstrate resilience when faced with health risks. Study objectives were to use a resilience framework to identify wellness strategies among American Indian people and to assess health care provider perceptions of American Indian wellness. Participants included 39 American Indian adults who self-reported resilient change and 22 health care providers who served American Indian patients. Thematic categories across American Indian and health care provider data were identified: 1) relationships inform resilience; 2) prejudice stymies resilience; and 3) place shapes resilience. Results indicated the salience of relationships in demonstrating resilience. Identified challenges and supporters of resilience are discussed.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indians are disproportionately affected by factors that lead to health disparities, however many Native people demonstrate resilience when faced with health risks. Study objectives were to use a resilience framework to identify wellness strategies among American Indian people and to assess health care provider perceptions of American Indian wellness. Participants included 39 American Indian adults who self-reported resilient change and 22 health care providers who served American Indian patients. Thematic categories across American Indian and health care provider data were identified: 1) relationships inform resilience; 2) prejudice stymies resilience; and 3) place shapes resilience. Results indicated the salience of relationships in demonstrating resilience. Identified challenges and supporters of resilience are discussed. |
Cordova-Marks, Felina M; Harris, Robin; Teufel-Shone, Nicolette I; Norton, Beatrice; Mastergeorge, Ann M; Gerald, Lynn Characteristics of American Indian Female Caregivers on a Southwest American Indian Reservation Journal Article Journal of Community Health, 44 (1), pp. 52-60, 2019. @article{Cordova-Marks2019, title = {Characteristics of American Indian Female Caregivers on a Southwest American Indian Reservation}, author = {Felina M Cordova-Marks and Robin Harris and Nicolette I Teufel-Shone and Beatrice Norton and Ann M Mastergeorge and Lynn Gerald}, url = {https://link.springer.com/article/10.1007/s10900-018-0552-7}, year = {2019}, date = {2019-02-01}, journal = {Journal of Community Health}, volume = {44}, number = {1}, pages = {52-60}, abstract = {American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress. |
Davis, Kelly J; Green, Robert C; Kirby, Christine; McGuire, Amy L; Richardson, Ian J; Ubel, Peter A; Vassy, Jason How Primary Care Providers Talk to Patients about Genome Sequencing Results: Risk, Rationale, and Recommendation Journal Article Journal of General Internal Medicine, 33 (6), pp. 877-885, 2019. @article{Davis2019, title = {How Primary Care Providers Talk to Patients about Genome Sequencing Results: Risk, Rationale, and Recommendation}, author = {J. Kelly Davis and Robert C. Green and Christine Kirby and Amy L. McGuire and Ian J. Richardson and Peter A. Ubel and Jason Vassy}, url = {https://www.ncbi.nlm.nih.gov/pubmed/29374360}, doi = {10.1007/s11606-017-4295-4}, year = {2019}, date = {2019-01-26}, journal = {Journal of General Internal Medicine}, volume = {33}, number = {6}, pages = {877-885}, abstract = {BACKGROUND: Genomics will play an increasingly prominent role in clinical medicine. OBJECTIVE: To describe how primary care physicians (PCPs) discuss and make clinical recommendations about genome sequencing results. DESIGN: Qualitative analysis. PARTICIPANTS: PCPs and their generally healthy patients undergoing genome sequencing. APPROACH: Patients received clinical genome reports that included four categories of results: monogenic disease risk variants (if present), carrier status, five pharmacogenetics results, and polygenic risk estimates for eight cardiometabolic traits. Patients' office visits with their PCPs were audio-recorded, and summative content analysis was used to describe how PCPs discussed genomic results. KEY RESULTS: For each genomic result discussed in 48 PCP-patient visits, we identified a "take-home" message (recommendation), categorized as continuing current management, further treatment, further evaluation, behavior change, remembering for future care, or sharing with family members. We analyzed how PCPs came to each recommendation by identifying 1) how they described the risk or importance of the given result and 2) the rationale they gave for translating that risk into a specific recommendation. Quantitative analysis showed that continuing current management was the most commonly coded recommendation across results overall (492/749, 66%) and for each individual result type except monogenic disease risk results. Pharmacogenetics was the most common result type to prompt a recommendation to remember for future care (94/119, 79%); carrier status was the most common type prompting a recommendation to share with family members (45/54, 83%); and polygenic results were the most common type prompting a behavior change recommendation (55/58, 95%). One-fifth of recommendation codes associated with monogenic results were for further evaluation (6/24, 25%). Rationales for these recommendations included patient context, family context, and scientific/clinical limitations of sequencing. CONCLUSIONS: PCPs distinguish substantive differences among categories of genome sequencing results and use clinical judgment to justify continuing current management in generally healthy patients with genomic results.}, keywords = {}, pubstate = {published}, tppubtype = {article} } BACKGROUND: Genomics will play an increasingly prominent role in clinical medicine. OBJECTIVE: To describe how primary care physicians (PCPs) discuss and make clinical recommendations about genome sequencing results. DESIGN: Qualitative analysis. PARTICIPANTS: PCPs and their generally healthy patients undergoing genome sequencing. APPROACH: Patients received clinical genome reports that included four categories of results: monogenic disease risk variants (if present), carrier status, five pharmacogenetics results, and polygenic risk estimates for eight cardiometabolic traits. Patients' office visits with their PCPs were audio-recorded, and summative content analysis was used to describe how PCPs discussed genomic results. KEY RESULTS: For each genomic result discussed in 48 PCP-patient visits, we identified a "take-home" message (recommendation), categorized as continuing current management, further treatment, further evaluation, behavior change, remembering for future care, or sharing with family members. We analyzed how PCPs came to each recommendation by identifying 1) how they described the risk or importance of the given result and 2) the rationale they gave for translating that risk into a specific recommendation. Quantitative analysis showed that continuing current management was the most commonly coded recommendation across results overall (492/749, 66%) and for each individual result type except monogenic disease risk results. Pharmacogenetics was the most common result type to prompt a recommendation to remember for future care (94/119, 79%); carrier status was the most common type prompting a recommendation to share with family members (45/54, 83%); and polygenic results were the most common type prompting a behavior change recommendation (55/58, 95%). One-fifth of recommendation codes associated with monogenic results were for further evaluation (6/24, 25%). Rationales for these recommendations included patient context, family context, and scientific/clinical limitations of sequencing. CONCLUSIONS: PCPs distinguish substantive differences among categories of genome sequencing results and use clinical judgment to justify continuing current management in generally healthy patients with genomic results. |
A, Kumar; L, Resnik; Karmarkar A, Freburger J; D, Adhikari; V, Mor; P, Gozalo Use of Hospital-Based Rehabilitation Services and Hospital Readmission Following Ischemic Stroke in the United States Journal Article Archives of Physical Medicine Rehabilitation, 100 (7), pp. 1218-1225, 2019. @article{A2019, title = {Use of Hospital-Based Rehabilitation Services and Hospital Readmission Following Ischemic Stroke in the United States}, author = {Kumar A and Resnik L and Karmarkar A, Freburger J and Adhikari D and Mor V and Gozalo P}, url = {https://www.ncbi.nlm.nih.gov/pubmed/30684485}, doi = {10.1016/j.apmr.2018.12.028}, year = {2019}, date = {2019-01-24}, journal = {Archives of Physical Medicine Rehabilitation}, volume = {100}, number = {7}, pages = {1218-1225}, keywords = {}, pubstate = {published}, tppubtype = {article} } |
Wilson, Jamie; Sabo, Samantha; Chief, Carmenlita; Clark, Hershel; Yazzie, Alfred; Nahee, Jacqueline; Leischow, Scott; Henderson, Patricia Nez DINÉ (NAVAJO) HEALER PERSPECTIVES ON COMMERCIAL TOBACCO USE IN CEREMONIAL SETTINGS: AN ORAL STORY PROJECT TO PROMOTE SMOKE-FREE LIFE Journal Article American Indian and Alaska Native Mental Health Research, 26 (1), pp. 63-78, 2019. @article{Wilson2019, title = {DINÉ (NAVAJO) HEALER PERSPECTIVES ON COMMERCIAL TOBACCO USE IN CEREMONIAL SETTINGS: AN ORAL STORY PROJECT TO PROMOTE SMOKE-FREE LIFE}, author = {Jamie Wilson and Samantha Sabo and Carmenlita Chief and Hershel Clark and Alfred Yazzie and Jacqueline Nahee and Scott Leischow and Patricia Nez Henderson}, url = {http://www.ucdenver.edu/academics/colleges/PublicHealth/research/centers/CAIANH/journal/Documents/Volume-26/26_1_2019_63_wilson.pdf}, year = {2019}, date = {2019-01-01}, journal = {American Indian and Alaska Native Mental Health Research}, volume = {26}, number = {1}, pages = {63-78}, abstract = {Many American Indian (AI) healers are faced with a dilemma of how to maintain the ceremonial uses of traditional tobacco meant to encourage the restoration and balance of mind, body, and spirit, while discouraging commercial tobacco use and protecting against secondhand smoke exposure in ceremonial settings. To explore this dilemma and offer culturally informed solutions, researchers conducted qualitative interviews with Navajo healers who describe the history and role of commercial tobacco within ceremonial contexts. Healers understand the importance of their role on their community’s health and expressed deep concern about the use of commercial tobacco in the ceremonial setting. Healers play an important role in curbing the use of commercial tobacco and limiting the exposure to secondhand smoke in ceremonial settings and beyond. Study implications include the importance of understanding traditional and cultural knowledge and its potential as a pathway to solve contemporary public health issues facing AI communities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Many American Indian (AI) healers are faced with a dilemma of how to maintain the ceremonial uses of traditional tobacco meant to encourage the restoration and balance of mind, body, and spirit, while discouraging commercial tobacco use and protecting against secondhand smoke exposure in ceremonial settings. To explore this dilemma and offer culturally informed solutions, researchers conducted qualitative interviews with Navajo healers who describe the history and role of commercial tobacco within ceremonial contexts. Healers understand the importance of their role on their community’s health and expressed deep concern about the use of commercial tobacco in the ceremonial setting. Healers play an important role in curbing the use of commercial tobacco and limiting the exposure to secondhand smoke in ceremonial settings and beyond. Study implications include the importance of understanding traditional and cultural knowledge and its potential as a pathway to solve contemporary public health issues facing AI communities. |
Valdez, Elizabeth Salerno; Sabo, Samantha; Butler, Matthew; Camplain, Ricky; Simpson, Rosi; Castro, Yara Perinatal Depression Symptom Prevalence on the U.S.–Mexico Border Journal Article Journal of Rural Mental Health, 43 (1), pp. 38-44, 2019. @article{Valdez2019, title = {Perinatal Depression Symptom Prevalence on the U.S.–Mexico Border}, author = {Elizabeth Salerno Valdez and Samantha Sabo and Matthew Butler and Ricky Camplain and Rosi Simpson and Yara Castro}, editor = {PhD James L. Werth}, url = {https://psycnet.apa.org/record/2019-06780-004?doi=1}, year = {2019}, date = {2019-01-01}, journal = {Journal of Rural Mental Health}, volume = {43}, number = {1}, pages = {38-44}, abstract = {At the U.S.–Mexico border, immigration policies have been documented to exacerbate health inequities among immigrant communities. We examined the prevalence of perinatal depressive symptomatology among Mexican-origin mothers living on the U.S.–Mexico border. Data for 1,629 pre- and postnatal women were drawn from a Community Health Worker Home Visiting Program from 2008 to 2016. Participants were screened for perinatal depressive symptomatology using the Edinburgh Postnatal Depression Scale (EPDS). Prevalence and associated 95% confidence intervals for prenatal and postnatal depression scores were estimated among women with prenatal depression scores only, postnatal depression scores only, and among women with both prenatal and postnatal scores by year and by participant characteristics. Participants were predominantly Mexican, Spanish-speaking, unmarried, with less than high school education, and with an annual income of less than $15,000. Prenatal and postnatal EPDS scores indicating low risk for depression (i.e., 0–5) ranged from 59.4% to 64.8% and 62.2% to 71.9%, respectively. Moderate risk prenatal and postnatal EPDS scores (i.e., 6–12) ranged from 28.6% to 32.1% and 22.8% to 25.6%, respectively. High-risk prenatal and postnatal EPDS scores (i.e., ≥13) ranged from 6.6% to 8.5% and 5.3% to 12.3%, respectively. In the context of a proliferation of anti-immigrant policies that jeopardize social determinants of maternal well-being, we observed a sustained upward trend in mean EPDS scores. U.S.–Mexico border women may be at particular risk for discrimination, stress, and victimization because of U.S. immigration and border security policies. This brief report generates a baseline prevalence of perinatal depressive symptomatology among women of Mexican origin and offers public health research explanations for maternal mental well-being at the U.S.–Mexico border. (PsycINFO Database Record (c) 2019 APA, all rights reserved)}, keywords = {}, pubstate = {published}, tppubtype = {article} } At the U.S.–Mexico border, immigration policies have been documented to exacerbate health inequities among immigrant communities. We examined the prevalence of perinatal depressive symptomatology among Mexican-origin mothers living on the U.S.–Mexico border. Data for 1,629 pre- and postnatal women were drawn from a Community Health Worker Home Visiting Program from 2008 to 2016. Participants were screened for perinatal depressive symptomatology using the Edinburgh Postnatal Depression Scale (EPDS). Prevalence and associated 95% confidence intervals for prenatal and postnatal depression scores were estimated among women with prenatal depression scores only, postnatal depression scores only, and among women with both prenatal and postnatal scores by year and by participant characteristics. Participants were predominantly Mexican, Spanish-speaking, unmarried, with less than high school education, and with an annual income of less than $15,000. Prenatal and postnatal EPDS scores indicating low risk for depression (i.e., 0–5) ranged from 59.4% to 64.8% and 62.2% to 71.9%, respectively. Moderate risk prenatal and postnatal EPDS scores (i.e., 6–12) ranged from 28.6% to 32.1% and 22.8% to 25.6%, respectively. High-risk prenatal and postnatal EPDS scores (i.e., ≥13) ranged from 6.6% to 8.5% and 5.3% to 12.3%, respectively. In the context of a proliferation of anti-immigrant policies that jeopardize social determinants of maternal well-being, we observed a sustained upward trend in mean EPDS scores. U.S.–Mexico border women may be at particular risk for discrimination, stress, and victimization because of U.S. immigration and border security policies. This brief report generates a baseline prevalence of perinatal depressive symptomatology among women of Mexican origin and offers public health research explanations for maternal mental well-being at the U.S.–Mexico border. (PsycINFO Database Record (c) 2019 APA, all rights reserved) |
Teufel-Shone, Nicolette I; Schwartz, Anna L; Hardy, Lisa J; Heer, Hendrik De D; Williamson, Heather J; Dunn, Dorothy J; Polingyumptewa, Kellen; Chief, Carmenlita Supporting New Community-Based Participatory Research Partnerships Journal Article International Journal of Environmental Research and Public Health, 16 (1), pp. 44, 2019. @article{Teufel-Shone2019, title = {Supporting New Community-Based Participatory Research Partnerships}, author = {Nicolette I Teufel-Shone and Anna L Schwartz and Lisa J Hardy and Hendrik De D Heer and Heather J Williamson and Dorothy J Dunn and Kellen Polingyumptewa and Carmenlita Chief}, url = {https://www.mdpi.com/1660-4601/16/1/44/htm}, year = {2019}, date = {2019-01-01}, journal = {International Journal of Environmental Research and Public Health}, volume = {16}, number = {1}, pages = {44}, abstract = {Marginalized communities have a documented distrust of research grounded in negative portrayals in the academic literature. Yet, trusted partnerships, the foundation for Community-Based Participatory Research (CBPR), require time to build the capacity for joint decision-making, equitable involvement of academically trained and community investigators, and co-learning. Trust can be difficult to develop within the short time between a funding opportunity announcement and application submission. Resources to support community- and academic-based investigators’ time to discuss contexts, concerns, integration of expertise and locally acceptable research designs and data collection are limited. The National Institutes of Health (NIH) funded Center for American Indian Resilience and the Southwest Health Equity Research Collaborative have implemented an internal funding mechanism to support community and academic-based investigators’ travel cost and time to discuss complementary areas of interest and skills and to decide if moving forward with a partnership and a collaborative grant proposal would be beneficial to the community. The rationale and administration of this Community-Campus Partnership Support (CCPS) Program are described and four examples of supported efforts are provided. Centers and training programs frequently fund pilot grants to support junior investigators and/or exploratory research. This CCPS mechanism should be considered as precursor to pilot work, to stimulate partnership building without the pressure of an approaching grant application deadline.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Marginalized communities have a documented distrust of research grounded in negative portrayals in the academic literature. Yet, trusted partnerships, the foundation for Community-Based Participatory Research (CBPR), require time to build the capacity for joint decision-making, equitable involvement of academically trained and community investigators, and co-learning. Trust can be difficult to develop within the short time between a funding opportunity announcement and application submission. Resources to support community- and academic-based investigators’ time to discuss contexts, concerns, integration of expertise and locally acceptable research designs and data collection are limited. The National Institutes of Health (NIH) funded Center for American Indian Resilience and the Southwest Health Equity Research Collaborative have implemented an internal funding mechanism to support community and academic-based investigators’ travel cost and time to discuss complementary areas of interest and skills and to decide if moving forward with a partnership and a collaborative grant proposal would be beneficial to the community. The rationale and administration of this Community-Campus Partnership Support (CCPS) Program are described and four examples of supported efforts are provided. Centers and training programs frequently fund pilot grants to support junior investigators and/or exploratory research. This CCPS mechanism should be considered as precursor to pilot work, to stimulate partnership building without the pressure of an approaching grant application deadline. |
Valdez, Elizabeth Salerno; Sabo, Samantha; Butler, Matthew; Camplain, Ricky; Simpson, Rosi; Castro, Yara Perinatal depression symptom prevalence on the U.S.–Mexico border Journal Article Journal of Rural Mental Health, 43 (1), pp. 38-44, 2019. @article{Valdez2019c, title = {Perinatal depression symptom prevalence on the U.S.–Mexico border}, author = {Elizabeth Salerno Valdez and Samantha Sabo and Matthew Butler and Ricky Camplain and Rosi Simpson and Yara Castro}, editor = {James L. Werth}, url = {https://psycnet.apa.org/record/2019-06780-004?doi=1}, doi = {http://dx.doi.org/10.1037/rmh0000107}, year = {2019}, date = {2019-01-01}, journal = { Journal of Rural Mental Health}, volume = {43}, number = {1}, pages = {38-44}, abstract = {At the U.S.–Mexico border, immigration policies have been documented to exacerbate health inequities among immigrant communities. We examined the prevalence of perinatal depressive symptomatology among Mexican-origin mothers living on the U.S.–Mexico border. Data for 1,629 pre- and postnatal women were drawn from a Community Health Worker Home Visiting Program from 2008 to 2016. Participants were screened for perinatal depressive symptomatology using the Edinburgh Postnatal Depression Scale (EPDS). Prevalence and associated 95% confidence intervals for prenatal and postnatal depression scores were estimated among women with prenatal depression scores only, postnatal depression scores only, and among women with both prenatal and postnatal scores by year and by participant characteristics. Participants were predominantly Mexican, Spanish-speaking, unmarried, with less than high school education, and with an annual income of less than $15,000. Prenatal and postnatal EPDS scores indicating low risk for depression (i.e., 0–5) ranged from 59.4% to 64.8% and 62.2% to 71.9%, respectively. Moderate risk prenatal and postnatal EPDS scores (i.e., 6–12) ranged from 28.6% to 32.1% and 22.8% to 25.6%, respectively. High-risk prenatal and postnatal EPDS scores (i.e., ≥13) ranged from 6.6% to 8.5% and 5.3% to 12.3%, respectively. In the context of a proliferation of anti-immigrant policies that jeopardize social determinants of maternal well-being, we observed a sustained upward trend in mean EPDS scores. U.S.–Mexico border women may be at particular risk for discrimination, stress, and victimization because of U.S. immigration and border security policies. This brief report generates a baseline prevalence of perinatal depressive symptomatology among women of Mexican origin and offers public health research explanations for maternal mental well-being at the U.S.–Mexico border. (PsycINFO Database Record (c) 2019 APA, all rights reserved)}, keywords = {}, pubstate = {published}, tppubtype = {article} } At the U.S.–Mexico border, immigration policies have been documented to exacerbate health inequities among immigrant communities. We examined the prevalence of perinatal depressive symptomatology among Mexican-origin mothers living on the U.S.–Mexico border. Data for 1,629 pre- and postnatal women were drawn from a Community Health Worker Home Visiting Program from 2008 to 2016. Participants were screened for perinatal depressive symptomatology using the Edinburgh Postnatal Depression Scale (EPDS). Prevalence and associated 95% confidence intervals for prenatal and postnatal depression scores were estimated among women with prenatal depression scores only, postnatal depression scores only, and among women with both prenatal and postnatal scores by year and by participant characteristics. Participants were predominantly Mexican, Spanish-speaking, unmarried, with less than high school education, and with an annual income of less than $15,000. Prenatal and postnatal EPDS scores indicating low risk for depression (i.e., 0–5) ranged from 59.4% to 64.8% and 62.2% to 71.9%, respectively. Moderate risk prenatal and postnatal EPDS scores (i.e., 6–12) ranged from 28.6% to 32.1% and 22.8% to 25.6%, respectively. High-risk prenatal and postnatal EPDS scores (i.e., ≥13) ranged from 6.6% to 8.5% and 5.3% to 12.3%, respectively. In the context of a proliferation of anti-immigrant policies that jeopardize social determinants of maternal well-being, we observed a sustained upward trend in mean EPDS scores. U.S.–Mexico border women may be at particular risk for discrimination, stress, and victimization because of U.S. immigration and border security policies. This brief report generates a baseline prevalence of perinatal depressive symptomatology among women of Mexican origin and offers public health research explanations for maternal mental well-being at the U.S.–Mexico border. (PsycINFO Database Record (c) 2019 APA, all rights reserved) |
2018 |
Lam, Felix; Pro, George; Agrawal, Shreya; Shastri, Vishal Dev; Wentworth, Leslie; Stanley, Melinda; Beri, Nitin; Tupe, Abhishek; Mishra, Ashutosh; Subramaniam, Hamsa; Schroder, Kate; Prescott, Marta Rose; Trikha, Naresh Journal of Global Health, 9 (1), 2018. @article{Lam2018, title = {Effect of enhanced detailing and mass media on community use of oral rehydration salts and zinc during a scale-up program in Gujarat and Uttar Pradesh}, author = {Felix Lam and George Pro and Shreya Agrawal and Vishal Dev Shastri and Leslie Wentworth and Melinda Stanley and Nitin Beri and Abhishek Tupe and Ashutosh Mishra and Hamsa Subramaniam and Kate Schroder and Marta Rose Prescott and Naresh Trikha}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287208/}, year = {2018}, date = {2018-12-10}, journal = {Journal of Global Health}, volume = {9}, number = {1}, abstract = {Background The Clinton Health Access Initiative implemented a program from 2012-2016 to increase use of oral rehydration salts (ORS) and zinc to treat diarrhea in children under five in three states in India: Gujarat, Madhya Pradesh, and Uttar Pradesh. The program interventions included detailing and development of a rural supply chain to reach private rural health care providers, training of Accredited Social Health Activists (ASHAs), technical support to the state governments, and a mass media campaign targeted at caregivers. In Gujarat and Uttar Pradesh, some of the program activities, such as detailing and ASHA trainings, were targeted to high-burden focal districts, thus providing an opportunity to study their effect compared to statewide activities that covered all districts, such as the mass media campaign. Our study aimed to estimate the effect of activities on ORS and zinc use. Methods Household surveys were conducted at two points during the program and in both focal and non-focal districts. We used a difference-in-difference quasi-experimental approach to estimate the effect of the enhanced activities in focal districts and mass media campaign on the odds of a child being treated with ORS and zinc. Findings Focal district interventions were associated with a significant increase in the odds of a diarrhea episode receiving ORS in Gujarat and Uttar Pradesh. Living in focal districts increased the odds of receiving ORS in Gujarat and Uttar Pradesh by factors of 3.42 (95% CI = 1.39-8.33) and 2.29 (95% CI = 1.19-4.39), respectively. Focal district interventions were also associated with 15.02 (95% CI = 2.97-75.19) greater odds of receiving both ORS and zinc in Gujarat. In Uttar Pradesh, where the mass media campaign was focused, exposure to the campaign further modified the odds of receiving ORS and combined ORS and zinc by 1.38 (95% CI = 1.04-1.84) and 1.57 (95% CI = 1.01-2.46), respectively. Conclusion Comprehensive public and private provider interventions combined with mass media are effective strategies for increasing ORS and zinc use.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background The Clinton Health Access Initiative implemented a program from 2012-2016 to increase use of oral rehydration salts (ORS) and zinc to treat diarrhea in children under five in three states in India: Gujarat, Madhya Pradesh, and Uttar Pradesh. The program interventions included detailing and development of a rural supply chain to reach private rural health care providers, training of Accredited Social Health Activists (ASHAs), technical support to the state governments, and a mass media campaign targeted at caregivers. In Gujarat and Uttar Pradesh, some of the program activities, such as detailing and ASHA trainings, were targeted to high-burden focal districts, thus providing an opportunity to study their effect compared to statewide activities that covered all districts, such as the mass media campaign. Our study aimed to estimate the effect of activities on ORS and zinc use. Methods Household surveys were conducted at two points during the program and in both focal and non-focal districts. We used a difference-in-difference quasi-experimental approach to estimate the effect of the enhanced activities in focal districts and mass media campaign on the odds of a child being treated with ORS and zinc. Findings Focal district interventions were associated with a significant increase in the odds of a diarrhea episode receiving ORS in Gujarat and Uttar Pradesh. Living in focal districts increased the odds of receiving ORS in Gujarat and Uttar Pradesh by factors of 3.42 (95% CI = 1.39-8.33) and 2.29 (95% CI = 1.19-4.39), respectively. Focal district interventions were also associated with 15.02 (95% CI = 2.97-75.19) greater odds of receiving both ORS and zinc in Gujarat. In Uttar Pradesh, where the mass media campaign was focused, exposure to the campaign further modified the odds of receiving ORS and combined ORS and zinc by 1.38 (95% CI = 1.04-1.84) and 1.57 (95% CI = 1.01-2.46), respectively. Conclusion Comprehensive public and private provider interventions combined with mass media are effective strategies for increasing ORS and zinc use. |
Green, Shana M; Turner, DeAnne; Baldwin, Julie A; Walsh-Buhi, Eric R; Vamos, Cheryl A; Dagne, Getachew; Marhefka, Stephanie L AIDS and Behavior, 2018. @article{Green2018, title = {Towards an Information Motivation and Behavioral Skills Model for New Sex Partners: Results of a Study of Condom Use as an HIV Prevention Method for Emerging Adults Who Met Partners on Dating and Sex-Seeking Platforms or Offline}, author = {Shana M Green and DeAnne Turner and Julie A Baldwin and Eric R Walsh-Buhi and Cheryl A Vamos and Getachew Dagne and Stephanie L Marhefka}, url = {https://link.springer.com/article/10.1007/s10461-018-2349-1#citeas}, year = {2018}, date = {2018-12-01}, journal = {AIDS and Behavior}, abstract = {The information, motivation, behavioral Skills (IMB) model was used to identify factors that affect condom use with new sex partners that were met offline or online. Mixed methods data were collected from adults between the ages of 18 and 29 years who reported a new sex partner. A model was composed of participants’ IMB scale scores to determine the effect of these variables on condom use. A subset of 20 survey participants completed interviews exploring how IMB model elements may have influenced their condom use. Mixed methods results showed condom use skills were influential for condom use during the first sexual encounter between new partners. Qualitative findings suggest the information and motivation may also influence condom use with new sex partners. The IMB model for new partners may be relevant model for the development of interventions that encourage emerging adults to use condoms at first sex with new sex partners.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The information, motivation, behavioral Skills (IMB) model was used to identify factors that affect condom use with new sex partners that were met offline or online. Mixed methods data were collected from adults between the ages of 18 and 29 years who reported a new sex partner. A model was composed of participants’ IMB scale scores to determine the effect of these variables on condom use. A subset of 20 survey participants completed interviews exploring how IMB model elements may have influenced their condom use. Mixed methods results showed condom use skills were influential for condom use during the first sexual encounter between new partners. Qualitative findings suggest the information and motivation may also influence condom use with new sex partners. The IMB model for new partners may be relevant model for the development of interventions that encourage emerging adults to use condoms at first sex with new sex partners. |
Boucher, Nathan; Bull, Janet; Cross, S H; Kirby, Christine; David, Kelly J; Taylor, D H Acceptability of Innovative Palliative Care Model: Healthcare Consumer and Federal Taxpayer Views Journal Article Innovation in Aging, 2 (S1), pp. 1, 2018. @article{Boucher2018d, title = {Acceptability of Innovative Palliative Care Model: Healthcare Consumer and Federal Taxpayer Views}, author = {Nathan Boucher and Janet Bull and S H Cross and Christine Kirby and J Kelly David and D H Taylor}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6230062/}, doi = {10.1093/geroni/igy023.767}, year = {2018}, date = {2018-11-11}, journal = {Innovation in Aging}, volume = {2}, number = {S1}, pages = {1}, abstract = {Semi-structured interviews with palliative care users were conducted along with federal taxpayers focus groups to assess palliative care knowledge. Interviewers also queried acceptability of a new model of community-based palliative care. Gaps in interview participants’ knowledge related to knowing services available in palliative care, how palliative care is paid for, and how to initiate palliative care. Similar concerns were shared by focus groups with the addition of their noting improved knowledge of palliative care from the focus group itself. Interview participants’ feedback on the new model of care included not having palliative care explained adequately and palliative care providers seen as consultants rather than providing full-time attention to care. Focus groups indicated the model sounded promising, but likely difficult to enact in our current system. Additional feedback from interviews/focus groups included perceptions that clinicians spent more time and provided more support for patients/families, and the broader application of palliative care.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Semi-structured interviews with palliative care users were conducted along with federal taxpayers focus groups to assess palliative care knowledge. Interviewers also queried acceptability of a new model of community-based palliative care. Gaps in interview participants’ knowledge related to knowing services available in palliative care, how palliative care is paid for, and how to initiate palliative care. Similar concerns were shared by focus groups with the addition of their noting improved knowledge of palliative care from the focus group itself. Interview participants’ feedback on the new model of care included not having palliative care explained adequately and palliative care providers seen as consultants rather than providing full-time attention to care. Focus groups indicated the model sounded promising, but likely difficult to enact in our current system. Additional feedback from interviews/focus groups included perceptions that clinicians spent more time and provided more support for patients/families, and the broader application of palliative care. |
II, Robert Trotter T; Lininger, Monica R; Camplain, Ricky; Fofanov, Viacheslav Y; Camplain, Carolyn; Baldwin, Julie A International Journal of Environmental Research and Public Health, 15 (11), 2018. @article{II2018b, title = {A Survey of Health Disparities, Social Determinants of Health, and Converging Morbidities in a County Jail: A Cultural-Ecological Assessment of Health Conditions in Jail Populations}, author = {Robert Trotter T II and Monica R Lininger and Ricky Camplain and Viacheslav Y Fofanov and Carolyn Camplain and Julie A Baldwin}, url = {https://www.mdpi.com/1660-4601/15/11/2500}, year = {2018}, date = {2018-11-08}, journal = {International Journal of Environmental Research and Public Health}, volume = {15}, number = {11}, abstract = {The environmental health status of jail populations in the United States constitutes a significant public health threat for prisoners and the general population. The ecology of jails creates a dynamic condition in relation to general population health due to the concentrated potential exposure to infectious diseases, difficult access to treatment for chronic health conditions, interruption in continuity of care for serious behavioral health conditions, as well as on-going issues for the prevention and treatment of substance abuse disorders. This paper reports on elements of a cross-sectional survey embedded in a parent project, “Health Disparities in Jail Populations.” The overall project includes a comprehensive secondary data analysis of the health status of county jail populations, along with primary data collection that includes a cross-sectional health and health care services survey of incarcerated individuals, coupled with collection of biological samples to investigate infectious disease characteristics of a county jail population. This paper reports on the primary results of the survey data collection that indicate that this is a population with complex and interacting co-morbidities, as well as significant health disparities compared to the general population.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The environmental health status of jail populations in the United States constitutes a significant public health threat for prisoners and the general population. The ecology of jails creates a dynamic condition in relation to general population health due to the concentrated potential exposure to infectious diseases, difficult access to treatment for chronic health conditions, interruption in continuity of care for serious behavioral health conditions, as well as on-going issues for the prevention and treatment of substance abuse disorders. This paper reports on elements of a cross-sectional survey embedded in a parent project, “Health Disparities in Jail Populations.” The overall project includes a comprehensive secondary data analysis of the health status of county jail populations, along with primary data collection that includes a cross-sectional health and health care services survey of incarcerated individuals, coupled with collection of biological samples to investigate infectious disease characteristics of a county jail population. This paper reports on the primary results of the survey data collection that indicate that this is a population with complex and interacting co-morbidities, as well as significant health disparities compared to the general population. |
Walters, Karina L; Johnson-Jennings, Michelle; Stroud, Sandra; Rasmus, Stacy; Charles, Billy; John, Simeon; Allen, James; Kaholokula, Joseph Keawe‘aimoku; Look, Mele A; de Silva, Māpuana; Lowe, John; Baldwin, Julie A; Lawrence, Gary; Brooks, Jada; Noonan, Curtis W; Belcourt, Annie; Quintana, Eugenia; Semmens, Erin O; Boulafentis, Johna Prevention Science, pp. 1-11, 2018. @article{Walters2018, title = {Growing from Our Roots: Strategies for Developing Culturally Grounded Health Promotion Interventions in American Indian, Alaska Native, and Native Hawaiian Communities}, author = {Karina L Walters and Michelle Johnson-Jennings and Sandra Stroud and Stacy Rasmus and Billy Charles and Simeon John and James Allen and Joseph Keawe‘aimoku Kaholokula and Mele A Look and Māpuana de Silva and John Lowe and Julie A Baldwin and Gary Lawrence and Jada Brooks and Curtis W Noonan and Annie Belcourt and Eugenia Quintana and Erin O Semmens and Johna Boulafentis}, url = {https://link.springer.com/article/10.1007%2Fs11121-018-0952-z}, year = {2018}, date = {2018-11-06}, journal = {Prevention Science}, pages = {1-11}, abstract = {Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts “from the ground up.” Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts “from the ground up.” Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions. |
Walters, Karina L; Johnson-Jennings, Michelle; Stroud, Sandra; Rasmus, Stacy; Charles, Billy; John, Simeon; Allen, James; Kaholokula, Joseph Keawe‘aimoku; Look, Mele A; de Silva, Māpuana; Lowe, John; Baldwin, Julie A; Lawrence, Gary; Brooks, Jada; Noonan, Curtis W; Belcourt, Annie; Quintana, Eugenia; Semmens, Erin O; Boulafentis, Johna Prevention Science, pp. 1-11, 2018. @article{Walters2018b, title = {Growing from Our Roots: Strategies for Developing Culturally Grounded Health Promotion Interventions in American Indian, Alaska Native, and Native Hawaiian Communities.}, author = {Karina L. Walters and Michelle Johnson-Jennings and Sandra Stroud and Stacy Rasmus and Billy Charles and Simeon John and James Allen and Joseph Keawe‘aimoku Kaholokula and Mele A. Look and Māpuana de Silva and John Lowe and Julie A. Baldwin and Gary Lawrence and Jada Brooks and Curtis W. Noonan and Annie Belcourt and Eugenia Quintana and Erin O. Semmens and Johna Boulafentis}, url = {https://www.ncbi.nlm.nih.gov/pubmed/30397737}, doi = {10.1007/s11121-018-0952-z}, year = {2018}, date = {2018-11-06}, journal = {Prevention Science}, pages = {1-11}, abstract = {Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts "from the ground up." Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts "from the ground up." Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions. |
II, Robert Trotter T; Camplain, Ricky; Eaves, Emery R; Fofanov, Viacheslav Y; Dmitrieva, Natalia O; Hepp, Crystal M; Warren, Meghan; Barrios, Brianna A; Pagel, Nicole; Mayer, Alyssa; Baldwin, Julie A Health Disparities and Converging Epidemics in Jail Populations: Protocol for a Mixed-Methods Study Journal Article JMIR Res Protoc, 7 (10), 2018. @article{II2018b, title = {Health Disparities and Converging Epidemics in Jail Populations: Protocol for a Mixed-Methods Study}, author = {Robert Trotter T II and Ricky Camplain and Emery R Eaves and Viacheslav Y Fofanov and Natalia O Dmitrieva and Crystal M Hepp and Meghan Warren and Brianna A Barrios and Nicole Pagel and Alyssa Mayer and Julie A Baldwin}, editor = {Gunther Eysenbach and Nicola Kuter}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6231773/}, year = {2018}, date = {2018-10-24}, journal = {JMIR Res Protoc}, volume = {7}, number = {10}, abstract = {Background Incarcerated populations have increased in the last 20 years and >12 million individuals cycle in and out of jails each year. Previous research has predominately focused on the prison population. However, a substantial gap exists in understanding the health, well-being, and health care utilization patterns in jail populations. Objective This pilot study has 5 main objectives: (1) define recidivists of the jail system, individuals characterized by high incarceration rates; (2) describe and compare the demographic and clinical characteristics of incarcerated individuals; (3) identify jail-associated health disparities; (4) estimate associations between incarceration and health; and (5) describe model patterns in health care and jail utilization. Methods The project has two processes—a secondary data analysis and primary data collection—which includes a cross-sectional health survey and biological sample collection to investigate infectious disease characteristics of the jail population. This protocol contains pilot elements in four areas: (1) instrument validity and reliability; (2) individual item assessment; (3) proof of concept of content and database accessibility; and (4) pilot test of the “honest broker” system. Secondary data analysis includes the analysis of 6 distinct databases, each covered by a formal memorandum of agreement between Northern Arizona University and the designated institution: (1) the Superior Court of Arizona Public Case Finder database; (2) North Country Health Care; (3) Health Choice Integrated Care; (4) Criminal Justice Information Services; (5) Correctional Electronic Medical Records; and (6) iLEADS. We will perform data integration processes using an automated honest broker design. We will administer a cross-sectional health survey, which includes questions about health status, health history, health care utilization, substance use practices, physical activity, adverse childhood events, and behavioral health, among 200 Coconino County Detention Facility inmates. Concurrent with the survey administration, we will collect Methicillin-resistant and Methicillin-sensitive Staphylococcus aureus (samples from the nose) and dental microbiome (Streptococcus sobrinus and Streptococcus mutans samples from the mouth) from consenting participants. Results To date, we have permission to link data across acquired databases. We have initiated data transfer, protection, and initial assessment of the 6 secondary databases. Of 199 inmates consented and enrolled, we have permission from 97.0% (193/199) to access and link electronic medical and incarceration records to their survey responses, and 95.0% (189/199) of interviewed inmates have given nasal and buccal swabs for analysis of S. aureus and the dental microbiome. Conclusions This study is designed to increase the understanding of health needs and health care utilization patterns among jail populations, with a special emphasis on frequently incarcerated individuals. Our findings will help identify intervention points throughout the criminal justice and health care systems to improve health and reduce health disparities among jail inmates. International Registered Report Identifier (IRRID) RR1-10.2196/10337}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background Incarcerated populations have increased in the last 20 years and >12 million individuals cycle in and out of jails each year. Previous research has predominately focused on the prison population. However, a substantial gap exists in understanding the health, well-being, and health care utilization patterns in jail populations. Objective This pilot study has 5 main objectives: (1) define recidivists of the jail system, individuals characterized by high incarceration rates; (2) describe and compare the demographic and clinical characteristics of incarcerated individuals; (3) identify jail-associated health disparities; (4) estimate associations between incarceration and health; and (5) describe model patterns in health care and jail utilization. Methods The project has two processes—a secondary data analysis and primary data collection—which includes a cross-sectional health survey and biological sample collection to investigate infectious disease characteristics of the jail population. This protocol contains pilot elements in four areas: (1) instrument validity and reliability; (2) individual item assessment; (3) proof of concept of content and database accessibility; and (4) pilot test of the “honest broker” system. Secondary data analysis includes the analysis of 6 distinct databases, each covered by a formal memorandum of agreement between Northern Arizona University and the designated institution: (1) the Superior Court of Arizona Public Case Finder database; (2) North Country Health Care; (3) Health Choice Integrated Care; (4) Criminal Justice Information Services; (5) Correctional Electronic Medical Records; and (6) iLEADS. We will perform data integration processes using an automated honest broker design. We will administer a cross-sectional health survey, which includes questions about health status, health history, health care utilization, substance use practices, physical activity, adverse childhood events, and behavioral health, among 200 Coconino County Detention Facility inmates. Concurrent with the survey administration, we will collect Methicillin-resistant and Methicillin-sensitive Staphylococcus aureus (samples from the nose) and dental microbiome (Streptococcus sobrinus and Streptococcus mutans samples from the mouth) from consenting participants. Results To date, we have permission to link data across acquired databases. We have initiated data transfer, protection, and initial assessment of the 6 secondary databases. Of 199 inmates consented and enrolled, we have permission from 97.0% (193/199) to access and link electronic medical and incarceration records to their survey responses, and 95.0% (189/199) of interviewed inmates have given nasal and buccal swabs for analysis of S. aureus and the dental microbiome. Conclusions This study is designed to increase the understanding of health needs and health care utilization patterns among jail populations, with a special emphasis on frequently incarcerated individuals. Our findings will help identify intervention points throughout the criminal justice and health care systems to improve health and reduce health disparities among jail inmates. International Registered Report Identifier (IRRID) RR1-10.2196/10337 |
Trotter, Robert ; Camplain, Ricky ; Eaves, Emery ; Fofanov, Viacheslav Y; Dmitrieva, Natalia ; Hepp, Crystal ; Warren, Meghan ; Barrios, Brianna ; Mayer, Alyssa ; Baldwin, Julie Health Disparities and Converging Epidemics in Jail Populations: Protocol for a Mixed-Methods Study Journal Article Journal of Medical Internet Research, 7 (10), 2018. @article{Trotter2018, title = {Health Disparities and Converging Epidemics in Jail Populations: Protocol for a Mixed-Methods Study}, author = {Trotter, Robert and Camplain, Ricky and Eaves, Emery and Fofanov, Viacheslav Y and Dmitrieva, Natalia and Hepp, Crystal and Warren, Meghan and Barrios, Brianna and Mayer, Alyssa and Baldwin, Julie}, doi = {10.2196/10337}, year = {2018}, date = {2018-10-01}, journal = {Journal of Medical Internet Research}, volume = {7}, number = {10}, keywords = {}, pubstate = {published}, tppubtype = {article} } |
Boucher, Nathan A; Bull, Janet H; Cross, Sarah H; Kirby, Christine; Davis, Kelly J; Jr., Donald Taylor H Patient, caregiver and taxpayer knowledge of palliative care and views on a model of community-based palliative care Journal Article Journal of Pain and Symptom Management, 2018. @article{Boucher2018, title = {Patient, caregiver and taxpayer knowledge of palliative care and views on a model of community-based palliative care}, author = {Nathan A Boucher and Janet H Bull and Sarah H Cross and Christine Kirby and Kelly J Davis and Donald Taylor H Jr.}, url = {https://www.sciencedirect.com/science/article/pii/S0885392418304378}, year = {2018}, date = {2018-08-25}, journal = {Journal of Pain and Symptom Management}, abstract = {Context Palliative care (PC) model delivered by two large hospices and PC providers. Objectives To understand study participants' knowledge of PC and acceptability of a new community-based PC model. Methods Semistructured interview with patients and caregivers; focus groups with taxpayers. Descriptive content analysis with an inductive approach. Results Across 10 interviews and four focus groups (n = 4–10 per group), there was varying knowledge of PC. Gaps in interview and focus group participants' knowledge related to knowing the services available in PC, how PC is paid for, how to initiate PC, and how PC affects the patient's relationship with existing providers. Regarding the model, negative feedback from interview participants included not having PC explained adequately and PC providers seen as consultants and not as full-time providers. Focus group participants indicated that the model sounded promising but noted the likely difficulty in enacting it in our current health care system. Positive feedback from interview participants included the perception that clinicians spent more time and provided more support for patients and families and the developing ability of PC services to provide care more broadly than at the very end of life. Focus group participants had similar observations related to perceived attention to care and broader application of PC. Perceptions of time-constrained care delivery and suboptimal provider-patient communication persist for some patients getting PC services. Conclusion Education for patients, caregivers, and community members about the roles and benefits of PC will be needed to successfully expand community-based PC.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Context Palliative care (PC) model delivered by two large hospices and PC providers. Objectives To understand study participants' knowledge of PC and acceptability of a new community-based PC model. Methods Semistructured interview with patients and caregivers; focus groups with taxpayers. Descriptive content analysis with an inductive approach. Results Across 10 interviews and four focus groups (n = 4–10 per group), there was varying knowledge of PC. Gaps in interview and focus group participants' knowledge related to knowing the services available in PC, how PC is paid for, how to initiate PC, and how PC affects the patient's relationship with existing providers. Regarding the model, negative feedback from interview participants included not having PC explained adequately and PC providers seen as consultants and not as full-time providers. Focus group participants indicated that the model sounded promising but noted the likely difficulty in enacting it in our current health care system. Positive feedback from interview participants included the perception that clinicians spent more time and provided more support for patients and families and the developing ability of PC services to provide care more broadly than at the very end of life. Focus group participants had similar observations related to perceived attention to care and broader application of PC. Perceptions of time-constrained care delivery and suboptimal provider-patient communication persist for some patients getting PC services. Conclusion Education for patients, caregivers, and community members about the roles and benefits of PC will be needed to successfully expand community-based PC. |
Boucher, Nathan A; Bull, Janet H; Cross, Sarah H; Kirby, Christine; Davis, Kelly J; Taylor, Jr. Donald H Patient, Caregiver, and Taxpayer Knowledge of Palliative Care and Views on a Model of Community-Based Palliative Care Journal Article Journal of pain and Symptom Management, 56 (6), pp. 951-956, 2018. @article{Boucher2018b, title = {Patient, Caregiver, and Taxpayer Knowledge of Palliative Care and Views on a Model of Community-Based Palliative Care}, author = {Nathan A Boucher and Janet H Bull and Sarah H Cross and Christine Kirby and Kelly J Davis and Jr. Donald H. Taylor}, url = {https://www.sciencedirect.com/science/article/pii/S0885392418304378?dgcid=coauthor}, doi = {https://doi.org/10.1016/j.jpainsymman.2018.08.007}, year = {2018}, date = {2018-08-25}, journal = {Journal of pain and Symptom Management}, volume = {56}, number = {6}, pages = {951-956}, abstract = {Abstract Context Palliative care (PC) model delivered by two large hospices and PC providers. Objectives To understand study participants' knowledge of PC and acceptability of a new community-based PC model. Methods Semistructured interview with patients and caregivers; focus groups with taxpayers. Descriptive content analysis with an inductive approach. Results Across 10 interviews and four focus groups (n = 4–10 per group), there was varying knowledge of PC. Gaps in interview and focus group participants' knowledge related to knowing the services available in PC, how PC is paid for, how to initiate PC, and how PC affects the patient's relationship with existing providers. Regarding the model, negative feedback from interview participants included not having PC explained adequately and PC providers seen as consultants and not as full-time providers. Focus group participants indicated that the model sounded promising but noted the likely difficulty in enacting it in our current health care system. Positive feedback from interview participants included the perception that clinicians spent more time and provided more support for patients and families and the developing ability of PC services to provide care more broadly than at the very end of life. Focus group participants had similar observations related to perceived attention to care and broader application of PC. Perceptions of time-constrained care delivery and suboptimal provider-patient communication persist for some patients getting PC services. Conclusion Education for patients, caregivers, and community members about the roles and benefits of PC will be needed to successfully expand community-based PC.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Abstract Context Palliative care (PC) model delivered by two large hospices and PC providers. Objectives To understand study participants' knowledge of PC and acceptability of a new community-based PC model. Methods Semistructured interview with patients and caregivers; focus groups with taxpayers. Descriptive content analysis with an inductive approach. Results Across 10 interviews and four focus groups (n = 4–10 per group), there was varying knowledge of PC. Gaps in interview and focus group participants' knowledge related to knowing the services available in PC, how PC is paid for, how to initiate PC, and how PC affects the patient's relationship with existing providers. Regarding the model, negative feedback from interview participants included not having PC explained adequately and PC providers seen as consultants and not as full-time providers. Focus group participants indicated that the model sounded promising but noted the likely difficulty in enacting it in our current health care system. Positive feedback from interview participants included the perception that clinicians spent more time and provided more support for patients and families and the developing ability of PC services to provide care more broadly than at the very end of life. Focus group participants had similar observations related to perceived attention to care and broader application of PC. Perceptions of time-constrained care delivery and suboptimal provider-patient communication persist for some patients getting PC services. Conclusion Education for patients, caregivers, and community members about the roles and benefits of PC will be needed to successfully expand community-based PC. |
Williamson, Heather J; Perkins, Elizabeth A; Massey, Oliver T; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Levins, Bruce L Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports Journal Article Journal of Policy and Practice in Intellectual Disabilities, 15 (3), pp. 214-225, 2018. @article{Williamson2018, title = {Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports}, author = {Heather J Williamson and Elizabeth A Perkins and Oliver T Massey and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Bruce L Levins}, url = {https://onlinelibrary.wiley.com/doi/full/10.1111/jppi.12258}, year = {2018}, date = {2018-08-24}, journal = {Journal of Policy and Practice in Intellectual Disabilities}, volume = {15}, number = {3}, pages = {214-225}, abstract = {Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS. |
King, Caroline; Atwood, Sidney; Lozada, Mia; Nelson, Adrianne Katrina; Brown, Chris; Sabo, Samantha; Curley, Cameron; Muskett, Olivia; Orav, Endel John; Shin, Sonya PLoS ONE, 13 (8), 2018. @article{King2018b, title = {Identifying risk factors for 30-day readmission events among American Indian patients with diabetes in the Four Corners region of the southwest from 2009 to 2016.}, author = {Caroline King and Sidney Atwood and Mia Lozada and Adrianne Katrina Nelson and Chris Brown and Samantha Sabo and Cameron Curley and Olivia Muskett and Endel John Orav and Sonya Shin}, editor = {Prabath W. B. Nanayakkara}, url = {https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0195476}, doi = {10.1371/journal.pone.0195476}, year = {2018}, date = {2018-08-02}, journal = {PLoS ONE}, volume = {13}, number = {8}, abstract = {OBJECTIVE: The objective of this study was to identify risk factors for 30-day readmission events for American Indian patients with diabetes in the southwest. RESEARCH DESIGN AND METHODS: Data from patients with diabetes admitted to Gallup Indian Medical Center between 2009 and 2016 were analyzed using logistic regression analyses. RESULTS: Of 2,660 patients, 394 (14.8%) patients had at least one readmission within 30 days of discharge. Older age (OR (95% CI) = 1.26, (1.17, 1.36)), longer length of stay (OR (95% CI) = 1.01, (1.0001, 1.0342)), and a history of substance use disorder (OR (95% CI) = 1.80, (1.25, 2.60)) were risk factors for 30-day readmission. An American Indian language preference was protective against readmission. CONCLUSIONS: Readmission events are complex and may reflect broad and interwoven disparities in community systems. Future research should work to support community-defined interventions to address both in hospital and external factors that impact risk factors for readmission.}, keywords = {}, pubstate = {published}, tppubtype = {article} } OBJECTIVE: The objective of this study was to identify risk factors for 30-day readmission events for American Indian patients with diabetes in the southwest. RESEARCH DESIGN AND METHODS: Data from patients with diabetes admitted to Gallup Indian Medical Center between 2009 and 2016 were analyzed using logistic regression analyses. RESULTS: Of 2,660 patients, 394 (14.8%) patients had at least one readmission within 30 days of discharge. Older age (OR (95% CI) = 1.26, (1.17, 1.36)), longer length of stay (OR (95% CI) = 1.01, (1.0001, 1.0342)), and a history of substance use disorder (OR (95% CI) = 1.80, (1.25, 2.60)) were risk factors for 30-day readmission. An American Indian language preference was protective against readmission. CONCLUSIONS: Readmission events are complex and may reflect broad and interwoven disparities in community systems. Future research should work to support community-defined interventions to address both in hospital and external factors that impact risk factors for readmission. |
Cordova-Marks, Felina M; Harris, Robin; Teufel-Shone, Nicolette; Norton, Beatrice; Mastergeorge, Ann M; Gerald, Lynn Characteristics of American Indian female caregivers on a Southwest American Indian reservation Journal Article Journal of Community Health, 2018. @article{Cordova-Marks2018, title = {Characteristics of American Indian female caregivers on a Southwest American Indian reservation}, author = {Felina M Cordova-Marks and Robin Harris and Nicolette Teufel-Shone and Beatrice Norton and Ann M Mastergeorge and Lynn Gerald}, url = {https://link.springer.com/article/10.1007%2Fs10900-018-0552-7}, year = {2018}, date = {2018-07-28}, journal = {Journal of Community Health}, abstract = {American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress. |
Tyson, Dinorah Martinez; Teran, Enrique; Dao, Lillie Uyen-Loan; Chee, Vanessa; Hernandez, Isabel; Flores, Mercedes; Ortiz, Miguel Reina; Izurieta, Ricardo; Baldwin, Julie A Cancer is in Style: Lifestyle change and the perceived impact of globalization on Andean indigenous communities in Ecuador Journal Article Ethnicity and Health, 2018. @article{Tyson2018, title = {Cancer is in Style: Lifestyle change and the perceived impact of globalization on Andean indigenous communities in Ecuador}, author = {Dinorah Martinez Tyson and Enrique Teran and Lillie Uyen-Loan Dao and Vanessa Chee and Isabel Hernandez and Mercedes Flores and Miguel Reina Ortiz and Ricardo Izurieta and Julie A Baldwin}, url = {https://www.tandfonline.com/doi/abs/10.1080/13557858.2018.1493437?journalCode=ceth20}, doi = {10.1080/13557858.2018.1493437}, year = {2018}, date = {2018-07-04}, journal = {Ethnicity and Health}, abstract = {Introduction: There is a paucity of information on cancer among Indigenous populations in Latin America. Methods: Guided by tenets of community engaged research and syndemic theory, we conducted eight focus groups (n = 59) with Kichwa men and women in the province of Imbabura, Ecuador. Data were analyzed using applied thematic analysis techniques. Results: Cancer emerged as an important health problem and was reported as a growing concern. Kichwa participants in this study attributed the rise in cancer to (1) exposure to chemicals and pesticides, (2) urbanization and development, and (3) the rise of innutritious, westernized diets. Conclusion: Our findings suggest that the Kichwa are attuned to the global phenomena in which traditional diet has been replaced by western, processed foods and fast food, which result in higher levels of chronic diseases such as cancer. More research is needed to understand the cancer burden among Indigenous peoples in Latin America.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Introduction: There is a paucity of information on cancer among Indigenous populations in Latin America. Methods: Guided by tenets of community engaged research and syndemic theory, we conducted eight focus groups (n = 59) with Kichwa men and women in the province of Imbabura, Ecuador. Data were analyzed using applied thematic analysis techniques. Results: Cancer emerged as an important health problem and was reported as a growing concern. Kichwa participants in this study attributed the rise in cancer to (1) exposure to chemicals and pesticides, (2) urbanization and development, and (3) the rise of innutritious, westernized diets. Conclusion: Our findings suggest that the Kichwa are attuned to the global phenomena in which traditional diet has been replaced by western, processed foods and fast food, which result in higher levels of chronic diseases such as cancer. More research is needed to understand the cancer burden among Indigenous peoples in Latin America. |
Siwon, Jang; Liller, Karen; Baldwin, Julie A; Zhu, Yiliang; VandeWeerd, Carla The relationship between high school coaches' injury beliefs and practices Journal Article Health Behavior and Policy Review, 5 (4), pp. 39-49, 2018. @article{Siwon2018, title = {The relationship between high school coaches' injury beliefs and practices}, author = {Jang Siwon and Karen Liller and Julie A Baldwin and Yiliang Zhu and Carla VandeWeerd }, url = {https://www.ingentaconnect.com/contentone/psp/hbpr/2018/00000005/00000004/art00005}, doi = {10.14485/HBPR.5.4.5}, year = {2018}, date = {2018-07-01}, journal = {Health Behavior and Policy Review}, volume = {5}, number = {4}, pages = {39-49}, abstract = {Objective In this paper, we describe high school coaches’ beliefs and knowledge pertaining to sports injury and their readiness for the practice of high school injury prevention. Methods A mixed-methods approach was used to assess 111 Florida high school coaches’ beliefs and knowledge related to sports injury, readiness for injury prevention practice, and the relationship between coaches’ beliefs, knowledge and readiness. Results Whereas only 22% of respondents exhibited high injury susceptibility beliefs, levels of self-efficacy were strongly related to particular injury prevention behaviors. Coaches who employed medical staff were 4 times more likely to implement prevention programs and have emergency plans. Conclusion This research supports coaches having access to evidence-based injury prevention programs and policies should be developed on the need for coaches to execute prevention programs.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objective In this paper, we describe high school coaches’ beliefs and knowledge pertaining to sports injury and their readiness for the practice of high school injury prevention. Methods A mixed-methods approach was used to assess 111 Florida high school coaches’ beliefs and knowledge related to sports injury, readiness for injury prevention practice, and the relationship between coaches’ beliefs, knowledge and readiness. Results Whereas only 22% of respondents exhibited high injury susceptibility beliefs, levels of self-efficacy were strongly related to particular injury prevention behaviors. Coaches who employed medical staff were 4 times more likely to implement prevention programs and have emergency plans. Conclusion This research supports coaches having access to evidence-based injury prevention programs and policies should be developed on the need for coaches to execute prevention programs. |
Dickerson, Daniel; Baldwin, Julie A; Belcourt, Annie; Belone, Lorenda; Gittelsohn, Joel; Kaholokula, Joseph Keawe'aimoku; Lowe, John; Patten, Christi A; Wallerstein, Nina Encompassing cultural contexts within scientific research methodologies in the development of health promotion interventions Journal Article Prevention Science, 2018. @article{Dickerson2018, title = {Encompassing cultural contexts within scientific research methodologies in the development of health promotion interventions}, author = {Daniel Dickerson and Julie A Baldwin and Annie Belcourt and Lorenda Belone and Joel Gittelsohn and Joseph Keawe'aimoku Kaholokula and John Lowe and Christi A Patten and Nina Wallerstein}, url = {https://link.springer.com/article/10.1007%2Fs11121-018-0926-1}, doi = {10.1007/s11121-018-0926-1}, year = {2018}, date = {2018-06-29}, journal = {Prevention Science}, abstract = {American Indians/Alaska Natives/Native Hawaiians (AI/AN/NHs) disproportionately experience higher rates of various health conditions. Developing culturally centered interventions targeting health conditions is a strategy to decrease the burden of health conditions among this population. This study analyzes characteristics from 21 studies currently funded under the Interventions for Health Promotion and Disease Prevention in Native American (NA) Populations program among investigators currently funded under this grant mechanism. Four broad challenges were revealed as critical to address when scientifically establishing culturally centered interventions for Native populations. These challenges were (a) their ability to harness culture-centered knowledge and perspectives from communities; (b) their utilization of Indigenous-based theories and knowledge systems with Western-based intervention paradigms and theories; (c) their use of Western-based methodologies; and (d) their cultural adaptation, if based on an evidence-based treatment. Findings revealed that qualitative methodologies and community-based participatory research (CBPR) approaches were very commonly used to finalize the development of interventions. Various Indigenous-based theories and knowledge systems and Western-based theories were used in the methodologies employed. Cultural adaptations were made that often used formative mixed qualitative and quantitative methods. Illustrative examples of strategies used and suggestions for future research are provided. Findings underscored the importance of CBPR methods to improve the efficacy of interventions for AI/AN/NH communities by integrating Indigenous-based theories and knowledge systems with Western science approaches to improve health.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indians/Alaska Natives/Native Hawaiians (AI/AN/NHs) disproportionately experience higher rates of various health conditions. Developing culturally centered interventions targeting health conditions is a strategy to decrease the burden of health conditions among this population. This study analyzes characteristics from 21 studies currently funded under the Interventions for Health Promotion and Disease Prevention in Native American (NA) Populations program among investigators currently funded under this grant mechanism. Four broad challenges were revealed as critical to address when scientifically establishing culturally centered interventions for Native populations. These challenges were (a) their ability to harness culture-centered knowledge and perspectives from communities; (b) their utilization of Indigenous-based theories and knowledge systems with Western-based intervention paradigms and theories; (c) their use of Western-based methodologies; and (d) their cultural adaptation, if based on an evidence-based treatment. Findings revealed that qualitative methodologies and community-based participatory research (CBPR) approaches were very commonly used to finalize the development of interventions. Various Indigenous-based theories and knowledge systems and Western-based theories were used in the methodologies employed. Cultural adaptations were made that often used formative mixed qualitative and quantitative methods. Illustrative examples of strategies used and suggestions for future research are provided. Findings underscored the importance of CBPR methods to improve the efficacy of interventions for AI/AN/NH communities by integrating Indigenous-based theories and knowledge systems with Western science approaches to improve health. |
Camplain, Ricky; Kucharska-Newton, Anna; Keyserling, Thomas C; Layton, Bradley J; Loehr, Laura; Heiss, Gerardo Incidence of Heart Failure Observed in Emergency Departments, Ambulatory Clinics, and Hospitals Journal Article The American Journal of Cardiology, 121 (1), pp. 1328-1335, 2018. @article{Camplain2018, title = {Incidence of Heart Failure Observed in Emergency Departments, Ambulatory Clinics, and Hospitals}, author = {Ricky Camplain and Anna Kucharska-Newton and Thomas C Keyserling and Bradley J Layton and Laura Loehr and Gerardo Heiss}, url = {https://www.sciencedirect.com/science/article/pii/S0002914918302509?via%3Dihub}, doi = {10.1016/j.amjcard.2018.02.014}, year = {2018}, date = {2018-06-01}, journal = {The American Journal of Cardiology}, volume = {121}, number = {1}, pages = {1328-1335}, abstract = {Reports on the burden of heart failure (HF) have largely omitted HF diagnosed in outpatient settings. We quantified annual incidence rates ([IR] per 1,000 person years) of HF identified in ambulatory clinics, emergency departments (EDs), and during hospital stays in a national probability sample of Medicare beneficiaries from 2008 to 2014, by age and race/ethnicity. A 20% random sample of Medicare beneficiaries ages ≥65 years with continuous Medicare Parts A, B, and D coverage was used to estimate annual IRs of HF identified using International Classification of Diseases, Ninth Revision, Clinical Modification codes. Of the 681,487 beneficiaries with incident HF from 2008 to 2014, 283,451 (41%) presented in ambulatory clinics, 76,919 (11%) in EDs, and 321,117 (47%) in hospitals. Overall, incidence of HF in ambulatory clinics decreased from 2008 (IR 22.2, 95% confidence interval [CI] 22.0, 22.4) to 2014 (IR 15.0, 95% CI 14.8, 15.1). Similarly, incidence of HF-related ED visits without an admission to the hospital decreased somewhat from 2008 (IR 5.5, 95% CI 5.4, 5.6) to 2012 (IR 4.2, 95% CI 4.1, 4.3) and stabilized from 2013 to 2014. Similar to previous reports, HF hospitalizations, both International Classification of Diseases, Ninth Revision, Clinical Modification code 428.x in the primary and any position, decreased over the study period. More than half of all new cases of HF in Medicare beneficiaries presented in an ambulatory clinic or ED. The overall incidence of HF decreased from 2008 to 2014, regardless of health-care setting. In conclusion, consideration of outpatient HF is warranted to better understand the burden of HF and its temporal trends.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Reports on the burden of heart failure (HF) have largely omitted HF diagnosed in outpatient settings. We quantified annual incidence rates ([IR] per 1,000 person years) of HF identified in ambulatory clinics, emergency departments (EDs), and during hospital stays in a national probability sample of Medicare beneficiaries from 2008 to 2014, by age and race/ethnicity. A 20% random sample of Medicare beneficiaries ages ≥65 years with continuous Medicare Parts A, B, and D coverage was used to estimate annual IRs of HF identified using International Classification of Diseases, Ninth Revision, Clinical Modification codes. Of the 681,487 beneficiaries with incident HF from 2008 to 2014, 283,451 (41%) presented in ambulatory clinics, 76,919 (11%) in EDs, and 321,117 (47%) in hospitals. Overall, incidence of HF in ambulatory clinics decreased from 2008 (IR 22.2, 95% confidence interval [CI] 22.0, 22.4) to 2014 (IR 15.0, 95% CI 14.8, 15.1). Similarly, incidence of HF-related ED visits without an admission to the hospital decreased somewhat from 2008 (IR 5.5, 95% CI 5.4, 5.6) to 2012 (IR 4.2, 95% CI 4.1, 4.3) and stabilized from 2013 to 2014. Similar to previous reports, HF hospitalizations, both International Classification of Diseases, Ninth Revision, Clinical Modification code 428.x in the primary and any position, decreased over the study period. More than half of all new cases of HF in Medicare beneficiaries presented in an ambulatory clinic or ED. The overall incidence of HF decreased from 2008 to 2014, regardless of health-care setting. In conclusion, consideration of outpatient HF is warranted to better understand the burden of HF and its temporal trends. |
King, Caroline; Atwood, Sidney; Brown, Chris; Nelson, Adrianne Katrina; Lozada, Mia; Wei, Jennie; Merino, Maricruz; Curley, Cameron; Muskett, Olivia; Sabo, Samantha; Gampa, Vikas; Orav, John; Shin, Sonya Primary Care Diabetes, 12 (3), pp. 212-217, 2018. @article{King2018, title = {Primary care and survival among American Indian patients with diabetes in the Southwest United States: Evaluation of a cohort study at Gallup Indian Medical Center, 2009-2016}, author = {Caroline King and Sidney Atwood and Chris Brown and Adrianne Katrina Nelson and Mia Lozada and Jennie Wei and Maricruz Merino and Cameron Curley and Olivia Muskett and Samantha Sabo and Vikas Gampa and John Orav and Sonya Shin}, url = {https://www.primary-care-diabetes.com/article/S1751-9918(17)30184-5/fulltext}, year = {2018}, date = {2018-06-01}, journal = {Primary Care Diabetes}, volume = {12}, number = {3}, pages = {212-217}, abstract = {Objectives To evaluate the role of primary care healthcare delivery on survival for American Indian patients with diabetes in the southwest United States. Methods Data from patients with diabetes admitted to Gallup Indian Medical Center between 2009 and 2016 were analyzed using a log-rank test and Cox Proportional Hazards analyses. Results Of the 2661 patients included in analysis, 286 patients died during the study period. Having visited a primary care provider in the year prior to first admission of the study period was protective against all-cause mortality in unadjusted analysis (HR (95% CI) = 0.47 (0.31, 0.73)), and after adjustment. The log-rank test indicated there is a significant difference in overall survival by primary care engagement history prior to admission (p < 0.001). The median survival time for patients who had seen a primary care provider was 2322 days versus 2158 days for those who had not seen a primary care provider. Conclusions Compared with those who did not see a primary care provider in the year prior to admission, having seen a primary care provider was associated with improved survival after admission.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objectives To evaluate the role of primary care healthcare delivery on survival for American Indian patients with diabetes in the southwest United States. Methods Data from patients with diabetes admitted to Gallup Indian Medical Center between 2009 and 2016 were analyzed using a log-rank test and Cox Proportional Hazards analyses. Results Of the 2661 patients included in analysis, 286 patients died during the study period. Having visited a primary care provider in the year prior to first admission of the study period was protective against all-cause mortality in unadjusted analysis (HR (95% CI) = 0.47 (0.31, 0.73)), and after adjustment. The log-rank test indicated there is a significant difference in overall survival by primary care engagement history prior to admission (p < 0.001). The median survival time for patients who had seen a primary care provider was 2322 days versus 2158 days for those who had not seen a primary care provider. Conclusions Compared with those who did not see a primary care provider in the year prior to admission, having seen a primary care provider was associated with improved survival after admission. |
Vassy, Jason L; Davis, Kelly J; Kirby, Christine; Richardson, Ian J; Green, Robert C; McGuire, Amy L; Ubel, Peter A How primary care providers talk to patients about genome sequencing results: Risk, rationale, and recommendation Journal Article Journal of General Internal Medicine, 33 (6), pp. 877-885, 2018. @article{Vassy2018, title = {How primary care providers talk to patients about genome sequencing results: Risk, rationale, and recommendation}, author = {Jason L Vassy and Kelly J Davis and Christine Kirby and Ian J Richardson and Robert C Green and Amy L McGuire and Peter A Ubel}, url = {https://link.springer.com/article/10.1007/s11606-017-4295-4}, year = {2018}, date = {2018-06-01}, journal = {Journal of General Internal Medicine}, volume = {33}, number = {6}, pages = {877-885}, abstract = {Background Genomics will play an increasingly prominent role in clinical medicine. Objective To describe how primary care physicians (PCPs) discuss and make clinical recommendations about genome sequencing results. Design Qualitative analysis. Participants PCPs and their generally healthy patients undergoing genome sequencing. Approach Patients received clinical genome reports that included four categories of results: monogenic disease risk variants (if present), carrier status, five pharmacogenetics results, and polygenic risk estimates for eight cardiometabolic traits. Patients’ office visits with their PCPs were audio-recorded, and summative content analysis was used to describe how PCPs discussed genomic results. Key Results For each genomic result discussed in 48 PCP–patient visits, we identified a “take-home” message (recommendation), categorized as continuing current management, further treatment, further evaluation, behavior change, remembering for future care, or sharing with family members. We analyzed how PCPs came to each recommendation by identifying 1) how they described the risk or importance of the given result and 2) the rationale they gave for translating that risk into a specific recommendation. Quantitative analysis showed that continuing current management was the most commonly coded recommendation across results overall (492/749, 66%) and for each individual result type except monogenic disease risk results. Pharmacogenetics was the most common result type to prompt a recommendation to remember for future care (94/119, 79%); carrier status was the most common type prompting a recommendation to share with family members (45/54, 83%); and polygenic results were the most common type prompting a behavior change recommendation (55/58, 95%). One-fifth of recommendation codes associated with monogenic results were for further evaluation (6/24, 25%). Rationales for these recommendations included patient context, family context, and scientific/clinical limitations of sequencing. Conclusions PCPs distinguish substantive differences among categories of genome sequencing results and use clinical judgment to justify continuing current management in generally healthy patients with genomic results.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background Genomics will play an increasingly prominent role in clinical medicine. Objective To describe how primary care physicians (PCPs) discuss and make clinical recommendations about genome sequencing results. Design Qualitative analysis. Participants PCPs and their generally healthy patients undergoing genome sequencing. Approach Patients received clinical genome reports that included four categories of results: monogenic disease risk variants (if present), carrier status, five pharmacogenetics results, and polygenic risk estimates for eight cardiometabolic traits. Patients’ office visits with their PCPs were audio-recorded, and summative content analysis was used to describe how PCPs discussed genomic results. Key Results For each genomic result discussed in 48 PCP–patient visits, we identified a “take-home” message (recommendation), categorized as continuing current management, further treatment, further evaluation, behavior change, remembering for future care, or sharing with family members. We analyzed how PCPs came to each recommendation by identifying 1) how they described the risk or importance of the given result and 2) the rationale they gave for translating that risk into a specific recommendation. Quantitative analysis showed that continuing current management was the most commonly coded recommendation across results overall (492/749, 66%) and for each individual result type except monogenic disease risk results. Pharmacogenetics was the most common result type to prompt a recommendation to remember for future care (94/119, 79%); carrier status was the most common type prompting a recommendation to share with family members (45/54, 83%); and polygenic results were the most common type prompting a behavior change recommendation (55/58, 95%). One-fifth of recommendation codes associated with monogenic results were for further evaluation (6/24, 25%). Rationales for these recommendations included patient context, family context, and scientific/clinical limitations of sequencing. Conclusions PCPs distinguish substantive differences among categories of genome sequencing results and use clinical judgment to justify continuing current management in generally healthy patients with genomic results. |
Teufel-Shone, Nicolette; Jiang, Luohua; Rockwell, Jennifer; Chang, Jennifer; Beals, Janette; Bullock, Ann; Manson, Spero M Food choices and distress in reservation-based American Indians and Alaska Natives with type 2 diabetes Journal Article Public Health Nutrition, pp. 1-9, 2018. @article{Teufel-Shone2018, title = {Food choices and distress in reservation-based American Indians and Alaska Natives with type 2 diabetes}, author = {Nicolette Teufel-Shone and Luohua Jiang and Jennifer Rockwell and Jennifer Chang and Janette Beals and Ann Bullock and Spero M Manson}, url = {https://doi.org/10.1017/S1368980018000897}, doi = {10.1017/S1368980018000897}, year = {2018}, date = {2018-03-12}, journal = {Public Health Nutrition}, pages = {1-9}, abstract = {Objective: To examine the association between food choice and distress in a large national sample of American Indians/Alaska Natives (AI/AN) with type 2 diabetes. Design: Participants completed a sociodemographic survey, an FFQ and the Kessler-6 Distress Scale. Foods were identified as ‘healthy’ or ‘unhealthy’ using a classification grounded in the health education provided by the programme case managers; healthy and unhealthy food scores were calculated using reported intake frequencies. Pearson’s correlation coefficients for distress and food scores were calculated for all participants and by gender. Multiple linear regression models stratified by gender assessed the association between distress and food scores, controlling for sociodemographics and duration of type 2 diabetes. Setting: Rural AI reservations and AN villages. Subjects: AI/AN (n 2484) with type 2 diabetes. Results: Both males (34·9 %) and females (65·1 %) had higher healthy food scores than unhealthy scores. In bivariate analysis, distress level had a significant negative correlation with healthy food scores among female participants, but the association was not significant among males. Significant positive correlations between distress and unhealthy food scores were found in both genders. In the final multivariate models, healthy food scores were not significantly related to distress; however, unhealthy food scores showed significant positive relationships with distress for both genders (females: β = 0·078}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objective: To examine the association between food choice and distress in a large national sample of American Indians/Alaska Natives (AI/AN) with type 2 diabetes. Design: Participants completed a sociodemographic survey, an FFQ and the Kessler-6 Distress Scale. Foods were identified as ‘healthy’ or ‘unhealthy’ using a classification grounded in the health education provided by the programme case managers; healthy and unhealthy food scores were calculated using reported intake frequencies. Pearson’s correlation coefficients for distress and food scores were calculated for all participants and by gender. Multiple linear regression models stratified by gender assessed the association between distress and food scores, controlling for sociodemographics and duration of type 2 diabetes. Setting: Rural AI reservations and AN villages. Subjects: AI/AN (n 2484) with type 2 diabetes. Results: Both males (34·9 %) and females (65·1 %) had higher healthy food scores than unhealthy scores. In bivariate analysis, distress level had a significant negative correlation with healthy food scores among female participants, but the association was not significant among males. Significant positive correlations between distress and unhealthy food scores were found in both genders. In the final multivariate models, healthy food scores were not significantly related to distress; however, unhealthy food scores showed significant positive relationships with distress for both genders (females: β = 0·078 |
Sabo, Samantha; Champion, Catalina Denman; Bell, Melanie L; Vucovich, Elsa Cornejo; Ingram, Maia; Valencia, Celina; del Vasquez, Maria Carmen Castro; Gonzalez-Fagoaga, Eduardo; de Zapien, Jill Geurnsey; Rosales, Cecilia B Meta Salud Diabetes study protocol: A cluster-randomized trial to reduce cardiovascular risk among a diabetic population of Mexico Journal Article BMJ Open, 8 (3), 2018. @article{Sabo2018, title = {Meta Salud Diabetes study protocol: A cluster-randomized trial to reduce cardiovascular risk among a diabetic population of Mexico}, author = {Samantha Sabo and Catalina Denman Champion and Melanie L Bell and Elsa Cornejo Vucovich and Maia Ingram and Celina Valencia and Maria Carmen Castro del Vasquez and Eduardo Gonzalez-Fagoaga and Jill Geurnsey de Zapien and Cecilia B Rosales}, url = {https://bmjopen.bmj.com/content/bmjopen/8/3/e020762.full.pdf}, doi = {10.1136/bmjopen-2017-020762}, year = {2018}, date = {2018-03-12}, journal = {BMJ Open}, volume = {8}, number = {3}, abstract = {Introduction Northern Mexico has among the highest rates of cardiovascular disease (CVD) and diabetes in the world. This research addresses core gaps in implementation science to develop, test and scale-up CVD risk-reduction interventions in diabetics through a national primary care health system. Methods and analysis The Meta Salud Diabetes (MSD) research project is a parallel two-arm cluster-randomized clinical behavioral trial based in 22 (n=22) health centers in Sonora, Mexico. MSD aims to evaluate the effectiveness of the MSD intervention for the secondary prevention of CVD risk factors among a diabetic population (n=320) compared with the study control of usual care. The MSD intervention consists of 2-hour class sessions delivered over a 13-week period providing educational information to encourage sustainable behavioral change to prevent disease complications including the adoption of physical activity. MSD is delivered within the context of Mexico’s national primary care health centre system by health professionals, including nurses, physicians and community health workers via existing social support groups for individuals diagnosed with chronic disease. Mixed models are used to estimate the effect of MSD by comparing cardiovascular risk, as measured by the Framingham Risk Score, between the trial arms. Secondary outcomes include hypertension, behavioral risk factors and psychosocial factors. Ethics and dissemination This work is supported by the National Institutes of Health, National Heart Lung and Blood Institute (1R01HL125996-01) and approved by the University of Arizona Research Institutional Review Board (Protocol 1508040144) and the Research Bioethics Committee at the University of Sonora. The first Internal Review Board approval date was 31 August 2015 with five subsequent approved amendments. This article refers to protocol V.0.2, dated 30 January 2017. Results will be disseminated via peer-reviewed publication and presentation at international conferences and will be shared through meetings with health systems officials.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Introduction Northern Mexico has among the highest rates of cardiovascular disease (CVD) and diabetes in the world. This research addresses core gaps in implementation science to develop, test and scale-up CVD risk-reduction interventions in diabetics through a national primary care health system. Methods and analysis The Meta Salud Diabetes (MSD) research project is a parallel two-arm cluster-randomized clinical behavioral trial based in 22 (n=22) health centers in Sonora, Mexico. MSD aims to evaluate the effectiveness of the MSD intervention for the secondary prevention of CVD risk factors among a diabetic population (n=320) compared with the study control of usual care. The MSD intervention consists of 2-hour class sessions delivered over a 13-week period providing educational information to encourage sustainable behavioral change to prevent disease complications including the adoption of physical activity. MSD is delivered within the context of Mexico’s national primary care health centre system by health professionals, including nurses, physicians and community health workers via existing social support groups for individuals diagnosed with chronic disease. Mixed models are used to estimate the effect of MSD by comparing cardiovascular risk, as measured by the Framingham Risk Score, between the trial arms. Secondary outcomes include hypertension, behavioral risk factors and psychosocial factors. Ethics and dissemination This work is supported by the National Institutes of Health, National Heart Lung and Blood Institute (1R01HL125996-01) and approved by the University of Arizona Research Institutional Review Board (Protocol 1508040144) and the Research Bioethics Committee at the University of Sonora. The first Internal Review Board approval date was 31 August 2015 with five subsequent approved amendments. This article refers to protocol V.0.2, dated 30 January 2017. Results will be disseminated via peer-reviewed publication and presentation at international conferences and will be shared through meetings with health systems officials. |
Wohl, David A; Panter, A T; Kirby, Christine; Magnus, Brokke E; Hudgens, Michael G; Allmon, Andrew G; Mollan, Katie R Estimating HIV medication adherence and persistence: Two instruments for clinical and research use Journal Article AIDS and Behavior, 22 (3), pp. 948-960, 2018. @article{Wohl2018, title = {Estimating HIV medication adherence and persistence: Two instruments for clinical and research use}, author = {David A Wohl and A T Panter and Christine Kirby and Brokke E Magnus and Michael G Hudgens and Andrew G Allmon and Katie R Mollan}, url = {https://link.springer.com/article/10.1007/s10461-017-1772-z}, doi = {10.1007/s10461-017-1772-z}, year = {2018}, date = {2018-03-01}, journal = {AIDS and Behavior}, volume = {22}, number = {3}, pages = {948-960}, abstract = {Antiretroviral therapy (ART) requires lifelong daily oral therapy. While patient characteristics associated with suboptimal ART adherence and persistence have been described in cohorts of HIV-infected persons, these factors are poor predictors of individual medication taking behaviors. We aimed to create and test instruments for the estimation of future ART adherence and persistence for clinical and research applications. Following formative work, a battery of 148 items broadly related to HIV infection and treatment was developed and administered to 181 HIV-infected patients. ART adherence and persistence were assessed using electronic monitoring for 3 months. Perceived confidence in medication taking and self-reported barriers to adherence were strongest in predicting non-adherence over time. Barriers to adherence (e.g., affordability, scheduling) were the strongest predictors of non-adherence, as well as 3- and 7-day non-persistence. A ten-item battery for prediction of these outcomes (www.med.unc.edu/ncaidstraining/adherence/for-providers) and a 30-item battery reflective of underlying psychological constructs can help identify and study individuals at risk for suboptimal ART adherence and persistence.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Antiretroviral therapy (ART) requires lifelong daily oral therapy. While patient characteristics associated with suboptimal ART adherence and persistence have been described in cohorts of HIV-infected persons, these factors are poor predictors of individual medication taking behaviors. We aimed to create and test instruments for the estimation of future ART adherence and persistence for clinical and research applications. Following formative work, a battery of 148 items broadly related to HIV infection and treatment was developed and administered to 181 HIV-infected patients. ART adherence and persistence were assessed using electronic monitoring for 3 months. Perceived confidence in medication taking and self-reported barriers to adherence were strongest in predicting non-adherence over time. Barriers to adherence (e.g., affordability, scheduling) were the strongest predictors of non-adherence, as well as 3- and 7-day non-persistence. A ten-item battery for prediction of these outcomes (www.med.unc.edu/ncaidstraining/adherence/for-providers) and a 30-item battery reflective of underlying psychological constructs can help identify and study individuals at risk for suboptimal ART adherence and persistence. |
2017 |
Sabo, Samantha; Allen, Caitlin G; Sutkowi, Katherine; Wennerstrom, Ashley Community health workers in the United States: Challenges in identifying, surveying, and supporting the workforce Journal Article American Journal of Public Health, 107 (12), pp. 1964-1969, 2017. @article{Sabo2017, title = {Community health workers in the United States: Challenges in identifying, surveying, and supporting the workforce}, author = {Samantha Sabo and Caitlin G Allen and Katherine Sutkowi and Ashley Wennerstrom}, url = {https://ajph.aphapublications.org/doi/10.2105/AJPH.2017.304096}, year = {2017}, date = {2017-11-08}, journal = {American Journal of Public Health}, volume = {107}, number = {12}, pages = {1964-1969}, abstract = {Community health workers (CHWs) are members of a growing profession in the United States. Studying this dynamic labor force is challenging, in part because its members have more than 100 different job titles. The demand for timely, accurate information about CHWs is increasing as the profession gains recognition for its ability to improve health outcomes and reduce costs. Although numerous surveys of CHWs have been conducted, the field lacks well-delineated methods for gaining access to this hard-to-identify workforce. We outline methods for surveying CHWs and promising approaches to engage the workforce and other stakeholders in conducting local, state, and national studies. We also highlight successful strategies to overcome challenges in CHW surveys and future directions for surveying the field.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Community health workers (CHWs) are members of a growing profession in the United States. Studying this dynamic labor force is challenging, in part because its members have more than 100 different job titles. The demand for timely, accurate information about CHWs is increasing as the profession gains recognition for its ability to improve health outcomes and reduce costs. Although numerous surveys of CHWs have been conducted, the field lacks well-delineated methods for gaining access to this hard-to-identify workforce. We outline methods for surveying CHWs and promising approaches to engage the workforce and other stakeholders in conducting local, state, and national studies. We also highlight successful strategies to overcome challenges in CHW surveys and future directions for surveying the field. |
Henson, Michele; Sabo, Samantha; Trujillo, Aurora; Teufel-Shone, Nicolette Identifying protective factors to promote health in American Indian and Alaska Native adolescents: A literature review Journal Article Journal of Primary Prevention, 38 (1-2), pp. 5-26, 2017. @article{Henson2017, title = {Identifying protective factors to promote health in American Indian and Alaska Native adolescents: A literature review}, author = {Michele Henson and Samantha Sabo and Aurora Trujillo and Nicolette Teufel-Shone}, url = {https://link.springer.com/article/10.1007/s10935-016-0455-2}, year = {2017}, date = {2017-11-08}, journal = {Journal of Primary Prevention}, volume = {38}, number = {1-2}, pages = {5-26}, abstract = {Exposure to protective factors, conditions that protect against the occurrence of an undesirable outcome or promote the occurrence of a desirable outcome within an adolescent’s environment, can foster healthy adolescent behaviors and reduce adult morbidity and mortality. Yet, little is known about the nature and effect of protective factors on the positive social and health outcomes among American Indian and Alaska Native (AIAN) adolescents. We conducted a review of the literature to identify the protective factors associated with positive health outcomes among AIAN adolescents. We consulted Elsevier Science Direct, ERIC EBSCOhost, PubMed, and the Web of Science databases. A total of 3421 articles were encountered. Excluded publications were those that did not focus on AIAN adolescents (n = 3341), did not identify protective factors (n = 56), were not original research studies (n = 8), or were not written in the English language. We identified nine categories of protective factors positively associated with health and social outcomes, including: current and/or future aspirations, personal wellness, positive self-image, self-efficacy, non-familial connectedness, family connectedness, positive opportunities, positive social norms, and cultural connectedness. Such factors positively influenced adolescent alcohol, tobacco, and substance use; delinquent and violent behavior; emotional health including depression, suicide attempt; resilience; and academic success. Protective factors spanned multiple domains of the socio-ecological model. Strengths-based health promotion efforts that leverage local, innate protective factors and work with AIANs to create environments rich in protective factors are key to improving the health and wellbeing of AIAN adolescents.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Exposure to protective factors, conditions that protect against the occurrence of an undesirable outcome or promote the occurrence of a desirable outcome within an adolescent’s environment, can foster healthy adolescent behaviors and reduce adult morbidity and mortality. Yet, little is known about the nature and effect of protective factors on the positive social and health outcomes among American Indian and Alaska Native (AIAN) adolescents. We conducted a review of the literature to identify the protective factors associated with positive health outcomes among AIAN adolescents. We consulted Elsevier Science Direct, ERIC EBSCOhost, PubMed, and the Web of Science databases. A total of 3421 articles were encountered. Excluded publications were those that did not focus on AIAN adolescents (n = 3341), did not identify protective factors (n = 56), were not original research studies (n = 8), or were not written in the English language. We identified nine categories of protective factors positively associated with health and social outcomes, including: current and/or future aspirations, personal wellness, positive self-image, self-efficacy, non-familial connectedness, family connectedness, positive opportunities, positive social norms, and cultural connectedness. Such factors positively influenced adolescent alcohol, tobacco, and substance use; delinquent and violent behavior; emotional health including depression, suicide attempt; resilience; and academic success. Protective factors spanned multiple domains of the socio-ecological model. Strengths-based health promotion efforts that leverage local, innate protective factors and work with AIANs to create environments rich in protective factors are key to improving the health and wellbeing of AIAN adolescents. |
Camplain, Ricky; Kucharska-Newton, Anna; Loehr, Laura; Keyserling, Thomas C; Layton, Bradley J; Wruck, Lisa; Folsom, Aaron R; Bertoni, Alain G; Heiss, Gerardo Accuracy of Self-Reported Heart Failure. The Atherosclerosis Risk in Communities (ARIC) Study Journal Article Journal of Cardiac Failure, 23 (11), pp. 802-808, 2017. @article{Camplain2017b, title = {Accuracy of Self-Reported Heart Failure. The Atherosclerosis Risk in Communities (ARIC) Study}, author = {Ricky Camplain and Anna Kucharska-Newton and Laura Loehr and Thomas C Keyserling and Bradley J Layton and Lisa Wruck and Aaron R Folsom and Alain G Bertoni and Gerardo Heiss}, url = {https://www.ncbi.nlm.nih.gov/pubmed/28893677}, year = {2017}, date = {2017-11-01}, journal = {Journal of Cardiac Failure}, volume = {23}, number = {11}, pages = {802-808}, abstract = {Objective The aim of this work was to estimate agreement of self-reported heart failure (HF) with physician-diagnosed HF and compare the prevalence of HF according to method of ascertainment. Methods and Results ARIC cohort members (60–83 years of age) were asked annually whether a physician indicated that they have HF. For those self-reporting HF, physicians were asked to confirm their patients' HF status. Physician-diagnosed HF included surveillance of hospitalized HF and hospitalized and outpatient HF identified in administrative claims databases. We estimated sensitivity, specificity, positive predicted value, kappa, prevalence and bias–adjusted kappa (PABAK), and prevalence. Compared with physician-diagnosed HF, sensitivity of self-report was low (28%–38%) and specificity was high (96%–97%). Agreement was poor (kappa 0.32–0.39) and increased when adjusted for prevalence and bias (PABAK 0.73–0.83). Prevalence of HF measured by self-report (9.0%), ARIC-classified hospitalizations (11.2%), and administrative hospitalization claims (12.7%) were similar. When outpatient HF claims were included, prevalence of HF increased to 18.6%. Conclusions For accurate estimates HF burden, self-reports of HF are best confirmed by means of appropriate diagnostic tests or medical records. Our results highlight the need for improved awareness and understanding of HF by patients, because accurate patient awareness of the diagnosis may enhance management of this common condition.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objective The aim of this work was to estimate agreement of self-reported heart failure (HF) with physician-diagnosed HF and compare the prevalence of HF according to method of ascertainment. Methods and Results ARIC cohort members (60–83 years of age) were asked annually whether a physician indicated that they have HF. For those self-reporting HF, physicians were asked to confirm their patients' HF status. Physician-diagnosed HF included surveillance of hospitalized HF and hospitalized and outpatient HF identified in administrative claims databases. We estimated sensitivity, specificity, positive predicted value, kappa, prevalence and bias–adjusted kappa (PABAK), and prevalence. Compared with physician-diagnosed HF, sensitivity of self-report was low (28%–38%) and specificity was high (96%–97%). Agreement was poor (kappa 0.32–0.39) and increased when adjusted for prevalence and bias (PABAK 0.73–0.83). Prevalence of HF measured by self-report (9.0%), ARIC-classified hospitalizations (11.2%), and administrative hospitalization claims (12.7%) were similar. When outpatient HF claims were included, prevalence of HF increased to 18.6%. Conclusions For accurate estimates HF burden, self-reports of HF are best confirmed by means of appropriate diagnostic tests or medical records. Our results highlight the need for improved awareness and understanding of HF by patients, because accurate patient awareness of the diagnosis may enhance management of this common condition. |
Mayer, Alyssa B; McDermott, Robert J; Bryant, Carol A; Baldwin, Julie A; Kromrey, Jeffrey Sustainability of community-based health promotion coalitions: Putting theory into practice Journal Article Health Behavior and Policy Review, 4 (6), pp. 511-520, 2017. @article{Mayer2017, title = {Sustainability of community-based health promotion coalitions: Putting theory into practice}, author = {Alyssa B Mayer and Robert J McDermott and Carol A Bryant and Julie A Baldwin and Jeffrey Kromrey}, url = {http://ingentaconnect.com/contentone/psp/hbpr/2017/00000004/00000006/art00001;jsessionid=22whnsckp4hwq.x-ic-live-03}, year = {2017}, date = {2017-11-01}, journal = {Health Behavior and Policy Review}, volume = {4}, number = {6}, pages = {511-520}, abstract = {Objective: Despite their rich potential, community coalitions enjoy mixed success in effecting long-term population health improvement. A need exists for strategies that augment and sustain their functional success. We undertook a study to enhance definition of the elements of coalition success and sustainability that, in turn, may foster better achievement in community-based participatory research (CBPR) and concomitant health-related outcomes. Methods: We conducted in-depth, semi-structured interviews (N = 42) with academic researchers and their community coalition partners about the effectiveness of their collaborative endeavors. A grounded theory analysis of interview data informed the identification of domains and thematic elements influencing coalition effectiveness. Results: Seven domains emerged: (1) Characteristics related to coalition structure and processes; (2) Partner characteristics, eg, diversity, patience, flexibility, expertise; (3) Community characteristics, eg, capacity, ownership; (4) Partnership dynamics and synergy; (5) Tangible benefits; (6) Available resources, and; (7) Project characteristics. In all, 70 elements representing these domains influenced coalition effectiveness over time. Conclusions: These results extend our knowledge of factors contributing to coalition effectiveness and the sustainability of academic-community partnerships. Attention to these domains during key operational stages of CBPR initiatives is likely to have broad stakeholder benefits.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objective: Despite their rich potential, community coalitions enjoy mixed success in effecting long-term population health improvement. A need exists for strategies that augment and sustain their functional success. We undertook a study to enhance definition of the elements of coalition success and sustainability that, in turn, may foster better achievement in community-based participatory research (CBPR) and concomitant health-related outcomes. Methods: We conducted in-depth, semi-structured interviews (N = 42) with academic researchers and their community coalition partners about the effectiveness of their collaborative endeavors. A grounded theory analysis of interview data informed the identification of domains and thematic elements influencing coalition effectiveness. Results: Seven domains emerged: (1) Characteristics related to coalition structure and processes; (2) Partner characteristics, eg, diversity, patience, flexibility, expertise; (3) Community characteristics, eg, capacity, ownership; (4) Partnership dynamics and synergy; (5) Tangible benefits; (6) Available resources, and; (7) Project characteristics. In all, 70 elements representing these domains influenced coalition effectiveness over time. Conclusions: These results extend our knowledge of factors contributing to coalition effectiveness and the sustainability of academic-community partnerships. Attention to these domains during key operational stages of CBPR initiatives is likely to have broad stakeholder benefits. |
Camplain, Ricky; Kucharska-Newton, Anna; Loehr, Laura; Keyserling, Thomas C; Layton, Bradley J; Wruck, Lisa; Folsom, Aaron R; Bertoni, Alain G; Heiss, Gerardo Accuracy of self-reported heart failure. The atherosclerosis risk in communities (ARIC) study Journal Article Journal of Cardiac Failure, 23 (11), pp. 802-808, 2017. @article{Camplain2017c, title = {Accuracy of self-reported heart failure. The atherosclerosis risk in communities (ARIC) study}, author = {Ricky Camplain and Anna Kucharska-Newton and Laura Loehr and Thomas C Keyserling and Bradley J Layton and Lisa Wruck and Aaron R Folsom and Alain G Bertoni and Gerardo Heiss}, url = {https://www.sciencedirect.com/science/article/pii/S1071916417311673?via%3Dihub}, year = {2017}, date = {2017-11-01}, journal = {Journal of Cardiac Failure}, volume = {23}, number = {11}, pages = {802-808}, abstract = {Objective The aim of this work was to estimate agreement of self-reported heart failure (HF) with physician-diagnosed HF and compare the prevalence of HF according to method of ascertainment. Methods and Results ARIC cohort members (60–83 years of age) were asked annually whether a physician indicated that they have HF. For those self-reporting HF, physicians were asked to confirm their patients' HF status. Physician-diagnosed HF included surveillance of hospitalized HF and hospitalized and outpatient HF identified in administrative claims databases. We estimated sensitivity, specificity, positive predicted value, kappa, prevalence and bias–adjusted kappa (PABAK), and prevalence. Compared with physician-diagnosed HF, sensitivity of self-report was low (28%–38%) and specificity was high (96%–97%). Agreement was poor (kappa 0.32–0.39) and increased when adjusted for prevalence and bias (PABAK 0.73–0.83). Prevalence of HF measured by self-report (9.0%), ARIC-classified hospitalizations (11.2%), and administrative hospitalization claims (12.7%) were similar. When outpatient HF claims were included, prevalence of HF increased to 18.6%. Conclusions For accurate estimates HF burden, self-reports of HF are best confirmed by means of appropriate diagnostic tests or medical records. Our results highlight the need for improved awareness and understanding of HF by patients, because accurate patient awareness of the diagnosis may enhance management of this common condition.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objective The aim of this work was to estimate agreement of self-reported heart failure (HF) with physician-diagnosed HF and compare the prevalence of HF according to method of ascertainment. Methods and Results ARIC cohort members (60–83 years of age) were asked annually whether a physician indicated that they have HF. For those self-reporting HF, physicians were asked to confirm their patients' HF status. Physician-diagnosed HF included surveillance of hospitalized HF and hospitalized and outpatient HF identified in administrative claims databases. We estimated sensitivity, specificity, positive predicted value, kappa, prevalence and bias–adjusted kappa (PABAK), and prevalence. Compared with physician-diagnosed HF, sensitivity of self-report was low (28%–38%) and specificity was high (96%–97%). Agreement was poor (kappa 0.32–0.39) and increased when adjusted for prevalence and bias (PABAK 0.73–0.83). Prevalence of HF measured by self-report (9.0%), ARIC-classified hospitalizations (11.2%), and administrative hospitalization claims (12.7%) were similar. When outpatient HF claims were included, prevalence of HF increased to 18.6%. Conclusions For accurate estimates HF burden, self-reports of HF are best confirmed by means of appropriate diagnostic tests or medical records. Our results highlight the need for improved awareness and understanding of HF by patients, because accurate patient awareness of the diagnosis may enhance management of this common condition. |
Pohl, David A; Kuwahara, Rita K; Javadi, Kamran; Kirby, Christine; Rosen, David L; Napravnik, Sonia; Farel, Claire Financial barriers and lapses in treatment and care of HIV-infected adults in a southern state in the United States Journal Article AIDS Patient Care and STDs, 31 (11), pp. 463-469, 2017. @article{Pohl2017, title = {Financial barriers and lapses in treatment and care of HIV-infected adults in a southern state in the United States}, author = {David A Pohl and Rita K Kuwahara and Kamran Javadi and Christine Kirby and David L Rosen and Sonia Napravnik and Claire Farel}, url = {https://www.liebertpub.com/doi/abs/10.1089/apc.2017.0125}, year = {2017}, date = {2017-11-01}, journal = {AIDS Patient Care and STDs}, volume = {31}, number = {11}, pages = {463-469}, abstract = {Antiretroviral (ARV) adherence has largely been considered from the perspective of an individual's behavior with less attention given to potential structural causes for lapses in treatment, such as the cost of medications and care. HIV medication expense is typically covered by third party payers. However, private insurance premiums and deductibles may rise, or policies terminated such as with a change in employment. Likewise, a patient's eligibility for publicly funded coverage like state AIDS Drug Assistance Programs (ADAP) or Medicaid can also be lost. We conducted a one-time survey of a sample of 300 patients receiving HIV care at a single large academic center in the south of United States to examine lapses in HIV therapy due to financial reasons. We found that during the prior year, financial issues including medication cost or coverage led to a lapse in ARVs in 10% (n = 31) of participants. However, of …}, keywords = {}, pubstate = {published}, tppubtype = {article} } Antiretroviral (ARV) adherence has largely been considered from the perspective of an individual's behavior with less attention given to potential structural causes for lapses in treatment, such as the cost of medications and care. HIV medication expense is typically covered by third party payers. However, private insurance premiums and deductibles may rise, or policies terminated such as with a change in employment. Likewise, a patient's eligibility for publicly funded coverage like state AIDS Drug Assistance Programs (ADAP) or Medicaid can also be lost. We conducted a one-time survey of a sample of 300 patients receiving HIV care at a single large academic center in the south of United States to examine lapses in HIV therapy due to financial reasons. We found that during the prior year, financial issues including medication cost or coverage led to a lapse in ARVs in 10% (n = 31) of participants. However, of … |
Reinschmidt, Kerstin M; Ingram, Maia; Morales, Stephanie; Sabo, Samantha; Blackburn, John; Murrieta, Lucy; David, Cassalyn; Carvajal, Scott C Documenting community health worker roles in primary care: Contributions to evidence-based integration into health care teams, 2015 Journal Article Journal of Ambulatory Care Management, 40 (4), pp. 305-315, 2017. @article{Reinschmidt2017, title = {Documenting community health worker roles in primary care: Contributions to evidence-based integration into health care teams, 2015}, author = {Kerstin M Reinschmidt and Maia Ingram and Stephanie Morales and Samantha Sabo and John Blackburn and Lucy Murrieta and Cassalyn David and Scott C Carvajal}, url = {https://journals.lww.com/ambulatorycaremanagement/Fulltext/2017/10000/Documenting_Community_Health_Worker_Roles_in.11.aspx}, doi = {10.1097/JAC.0000000000000178}, year = {2017}, date = {2017-10-01}, journal = {Journal of Ambulatory Care Management}, volume = {40}, number = {4}, pages = {305-315}, abstract = {The Patient Protection and Affordable Care Act provided community health workers (CHWs) with new opportunities, and current efforts develop evidence-based guidelines for CHW integration into clinical teams. This qualitative study documents CHW roles and activities in 3 federally qualified health care centers in southern Arizona. Community health worker clinical roles, activities, and integration varied by health center and were in flux. Integration included complementary roles, scheduled and everyday communications with team members, and documentation in the electronic health records. These findings contribute to evidence-based guidelines for CHW integration into clinical teams that are critical to maximizing CHW contributions to patient health improvements.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Patient Protection and Affordable Care Act provided community health workers (CHWs) with new opportunities, and current efforts develop evidence-based guidelines for CHW integration into clinical teams. This qualitative study documents CHW roles and activities in 3 federally qualified health care centers in southern Arizona. Community health worker clinical roles, activities, and integration varied by health center and were in flux. Integration included complementary roles, scheduled and everyday communications with team members, and documentation in the electronic health records. These findings contribute to evidence-based guidelines for CHW integration into clinical teams that are critical to maximizing CHW contributions to patient health improvements. |
Arora, Nonie S; Davis, Kelly J; Kirby, Christine; McGuire, Amy L; Green, Robert C; Blumenthal-Barby, J S; Ubel, Peter A Communication challenges for non geneticist physicians relaying clinical genomic results Journal Article Personalized Medicine, 14 (5), pp. 423-431, 2017. @article{Arora2017, title = {Communication challenges for non geneticist physicians relaying clinical genomic results}, author = {Nonie S Arora and Kelly J Davis and Christine Kirby and Amy L McGuire and Robert C Green and J S Blumenthal-Barby and Peter A Ubel}, url = {https://www.futuremedicine.com/doi/abs/10.2217/pme-2017-0008}, year = {2017}, date = {2017-09-15}, journal = {Personalized Medicine}, volume = {14}, number = {5}, pages = {423-431}, abstract = {Aim: Identify the behavioral challenges to the use of genome sequencing (GS) in a clinical setting. Materials & methods: We observed how general internists and nongenetic specialists delivered GS results to patients enrolled in the MedSeq Project. Using transcripts of such disclosure interactions, we made qualitative observations of communication behaviors that could limit the usefulness of GS results until reaching the point of thematic saturation. Results: Findings included confusion regarding genomic terminology, difficulty with the volume or complexity of information and difficulties communicating complex risk information to patients. We observed a broad dismissal of clinical value of GS by some physicians and sometimes ineffective communication regarding health behavior change. Conclusion: Overcoming these behavioral challenges is necessary to make full use of clinical GS results.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Aim: Identify the behavioral challenges to the use of genome sequencing (GS) in a clinical setting. Materials & methods: We observed how general internists and nongenetic specialists delivered GS results to patients enrolled in the MedSeq Project. Using transcripts of such disclosure interactions, we made qualitative observations of communication behaviors that could limit the usefulness of GS results until reaching the point of thematic saturation. Results: Findings included confusion regarding genomic terminology, difficulty with the volume or complexity of information and difficulties communicating complex risk information to patients. We observed a broad dismissal of clinical value of GS by some physicians and sometimes ineffective communication regarding health behavior change. Conclusion: Overcoming these behavioral challenges is necessary to make full use of clinical GS results. |
Ingram, Maia; Doubleday, Kevin; Bell, Melanie L; Lohr, Abby; Murrieta, Lucy; Velasco, Maria; Blackburn, John; Sabo, Samantha; de Zapien, Jill Guernsey; Carvajal, Scott C Community health worker impact on chronic disease outcomes within primary care examined using electronic health records Journal Article American Journal of Public health, 107 (10), pp. 1668-1674, 2017. @article{Ingram2017b, title = {Community health worker impact on chronic disease outcomes within primary care examined using electronic health records}, author = {Maia Ingram and Kevin Doubleday and Melanie L Bell and Abby Lohr and Lucy Murrieta and Maria Velasco and John Blackburn and Samantha Sabo and Jill Guernsey de Zapien and Scott C Carvajal}, url = {https://www.ncbi.nlm.nih.gov/pubmed/28817321}, doi = {10.2105/AJPH.2017.303934}, year = {2017}, date = {2017-09-13}, journal = {American Journal of Public health}, volume = {107}, number = {10}, pages = {1668-1674}, abstract = {Objectives. To investigate community health worker (CHW) effects on chronic disease outcomes using electronic health records (EHRs). Methods. We examined EHRs of 32 147 patients at risk for chronic disease during 2012 to 2015. Variables included contact with clinic-based CHWs, vitals, and laboratory tests. We estimated a mixed model for all outcomes. Results. Within-group findings showed statistically significant improvements in chronic disease indicators after exposure to CHWs. In health center 1, HbA1c (glycated hemoglobin) decreased 0.15 millimoles per mole (95% confidence interval [CI] = −0.24, −0.06), body mass index decreased 0.29 kilograms per meter squared (CI = –0.39, −0.20), and total cholesterol decreased 11.9 milligrams per deciliter (CI = −13.5, −10.2). In health center 2, HbA1c decreased 0.43 millimoles per mole (CI = –0.7, −0.17), body mass index decreased by 0.08 kilograms per meter squared (CI = −0.14, −0.02), and triglycerides decreased by 22.50 milligrams per deciliter (CI = −39.0, −6.0). Total cholesterol of 3.62 milligrams per deciliter (CI = −6.6, −0.6) in health center 1 was the only improvement tied to CHW contact. Conclusions. Although patients’ chronic disease indicators consistently improved, between-group models provided no additional evidence of impact. EHRs’ evolution may elucidate CHW contributions moving forward.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objectives. To investigate community health worker (CHW) effects on chronic disease outcomes using electronic health records (EHRs). Methods. We examined EHRs of 32 147 patients at risk for chronic disease during 2012 to 2015. Variables included contact with clinic-based CHWs, vitals, and laboratory tests. We estimated a mixed model for all outcomes. Results. Within-group findings showed statistically significant improvements in chronic disease indicators after exposure to CHWs. In health center 1, HbA1c (glycated hemoglobin) decreased 0.15 millimoles per mole (95% confidence interval [CI] = −0.24, −0.06), body mass index decreased 0.29 kilograms per meter squared (CI = –0.39, −0.20), and total cholesterol decreased 11.9 milligrams per deciliter (CI = −13.5, −10.2). In health center 2, HbA1c decreased 0.43 millimoles per mole (CI = –0.7, −0.17), body mass index decreased by 0.08 kilograms per meter squared (CI = −0.14, −0.02), and triglycerides decreased by 22.50 milligrams per deciliter (CI = −39.0, −6.0). Total cholesterol of 3.62 milligrams per deciliter (CI = −6.6, −0.6) in health center 1 was the only improvement tied to CHW contact. Conclusions. Although patients’ chronic disease indicators consistently improved, between-group models provided no additional evidence of impact. EHRs’ evolution may elucidate CHW contributions moving forward. |